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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Tests Negative Every Time.
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3 posts in this topic

I have every typical symptom and have been to the doctor quiet a few times to be tested. They have only done bloodwork on me. Is that the normal way of testing? 

Is there anything else I can do besides cutting out gluten from my diet and daily life to help these symptoms subside? Thank you!

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For every person who tests positive for celiac disease there are potentially six or seven others who have the same symptoms but test negative, currently termed non-celiac gluten intolerant because they haven't derived any other name for them (the medical profession only recognized the condition last year!).  You may well be one of them, and apart from eliminating gluten and feeling better, there is nothing else you can do.  Doctors will generally not perform the confirmatory biopsy with negative blood results and the odds that you would test negative on biopsy are pretty high.

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I have every typical symptom and have been to the doctor quiet a few times to be tested. They have only done bloodwork on me. Is that the normal way of testing? 

Is there anything else I can do besides cutting out gluten from my diet and daily life to help these symptoms subside? Thank you!

Yes, blood work is usually the first step. For most people that works out (but not all) just make sure they ran all (or most) celiac blood tests (DGP IgA and IgG, tTG IGA and IgG, EMA IgA, total serum IgA controltest, and possibly the older AGA IgA and IgG ).

 

Some celiacs are also lactose intolerant. That can make the same, or very similar symptoms to, gluten intolerances. Perhaps try dropping dairy for a while along with the gluten.

 

Some people are left with nutritional deficiencies too. You might want to have your D calcium, B's, iron, ferritin, and potassium checked; anemia is common too.

 

As for healing, probiotics can be helpful. Avoiding processed foods is good. L-glutamine helps with muscle (intestinal) repair and could hgelp you feel better faster.

 

Good luck!  :)

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