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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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So I think i might have a problem with dairy that has developed. But I'm not sure if it is just getting glutened or dairy. If I am lactose intollerant am i susceptible to the same problems that I get with gluten? IE: Bone and joint pain, insomnia, emotioin dysregulatiion with dairy problems that I have with being glutened or would it only be digestive problems with dairy?

 

Thanks.

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I did not have any problems with dairy until I went gluten-free and started to heal. Now, I am slowly getting to the point where I can tolerate a small amount of dairy. But, if I over do it, I have almost the same symptoms as I do if I am accidentally glutened, except the headache. 

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All of my daughter's celiac tests came back negative. Finally, frustrated, the GI told her to give up milk and said it could be a lactose intolerance. Pretty quickly her symptoms started to clear up. They included pain in her stomach and guts every time she ate, she had severe insomnia problems, alternating D and C and more I am sure that I am forgetting. Enough to point at celiac. Now that she has been lactose free, her symptoms are cleared up with the exception of the pain she gets if she eats something she shouldn't without taking her pills.

 

I would say it is possible for a lactose intolerance to cause many of the problems celiac causes. It is also entirely possible that it is gluten. I would recommend reviewing everything you are eating if you are ever in doubt. Never ever forget that you need to read every label every time you purchase something. No matter how safe you think something is, it is possible that something changed and a product is no longer safe.

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I get the same symptoms when I eat dairy or gluten (obviously eaten in error not deliberately). So it can be difficult to pinpoint exactly what it is, unless you keep a food diary. I get severe stomach cramps, bloating etc. with both. Although usually, I don't get a migraine when I've eaten dairy, but I do with gluten. That's about the only difference I can think of right now. As with most things, the best way is a food journal making a note of everything that's eaten and write down any symptoms you have on any given day.

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I'm all for the food journal, I as well have an issue with dairy unfortunately. I started to notice it more frequently in the last few months. Knowing that I was being diligent about gluten, I started a food diary to pin point other foods. Surprise surprise...I refused to drink milk as a kid which has continued into adulthood. I love ice cream but it about kills me, has for years...hint hint, sheesh, you'd think I would've caught on quicker lol denial perhaps

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I would never have thought of that until you mentioned it, but I too hated milk as a child and it was a long, long time before I realised that I had a problem with dairy. It was my doctor who picked up on the point that being intolerant to dairy may be an indicator that I had Coeliacs disease, along with other symptoms of course.

I'm all for the food journal, I as well have an issue with dairy unfortunately. I started to notice it more frequently in the last few months. Knowing that I was being diligent about gluten, I started a food diary to pin point other foods. Surprise surprise...I refused to drink milk as a kid which has continued into adulthood. I love ice cream but it about kills me, has for years...hint hint, sheesh, you'd think I would've caught on quicker lol denial perhaps

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I strongly suspect anything beyond intestinal issues would be an issue with something else in dairy, whey, a casein, etc, rather than a lactose intolerance. Lactose intolerance, as far as I know, is a well-defined issue with not being able to digest lactose. If you want to test what aspect of dairy, (if you still think it's dairy which it could very well be, I think I have non-gut dairy symptoms,) try lactose-free milk and see if you still get the symptoms. You could also try a product that has whey in it. If both are fine, then you probably have an issue with a casein. Once you figure that out, you might still be fine with goat dairy. I believe all dairies have all/most of the same proteins, but in vastly different quantities.  

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Thank you everyone for your replies. Sorry for takinig so long to get back to your responses. I am working way too much right now and am just exhausted when i get home. I hate the idea of having to give up dairy, but I think I am goinig to have to get up the motivation to try it, but after I eat the cheese and drink the milk in my fridge. Ugh, I hate food issues.

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