• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:

    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:

       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

How Do You Know What's Working With Silent Symptoms?

Rate this topic

Recommended Posts

So I'm a bit confused. I feel a bit put off by my doctor when I take his advice and contrast it with reading of a lot of the testimonies on this forum. He tells me to go strictly non-gluten for 6 months. I am fine with that. I'm well into my 4th week. I still have symptoms here and there so it's frustrating, but I am working on it and wiping out potential cross contamination with the more I learn.


Yet if you have silent symptoms (as I am reading so many do) how do you know when other food items are impacting you? Gluten has hit me hard all my life but I really didn't know it. I don't violently throw up and I only recently just starting getting bad fatigue and nausea. I felt bad before but could not pin it down on anything until after another surgery. I feel for others greatly impacted by these ailments.


I asked about other tests and my doctor said that I didn't need them at this time. That's fine, but should I get a second opinion? I don't want to waste time not healing if I have other issues. I've already cut out dairy as a personal choice.


Would I know if I have a problem with soy, corn or any other grains? Sorry if this is confusing... because it confuses me.



Share this post

Link to post
Share on other sites
Ads by Google:
Ads by Google:

I am a little confused.  If you have fatigue and nausea those could be indications of taking in gluten for you.  If you have it all of the time now, you may be experiencing withdrawal symptoms or continuous mistakes.  I hope you do feel some symptoms when glutened so that you will be able to catch your mistakes.  Also, as you recover, your body, hopefully, will be able to complain even louder. 


Other foods can cause a similar reaction for some people.  I knew of some of my problems before I went gluten free.  Keep a written food diary, or at least a mental diary and try to pinpoint causes for any extra symptoms that show up.  IF you are very concerned you may want to look into a rotational diet.  You can plan out your meals a couple of months and follow it.  This could help you to realize which foods could give you issues.  With a rotational diet you eat from different food families for each day of 4 days.  You don't repeat foods more frequently then that.  If you are interested in this, many places on the internet give examples.


I hope this helps.


Share this post

Link to post
Share on other sites

One month gluten free is a bit early to start suspecting other intolerances; you are barely beyond gluten withdrawal.  Stay the course for a good three months and then you have a better chance of seeing a pattern to your reactions if you are still having them, and a food and symptom diary would be helpful.  In the beginning symptoms and reactions tend to be a bit up and down, and you are still refining your gluten free techniques. :)

Share this post

Link to post
Share on other sites

Thanks! I appreciate it. 


I'm looking into the rotational diet now.


So you would suggest that I only give up gluten during these three months and stay the course with other items? 

Share this post

Link to post
Share on other sites

I think it is a good idea that you have eliminated dairy to start with because its digestion is affected by the damage done by gluten in the small intestine. 


When people say they are silent celiacs, some of them mean that they do have absolutely no symptoms.  Others recognize that they have been having symptoms which they always thought were 'normal' until they no longer have them.  Most can identify at least something that improves with the removal of gluten (besides the damage to the small intestine, that is). 


It is important while you potentially have what is known as leaky gut that you do not eat the same thing over and over, because leaky guts allow partially digested foods into the blood stream and then your body can start making antibodies to them too.  This is why a rotational diet is often recommended.  Rather than being obsessive about it to start with (life is hard enough learning the diet) I would strive for as much variety of food as you can.  Now that you have given up gluten you can experiment with some of those vegetables from the produce section that you never quite knew what to do with -- a quick google with its name and gluten free recipe will give you ideas on how to prepare it.   You will find new favorite foods in the process.


You may or may not develop additional intolerances.  This is not the time to go looking for them!  It is time to learn the diet and explore new foods.  Try not to use too many gluten substitute processed foods which will contain grains you will not be used to digesting and often contain more fats and sugar than their gluten counterparts.  Have fun experimenting with your cooking.  You will need some gluten free pasta, bread, and baking mix.  I usually recommend Tinkyada, Udi's and Pamela's for beginners.  And you can expand your repetoire from there.


I would not eliminate corn or soy right off the bat, unless it starts becoming obvious that they are a problem.  I would hold off on oats for now, even certified gluten free oats, because some celiacs are known not to tolerate them either.  After about three months it should be pretty obvious if  you have additional intolerances and that's where the food and symptom diary come in.  :)   This is just my suggested timeline.

Share this post

Link to post
Share on other sites
Ads by Google:

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now


  • Member Statistics

    • Total Members
    • Most Online

    Newest Member
    Graham B
  • Popular Now

  • Topics

  • Posts

    • Hello!  When I find myself up at odd hours, I put on this celiac disease Mozart for Meditation... https://www.amazon.com/gp/aw/d/B000VFQ58U/ref=mp_s_a_1_1?ie=UTF8&qid=1516086445&sr=8-1&pi=SX350_PI_PJPrime-Sash-Extra-Large-2017,TopLeft,0,0_AC_SX118_SY170_QL70&keywords=mozart+for+meditation+celiac disease And I get out my dot to dot book, like one of these for adults.... https://www.amazon.com/gp/aw/s/ref=is_s_ss_i_0_5?k=dot+to+dot+books+for+adults&sprefix=dot+t&crid=2B42N4PRIT56H Sometimes I knit mindless objects such as hats, washcloths or socks.  Knitting has a soothing rhythm to it and is easy to learn... Or I read a book about knitting and life... https://www.amazon.com/gp/aw/d/1603420622/ref=mp_s_a_1_2?ie=UTF8&qid=1516087016&sr=8-2&pi=AC_SX236_SY340_FMwebp_QL65&keywords=McPhee+knitting&dpPl=1&dpID=51fHYy2xXsL&ref=plSrch Or a knitting mystery.... https://www.amazon.com/gp/aw/d/B001LRLJUG/ref=mp_s_a_1_6?ie=UTF8&qid=1516087587&sr=8-6&pi=AC_SX236_SY340_FMwebp_QL65&keywords=knitting+mysteries&dpPl=1&dpID=51z43F8UuuL&ref=plSrch Knitting is really easy to learn.  I find it soothing to work with natural fibers, organic cotton for washcloths or luscious alpaca for socks...  But I find it inadvisable to shop online in the wee hours...  😸 I've got way too much yarn now...hee hee hee...  besides, the light from electronic devices keeps your brain awake longer.... Hope this helps.... Knitty Kitty  
    • My only symptom was slight nausea. Lasted 6 months before it started to only happen if I ate too much food in a sitting. I would eat simple, bland foods and eat 6 small meals instead of three big ones.
    • I've lost some of my sense of taste due most likely to zinc deficiency from not eating beef for a couple of years. Zinc supplement doesn't seem to help, but eating .5 to 1 lb of beef per day definitely does help. I noticed a positive change within days of eating beef. I don't know if your diet includes beef, but if it doesn't there's a reason for you.   Zinc and Geographic Tongue
    • I was in your same boat when I was diagnosed. Terribly fearful of cancer and all the damage I unknowingly had done. I don’t cheat, but I’m not as good as I need to be at restaurants (I only order off gluten-free menus but I don’t talk to managers like I should, etc) and I eat out once a week with never having symptoms. My main symptom is absolute, complete brain fog. I am truly not the person I used to be. I’ve always had anxiety, so that wasn’t any worse, but I hate to say this about myself but i got “dumb”. It was my first week in nursing school when I was diagnosed. What a great time, huh? I had to stay at school until midnight-2am 4 nights a week just to try to focus and control this brain fog. I used to be smart, quick witted, and very present in the moment. I know life changes, but my life is busy yet very peaceful and I struggle with this daily. I can’t comprehend medical concepts quickly like before and it’s very depressing. I also have a pretty good diet but have weighed 165 (I’m 5’4”) for three years with doing cardio, training for marathons,  etc..nothing gets this weight off (have had thyroid issues since age 7). Anyways. You are not alone. My doctor diagnosed me 5 years ago and told me to stay gluten free and I never saw him again! No follow-ups... I had no clue I had to! Anyways, I have an appointment upcoming as well.  Best of luck to you ❤️
  • Upcoming Events