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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

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So I have now been off of gluten for 10 months and 8 months ago I had to get off of corn,soy, dairy.  That said my diet has been pretty much chicken, vegetables, and 2 fruits (apple and banana).  I also became salicylate sensitive which made eating anything else impossible.  As of last week I am not tolerating grains.  My belly started getting distended in October with certain foods but now it's distended with anything I eat.  I still have daily headaches/migraines.  I am on pain meds around the clock, anti inflammatory injections and muscle injections at night due to the horrific pain in my head.  I now notice if I eat grains my muscles and bones hurt to the point I don't want to get out of bed and the fatigue is atrocious.  Also grains have started making my mind feel crazy.  It sounds so weird but it's the truth.  It's hard to explain but  there is a direct relation with my intestine, grains, and my mind.  My pain management doctor does not believe this is the cause of any of my problems.  Although out of the 25 or so symptoms I had before going gluten free have resolved, I still have a few, all neurological.  WHen I go to the ER, Tordol shot is what takes away the pain, it's an anti inflammatory medicine.  My doctor started me on Cymbalta this week and I felt like I was on serious drugs and could not function.  I literally could not drive on the 4th day.  Will this end?  Why does it seem I am not going up hill?  I have only drank water and coffee for 10 months also. My biopsy showed nothing and blood test negative for Celiac disease although he only took 2 samples.  But it wasn't until I got off of gluten that I started to get better, bed ridden for 1 year and near death, really.  So why the grains all of a sudden? I just don't understand.  Thank you for any input!

 

 

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Drop coffee if you haven't so far. It can irritate a healing gut.

Thanks did not know that.  With insomnia the last 6 months, I've been drinking about 3 pots to help me going through the day.

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When you start reacting to more and more foods it is often a sign of leaky gut syndrome.  This means that the membrane that lets digested food into the blood stream is not working properly and is letting partially digested food through.  Your autoimmune system reacts to this partially digested food as being "non-self" and creates antibodies toward it, and there is another food you are reacting to.  This is usually not a permanent loss, but healing the gut is key.  I don't know what supplements you are taking, but if you are not already doing so I wold recommend a regime of probiotics, digestive enzymes and L-glutamine (to restore the good flora in your gut, supplement the enzymes your pancreas is producing to improve your digestion, and heal the gut). 

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When you start reacting to more and more foods it is often a sign of leaky gut syndrome.  This means that the membrane that lets digested food into the blood stream is not working properly and is letting partially digested food through.  Your autoimmune system reacts to this partially digested food as being "non-self"  and creates antibodies toward it, and there is another food you are reacting to.  This is usually not a permanent loss, but healing the gut is key.  I don't know what supplements you are taking, but if you are not already doing so I wold recommend a regime of probiotics, digestive enzymes and L-glutamine (to restore the good flora in your gut, supplement the enzymes your pancreas is producing to improve your digestion, and heal the gut). 

Yes the Naturopath that I saw did say I had leaky gut back in June.  I just started being able to tolerate probiotics 4 weeks ago.  I have been on Verdezyme for a couple of months and I used to take L-glutamine per Naturopath but I quit a while back because he said it was healed by now.  I'll start it again. Thank You!

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