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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Please Describe Spring...am Getting Desperate.
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52 posts in this topic

The magnolias are out this week, and camelias well in bud. WoooHoooooo

 

We get sea mizzle here B)

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The sun is shining right now in Northern Maine, the forecast calls for 50-60's! Where did I put those flip flops haha probably right next to my winter boots that I'll need this weekend

Now to us those temps would be downright sweltering!

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Its snowing like mad now. I slipped and fell on the ice earlier. I did not see it at all. It was coating one of those metal grate like things. Luckily, i didn't hurt myself. My bum will probably be bruised and my knee was a little sore (it gave out when i fell i think).

 

I had to put my backpack on my back instead of wheeling it. My neck (from keeping my head to my chest as i walked because of blowing snow) and back are a little sore now, but i'm fine.

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I used to like Spring but not anymore.  My eyes have been red for 3 weeks and I have had trouble not sneezing constantly when I go outdoors on high mold days.  It has not been this bad in years but we had a lot of snow this winter and snow ends up as mold in the Spring.  Freakin' Bah Humbug.....you can keep mold season.  :angry:

 

So, I guess retirement for me will be an igloo somewhere around Loves to Travel's house....which may not be bad as she is an amazing cook!  ;)

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http://www.facebook.com/photo.php?fbid=10151553641672243&set=a.411845587242.185259.165030177242&type=1&relevant_count=1&ref=nf

 

Found the photo above on FB first thing this morning -- from Explore Canada's page -- taken in Vancouver -- Spring is on the way -- hope it makes it to you folks east of there very quickly!!!

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I used to like Spring but not anymore.  My eyes have been red for 3 weeks and I have had trouble not sneezing constantly when I go outdoors on high mold days.  It has not been this bad in years but we had a lot of snow this winter and snow ends up as mold in the Spring.  Freakin' Bah Humbug.....you can keep mold season.  :angry:

 

So, I guess retirement for me will be an igloo somewhere around Loves to Travel's house....which may not be bad as she is an amazing cook!  ;)

 

I'm with Gemini on this one -- Spring Sprung in San Diego about a month ago and I've been on anti-histamines much, much more than I like -- itchy watery eyes along with breathing problems when out walking and hard to forget a fun dash to ER with yet undetermined allergic reaction -- the spring wildflowers have got me in the past, but not nearly as bad as this year.

 

Thankfully my men are still designing my Bubble Suit -- next year should be a bit better ;)

 

or perhaps I'll just have to house swap with someone that keeps spring at bay awhile longer next year!

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I FOUND SPRING!!!  It's in Ohio on the golf course.  80 degrees and sunny.

 

Oh, wait a second, cold front coming thru tonight, back to crap in the morning.

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Snowed again today. Big, heavy detestable flakes. At least there are no mosquitoes!

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Lol...it is 80 here...so I'm on the patio to escape the hot house and just lit 4 citronella candles to surround me in case those pesky mosquitos are hatching nearby!

Actually about 70 out here - inside still 80ish.

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Lol...it is 80 here...so I'm on the patio to escape the hot house and just lit 4 citronella candles to surround me in case those pesky mosquitos are hatching nearby!

Sorry, but that sorta made me giggle. Only for a few seconds, though, as I did not want to get too carried away..

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Still sore from my fall yesterday. It was not supposed to snow today, I peeked outside and guess what? <_<

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Fall?  You okay Shadow?

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friend of my just took this....

 

http://www.facebook.com/photo.php?fbid=4939786216654&set=a.1589020449604.2075819.1358622109&type=1&relevant_count=1&ref=nf

 

any takers on the house swap dealio next spring ;)

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Yesterday was bright sunshine, and sweater not coat weather :)

(Apart from the hailstones)

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We had some pinhead sized hail while we were in the yard planting tomato seeds on Monday. Potted tomatoes, not ground tomatoes. Perfect, beautiful, sunny, hail weather. I was comfy in a t shirt and I'm always cold. Last night we had a hard freeze, it was 20 when I left the house to go to work. Utah has some freaky spring weather.

 

Did I mention before that all the trees are blooming? I wouldn't have to see them to know either, my eyes feel like I have some weird sand/itching powder combo in them. The vinegar rinse in my eye in the shower yesterday morning probably didn't help, followed by the impossibility of washing hot pepper hotness off your hands and forgetting about it, then rubbing your itchy eye. Naturally the one that had vinegar in it. Can I just sleep til spring is over? It is clearly not my season. I am quite sure the eye thing will be comical in retrospect. Or of course if you are anyone but me. :P

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 I wouldn't have to see them to know either, my eyes feel like I have some weird sand/itching powder combo in them. The vinegar rinse in my eye in the shower yesterday morning probably didn't help, followed by the impossibility of washing hot pepper hotness off your hands and forgetting about it, then rubbing your itchy eye. Naturally the one that had vinegar in it. Can I just sleep til spring is over? It is clearly not my season. I am quite sure the eye thing will be comical in retrospect. Or of course if you are anyone but me. :P

 

Who are you Lucy Ricardo?

No, wait, that's me!

(this is why I am forbidden to use the mandolin, the table saw and the hedge trimmers. You only need to back track and cut the electrical cord

3 times before those are taken away, apparently)

And I thought I was the only dumbass who rubbed her eyes (or perhaps other delicate places she may have accidentally

"grazed " ) after dicing jalapenos. Warning! I do NOT recommend this. :blink:

 

 

The willow trees are in bloom. Those are my one of my favorite trees. I used to sit under a large one with my Aunt Isabel

and have picnics. sigh. Life was simple then....But I digress.

 

There seems to be the usual amount of "screwing with us schizophrenic weather" we NorthEasterners are so familiar with.

One day, 60 and sunny, the next, 45 and gray, windy and BLAH. Hot cold/ hot cold. I like 70's and 80s.

B)

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Hah! It is short sleeve weather here at 45! I left work yesterday without my coat after going all bundled up when it was 20 freaking degrees. Today I get spring sprinkles and 55 for another Dr. appointment.

 

Three times huh? I'm surprised it took that long for you to have your toys taken away. It sounds like the sort of thing someone does on purpose so they don't have to be out doing that any more. I understand though. I am so like this. My husband will start to get mad about something and I will have to explain, for the 3 billionth time, that it really was an accident and that I really didn't mean to do something that stupid. Again.

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" You know you're a Noo Englandah when...."

 

You can wear flip flops and shorts one day and boots and scarves the next ....during March, April and sometimes May and October.

You think 50 degree water is  " a:good swimming temp"

 

No, no, noooo... That's Canadian! Well, except our west coast - they don't count.  ;)

 

And socks with sandals... that's almost the only way we can wear sandals except for July and August.  Yep, wool socks with sandals - i am so very very cool.

 

Wierd weather up here too. i had a snowball fight in the yard with my boys yesterday. My arm is still sore form it. We have T-shirt weather with gloves, except it's supposed to snow tonight, and tomorrow, and on Sunday....T shirt weather is above 5C up here.  :D

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Three times huh? I'm surprised it took that long for you to have your toys taken away. It sounds like the sort of thing someone does on purpose so they don't have to be out doing that any more. 

 

No, I LIKE doing it, honest.

I did not tell him the first  time. :ph34r:  I had the cord fixed before he saw it. Second time, he sais "Oh that's okay, babe. I've done that myself"

Oh good, not the only spaz in the house..... and he fixed it. Third, time, I fessed up. Then, he gave me the "ok, you're done here".

He was more concerned about my hands, arms, and

possibly my mid section as I tend to sweep the hedges back and forth. Not supposed to do that, I am told. :unsure:  :D

 

And socks with sandals... that's almost the only way we can wear sandals except for July and August.  Yep, wool socks with sandals - i am so very very cool.

 

 

 

yeah, Nicole, ...that look is er, um  "something" :lol: and I am sure it is adorable on you.

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No, no, noooo... That's Canadian! Well, except our west coast - they don't count. ;)

And socks with sandals... that's almost the only way we can wear sandals except for July and August. Yep, wool socks with sandals - i am so very very cool.

Wierd weather up here too. i had a snowball fight in the yard with my boys yesterday. My arm is still sore form it. We have T-shirt weather with gloves, except it's supposed to snow tonight, and tomorrow, and on Sunday....T shirt weather is above 5C up here. :D

YES!! You're totally right, it's Canadian! How did I forget that given that I'm half Canadian and live literally 3 minutes from the border! haha

Ps...I wore my Birki sandals with wool socks just the other day, hehe luckily it's a bit warmer here, well yesterday was anyway. It hit 70° with the wind it was more like 50° but we'll take it! This am it's raining but supposed to be nice this afternoon mid 50's! I hope it warms up in a months time, I've got the first camping trip of the season booked to St Andrews! Can't wait!

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It hit 70 here in upstate NY yesterday :) :)  although it was very breezy.

 

Hubs golfed and I opened all the windows. Fresh air! yaay!!

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Today's high was -2 and I opened the windows for some snowy air!

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That's insane stuff, my friend. :blink: 

 

I cannot wait for you to get to Croatia and some SUN!!

 

It was 60 and sunny here. 

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We have had a very wet cloud sitting on top of us for two days; today it's just a case of the drearies!!  We are bored, Miss Em is bored, the plants are bored and going to sleep, everything is shutting down..... Next thing you know we will be firing up the wood stove to cheer ourselves up!

 

I booked my fares yesterday :)

 

 

:lol:

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We have had a very wet cloud sitting on top of us for two days; today it's just a case of the drearies!!  We are bored, Miss Em is bored, the plants are bored and going to sleep, everything is shutting down..... Next thing you know we will be firing up the wood stove to cheer ourselves up!

 

I booked my fares yesterday :)

 

 

:lol:

 

 

Oh, how I miss you, dear Neroli.

Spring is here in NY and the irises are open and the wet weather has created a plethora of mushrooms

in the green grass --like little villages ---and I said to J yesterday, Look! Shroom is saying hello.

sigh

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    • Feeneyja and Captain NCGS, and Ironictruth It could be SIBO or it could be NCGS as Captain NCGS pointed out. see this research that matches your 84% of SIBO patients. https://www.celiac.com/articles/24058/1/Large-Number-of-Irritable-Bowel-Syndrome-Patients-Sensitive-to-Gluten/Page1.html Below I summarize their findings I quote “nearly 84% of the gluten- free placebo group showed a significant improvement in symptoms compared to just under 26% for the gluten consuming group.  This study confirms that a large number of patients diagnosed with irritable bowel syndrome are sensitive to gluten.  The team (of doctors) suggest that the term of IBS might be misleading (you think) and may change or delay an “effective and well-targeted treatment strategy in gluten sensitive patients”. “ This is in IBS patients already who fulfilled Rome III (lesion) criteria.  They should at least be considered Non-Celiac Gluten Sensitivity (NCGS) but that would be to admit NCGS is a real condition. If you are having NCGS symptom’s (Marsh Lesion) aka Rome III lesions then why is the diagnosis not NCGS instead of IBS?  The problem is most NCGS (apparently 84%) is misdiagnosed as IBS in a large number of cases or possibly SIBO in your case Feeneyja. Even when 84 % of those with IBS show sensitivity to gluten the diagnosis of Non-Celiac Gluten Sensitivity is not confirmed by a simple gluten antibody test and people  consider Non-Celiac Gluten Sensitive (NCGS at least in the medical community apparently) a myth rather they diagnosis someone’s digestive problems with IBS of an unknown cause instead of admitting gluten is the trigger thus allowing them to avoid what is considered a mythical diagnosis to some in the medical community. By all means if  you have been given an IBS or SIBO diagnosis insist at the least on a gluten antibody test and you may save yourself many years’ of suffering before the doctor’s figure out that Gluten is the trigger then you have hope for recovery if you get the right disease. And I don't mean NCGS. Because even this too is confusing low stomach acid I believe with IBS, NCGS and even SIBO. See my posterboy blog post about why  I think this is. JMG aka Captain NCGS I referenced the Columbia University Medical Center (CUMC)  research on NCGS that I think proves your point and mine. here is the care2 article that I think summarizes it well. http://www.care2.com/causes/new-study-confirms-existence-of-non-celiac-gluten-sensitivity.html NCGS is on the "Celiac Spectrum". quoting dr. hyman from the huffpost 5+ years ago and still people seem them as different diseases (or at least deny the existence of the one over the other) http://www.huffingtonpost.com/dr-mark-hyman/gluten-what-you-dont-know_b_379089.html "When you get these tests, there are a few things to keep in mind. In light of the new research on the dangers of gluten sensitivity without full blown celiac disease, I consider any elevation of antibodies significant and worthy of a trial of gluten elimination. Many doctors consider elevated anti-gliadin antibodies in the absence of a positive intestinal biopsy showing damage to be “false positives.” That means the test looks positive but really isn’t significant. We can no longer say that. Positive is positive and, as with all illness, there is a continuum of disease, from mild gluten sensitivity to full-blown celiac disease. If your antibodies are elevated, you should go off gluten and test to see if it is leading to your health problems." and the columbia research bears this out. ironictruth you want to catch it at the NCGS stage before it becomes full blown (villi burned to the ground) Celiac disease. You are right to run from the burning house (antibodies) causing you a weak but "positive" diagnosis. This concept of the biopsy "proven" diagnosis is archaic at best and barbaric at worse in this age of serology proven diagnosis of NCGS before the villi burns to the ground so to speak. see this online article by dr. rodney ford that discusses why this is today. http://drrodneyford.com/extra/documents/236-no-gold-standard.html and he too (though in minority) is forward enough thinking to diagnose his patients with serology alone. Why would we use a standard 60+ years old when modern medicine can diagnose the disease much better and much, much sooner than what till there is stage 3 marsh lesions. The dgp test you had can diagnose it the intraepithelial lymphocytes (IEL)  stage. That is good news.  The villi are already smoking (using my analogy) of a burning house from antibodies attacking the body. Problem is and I mean this as a complement to SIBO girl and Captain NCGS (I was this in an article about the ZIKA outbreak patients talking how much more they (those affected by the disease) knew than their doctor's who where treating them at the time) we (us) have become doctor's without diplomas'. One of us each has become an expert at recognizing SIBO, NCGS and Pellagra. The question is which one is right??? Maybe we are all right by degrees. I believe NCGS can be confused for SIBO. But I also believe and the research confirms it in my mind that low stomach acid mimics many of the symptom's of both SIBO and NCGS. So that tells me there is still a disease not yet correctly identified. To me the disease that answer's the most questions in my mind is Pellagra. Ironictruth, Freneyja, JMG taking a b-complex can disprove or prove this theory. here is the full paper by Prousky. http://orthomolecular.org/library/jom/2001/articles/2001-v16n04-p225.shtml decide for yourself but people routinely get better in 3 months time of taking  niacinamide 2 to 3 times daily or a b-complex and niacinamide 3/day for 3 months. The dosage does not matter.  It is the frequency. And a month will be enough to see improvement (100 count bottle).  I used to recommend to my friends a 100 count bottle because it was the most common way to find either Niacin/Niacinamide or a b-complex but when I found out your body could store 3 months worth in the liver and my experience with b-2 (riboflavin) and angular cheilitis (look it up on google images if you don't know what it is) for years probably 5+ I could not get rid of it for nothing. And I took b-2 (for a 100 count round) once before but learned b-vitamins needed to be taken frequently for best effect. So I bought a 300 count bottle (3 months worth) and took them (b-2/riboflavin) 2 to 3 day and the angular cheiliitis (leaking lips, cracked fissures at the side of the mouth) and it was nice and crusty went away and they have never come back since. but this was after I took the B-3 Niacinamide for a couple months firsts then I was able to absorb the b-2 (riboflavin) now and I put this condition in remission (i did not say cure) because if I get low again it might come back but remission. The same thing happened to my GI problems associated with NCGS (serology positive celiac diagnosis) without a biopsy proven (thank God) diagnosis. And that is my story. I would suggest jmg, feeneyja and you too too ironictruth buy a b-complex and see if a couple three months regimen might help put your GI symptom's in remission. we already know from research 5+ years ago that b-vitamins help celiac's with their well being. https://www.celiac.com/articles/21783/1/B-Vitamins-Beneficial-for-Celiacs-on-Gluten-Free-Diet/Page1.html quoting "For 6 months, patients received daily doses of either a placebo, or of B vitamins in the amount of 0.8 mg folic acid, 0.5 mg cyanocobalamin and 3 mg pyridoxine." They summarize quoting "These improvements, the normalization of tHcy levels, together with the substantial increase in well-being, led the research team to conclude that people living gluten-free with long-term celiac disease do indeed benefit from daily supplemental doses of vitamin B, and that doctors should consider advising the use of B vitamins supplements for these patients." So I am just saying what the doctor's recommend when recommending Niacinamide for your GI problems that Pellagra could be mimicking (masking the true cause) hence the 58% of celiac also have pellagra (that a majority) of Celiac's also are known to have. I am not a doctor.  But You can be a professor though with a masters so while I do preach Pellagra as a co-morbid condition of NCGS/Celiac disease it is only because the doctor's with diploma's research bears this out. So I try and make more people aware of this fact. (no I do not have  a master's either though a friend once said who has a masters said my research would qualify me if I had taken the courses) (And yes I know B-3 was not studied in this paper) but maybe now is the time to point out it should bee! Or SIBO girl, and Captain NCGS you can try it (B-3) for yourselves and see if it helps you the way it did the Pellagra kid/posterboy. If you want to study this topic more I summarized many of thoughts in this posterboy post https://www.celiac.com/gluten-free/blogs/entry/2103-why-and-how-pellagra-is-often-confused-with-celiac-disease-andor-other-gidigestive-problems-the-science-of-pellagra-a-hidden-epidemic-in-the-21st-century-presentingrevealing-as-ncgs-andor-possbily-celiac-disease/ I wrote a blog post that also said "I had Celiac disease but developed Pellagra" but I really think it is the other way around. (it is linked in the above post) if you want to read it there so I won't post it again. I was a pellagrain who was diagnosed first as a celiac.  The same way a SIBO might first be diagnoses as a IBS or NCGS patient.  Or the way a NCGS is first diagnosed as a IBS patient 84% of the time. Remission is possible I believe if and when you find the right/correct disease. And any of these GI conditions can be confused for the other and SIBO girl and Captain NCGS makes good points. But it seems to me Pellagra can be confused for not only the SIBO, NCGS, but if the research is right 58% (the majority) of Celiac's and it is easily reversible in 3 months time. You will not know if you are not willing to try it. **** this is not medical advice just deep research and my own experience with taking Niacinamide. But I will say  I am not the only one who has been helped on this board taking Vitamin B-3. I want you Iroinctruth, Feeneyja, Jmg to be the next ones. I know this post is way too long as usual but I had a lot of ground to cover. quoting a friend 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included. posterboy by the grace of God,
    • After my crash and burn gluten challenge of 2016, I wander off yet again Into the land of eastern and alternative medicine to heal. While I am grateful to many (not all) western medicine  Dr s of the past , for the past 2 decades the ones who give me relief for my lifetime ails are the alternative/eastern practitioners. I'm not starting a debate as both branches have their strengths, often the shame is they are seperated in healthcare, for likely humanity and public health imo would be best served by their encouraged collaboration/mutual recognition,but alas not my problem to solve. Much bigger then me and quite frankly, I'm too busy healing to tackle that mountain. Regardless, I now have "shoes that fit my carpet bag " of decades of multiple misdiagnosis /undiagnosis collection. They can be combined and labeled celiac and fibromyalgia. I was shocked at first at the news, I consider those really serious. Is AWOL really that ill? I've read up more  on both disciplines descriptons etc for these conditions, I'm in shock for the "shoes" fit perfectly . I know based on western test results I'm far from textbook/ gold standard celiac (but I failed to get past day 6 of my gluten challenge -likely speaks for itself) and fibromyalgia is quite demeaned/dismissed from my past knowledge amongst the western medicine world and greater society. (Friends /family in western medical fields) Is this still the case? My lifetime gi issues, the 30 plus years multiple chemical sensitivities ( go back to childhood-I keep very close to the vest), 20 plus years symptoms of muscle issues / myalgia, now have the names of celiac & fibromyalgia. Mixture of feelings of relief to be recognized, but also knowing my named illnesses are likely not recognized or are minimised by my western medicine trained family and friends and greater society. Can anyone offer some encouragement to help me cope at this time of healing? My accupuncture visits have been truly helpful, but my last visit is giving me a lot to process chemically, biologically, and spiritually. It's like someone unleashed the flood gates of all the symptoms of both illnesses at once in a combined package for me to experience in a one transparent package.  Very enlightening and to be blunt I feel like crap. So it's time to accept the package names and all, the curtain was lifted and the waxing and waning symptoms of fibromyalgia we're released. Please share any positive support or stories you have on coping with celiac recovery, celiac/fibromyalgia, and  healing by accupuncture. It will be much appreciated. As it is abundantly clear AWOL is here to stay on the celiac.com forums. Thanks  
    • https://www.celiac.com/gluten-free/topic/116482-supplement-and-foods-you-take/ ^ I did this a while back where some of us have posted what we take and eat to get our nutrients. Mines changed a bit since then since I can not eat any grains, sugars or fruits.
    • I take 2 Slice of Life gummy multivitamins and drink 2 Ensure high protein per day. Both are gluten free.
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