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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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mjr6

Don't Go To Boston Pizza

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I tried Boston Pizza's GlutenWise pasta last night and it was awful. It was plain terrible corn pasta with a very tiny amount of awful tomato sauce and a ratty piece of dried chicken breast and the price was 20 bucks which was ridiculous. The pizza is not very good either The crust isn't bad but it is only 8 inches and they really cheap out on toppings and cheese, which they don't do for regular customers. I would not recommend Boston Pizza to any celiac.

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I tried Boston Pizza's GlutenWise pasta last night and it was awful. It was plain terrible corn pasta with a very tiny amount of awful tomato sauce and a ratty piece of dried chicken breast and the price was 20 bucks which was ridiculous. The pizza is not very good either The crust isn't bad but it is only 8 inches and they really cheap out on toppings and cheese, which they don't do for regular customers. I would not recommend Boston Pizza to any celiac.

 

Hi Mjr6

Hope that your Wednesday is going well. 

After seeing this note this morning, I wanted to send a quick message. I work on the marketing team at Boston Pizza and we'd love to help look into your feedback further.

We're quite proud of our offering of GlutenWise options for our Guests and we've had great feedback from the Celiac community. It's something that we've devoted a significant amount of time into developing and have relied on members of the Celiac community for feedback and input along the way. Additionally, we take customer service and food quality extremely seriously so if there's ever an instance where our standards aren't exceeded then we want to help look into things. 

At this time, we'd like to involve some additional members of our team to look into your specific visit . Can you please email me (campbelld@bostonpizza.com) any additional details (ie. location, any additional order info, etc) and your direct contact details?

Hopefully we can win back your confidence. Look forward to hearing from you,

Drew

-on behalf of Boston Pizza

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When I first went gluten-free I went out to BP with friends, excited that I could eat pizza. Alas, my pizza ending up with a chunk of chicken covered in bbq sauce from another pizza. I was stupid and ate around it. (I actually liked the pizza, I think they used o'doughs crust?)

If a restaurant can't handle super obvious cross contamination, then I wouldn't expect it to handle the sublety of a dusting of flour.

That's not so much a BP problem though, but is a problem of special concern with any restaurant chain...dare I say any restaurant. Places like BP are a revolving door of workers who don't care about their job or the potential consequences.

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Went to BP once for pizza with my gluten intolerant sister for pizza. That was the last time, I am afraid. It is not worth getting sick over.

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Hi Mjr6

Hope that your Wednesday is going well. 

After seeing this note this morning, I wanted to send a quick message. I work on the marketing team at Boston Pizza and we'd love to help look into your feedback further.

We're quite proud of our offering of GlutenWise options for our Guests and we've had great feedback from the Celiac community. It's something that we've devoted a significant amount of time into developing and have relied on members of the Celiac community for feedback and input along the way. Additionally, we take customer service and food quality extremely seriously so if there's ever an instance where our standards aren't exceeded then we want to help look into things. 

At this time, we'd like to involve some additional members of our team to look into your specific visit . Can you please email me (campbelld@bostonpizza.com) any additional details (ie. location, any additional order info, etc) and your direct contact details?

Hopefully we can win back your confidence. Look forward to hearing from you,

Drew

-on behalf of Boston Pizza

Hi Drew, 

I am not sure what else to tell you. I have talked with the local manager - and while you say that the Celiac community has given great feedback, the local manager has said that many celiac customers are very disappointed with the pizza and pasta. I don't want to talk to any more people in marketing because they don't listen. They act like I am the only one who does not like the product which basically implies I am a liar when I say I am not. Most people don't complain, they just never go back. If you are so proud of your GlutenWise options, how many times (specifically) have you eaten it with your family and friends? I find marketing people talk about things that they have not actually experienced.  If you look at the regular menu and all the choices that regular customers can choose from and then compared that to the GlutenWise Menu, would you honestly say that Boston Pizza has made dining out for celiacs a priority? If you honestly think that, the conversation can't go any further. There are too many other restaurants that are actually trying. The only reason I even went to BPs was because I won a gift certificate. If I win another I will give it away. 

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    • I am sorry that I was not clear.    I only mentioned  your diagnostic background, not to discredit you, but because without any lab results (other than a positive gene test), how can you be sure that gluten (shampoo containing wheat protein) was the actual culprit (not a guess) of your symptoms?  It is common for celiacs to receive follow-up antibodies to monitor their dietary compliance.  This is not perfect, but it is the only tool in the toolbox for now.   My husband has been gluten free 12 years prior to my diagnosis.  He went gluten free per the poor advice of his GP and my allergist.  So, I am not trying to discount your diagnosis at all.  I am just trying to see if other lab tests (e.g. liver tests that were elevated previously for you when you were still consuming gluten) were measured after your shampoo exposure.   I am curious because I have had issues over the last year.  I was glutened last January, had the flu, a tooth infection, a cold and a tooth extraction, three rounds of antibiotics (verified to be gluten free) within a month or so.  Like, you, I am very careful.  I have no idea as to how I was exposed.   The last time I ate out was a year ago and even then it was at at 100% gluten free restaurant.   My hubby did not have any symptoms at this time.  He is like my canary.    I went to my GI and my DGP IgA was off the charts even some three months later.   My celiac-related symptoms diminished in three months, but I struggled with autoimmune hives for six.  My GI offered to do an endoscopy in the summer.  Instead I chose to follow the Fasano diet.  I still was not feeling well.  In December, my antibodies were 80.  They were either on a decline or they were increasing again.  I opted for the endoscopy.  My biopsies revealed a healed small intestine (you could see the villi on the scope too).  But I was diagnosed with chronic gastritis and had a polyp removed.   So, all this time I thought my celiac disease was active, but it was NOT the source of my current gut issues.   Again, my apologies.  I just wanted to know how you know for SURE that hydrologized wheat protein from someone else’s shampoo and conditioner could reach your small intestine to trigger an autoimmune reaction.  Maybe, like me, Gluten was not the actual culprit.    
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