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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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erac6329

How Long For Symptons To Go Away After Starting gluten-free Diet

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I started having medical issues in Aug 2012.  I started out itching all over my body.  My face itches really bad and I get little red bumps around my chin, forehead and cheeks.  I've always had bowel/intestine issues and that seemed to get worst (feeling bloated, painful bowels).  I've been constipated for the last 17yrs.  I started getting really bad heart burn which I've never really had before.  My stomach ached for no reason.  I went to my primary doctor and she checked me out and ordered blood test.  Everything came back normal.  She suggested that I take over the counter medicine for the heartburn and itching.  I went to a dermatologist to see if she could figure out why I was itching all over.  She gave me a steroid shot and a prescription cream to help with the itching.  I went to Allergist to see if she could find anything.  Nothing.  She suggested that I take over the counter Allergy medicine.  I tried all the OTC allergy medicines and they all made me sleepy all day so I stopped taking them.  I started using Bragg's ACV.  It helped with the heartburn but the itching would not go away. 

 

I kept searching on the Internet for possible causes of the itching because that was bothering me the most.  I ran into an article about Wheat and the harm and can do to your body.  I asked my doctor for a test to see if I have Gluten sensitivity and the test came back negative.  I'm not sure which test she requested but I decided to start a Gluten-Free diet anyway.  I started the Gluten-Free diet on 4/9/2013.  The only diary I consume is cheese.  I still eat sweets (fruit, candy, and honey), white rice and potatoes and I've lost 4lbs in two weeks.  I'm still learning what I can and can't eat.  I bought some Gluten-Free cookies, crackers and chips for my kids but I've also been eating them.  I've learn just recently that I probably shouldn’t eat these items just yet.  The itching has decreased but not completely gone away.  The bumps on my face have disappeared until I eat something that contains Gluten.  I went to a birthday party a week after I started the gluten-free diet and ate a piece of cake.  The next morning my stomach was aching really badly and I itched all over for an entire week.  I still have constipation.  I have 4yr old twins and my daughter has been itching since September/October 2012 so I think she may have the same sensitivity.  It seems like an ingredient was changed in something because I don't recall the itching before then.  My son does not have the itching symptoms.

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Try not to eat processed food for a while if you can. As far as eating goes just pretend it's 1930 and you should be ok. I even suggest using lard or butter rather than modern oils, everything was better in the old days

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That steroid shot, and if it was a steroid cream...

May be why you tested negative on Celiac tests. Steroids are a contradiction to testing...they are used to send celiac into remission.

I haven't ever seen a firm timeline on steroid use and testing problems...if you use them within 3 months of testing? Maybe it's 1...who knows.

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I started having medical issues in Aug 2012.  I started out itching all over my body.  My face itches really bad and I get little red bumps around my chin, forehead and cheeks.  I've always had bowel/intestine issues and that seemed to get worst (feeling bloated, painful bowels).  I've been constipated for the last 17yrs.  I started getting really bad heart burn which I've never really had before.  My stomach ached for no reason.  I went to my primary doctor and she checked me out and ordered blood test.  Everything came back normal.  She suggested that I take over the counter medicine for the heartburn and itching.  I went to a dermatologist to see if she could figure out why I was itching all over.  She gave me a steroid shot and a prescription cream to help with the itching.  I went to Allergist to see if she could find anything.  Nothing.  She suggested that I take over the counter Allergy medicine.  I tried all the OTC allergy medicines and they all made me sleepy all day so I stopped taking them.  I started using Bragg's ACV.  It helped with the heartburn but the itching would not go away. 

 

I kept searching on the Internet for possible causes of the itching because that was bothering me the most.  I ran into an article about Wheat and the harm and can do to your body.  I asked my doctor for a test to see if I have Gluten sensitivity and the test came back negative.  I'm not sure which test she requested but I decided to start a Gluten-Free diet anyway.  I started the Gluten-Free diet on 4/9/2013.  The only diary I consume is cheese.  I still eat sweets (fruit, candy, and honey), white rice and potatoes and I've lost 4lbs in two weeks.  I'm still learning what I can and can't eat.  I bought some Gluten-Free cookies, crackers and chips for my kids but I've also been eating them.  I've learn just recently that I probably shouldn’t eat these items just yet.  The itching has decreased but not completely gone away.  The bumps on my face have disappeared until I eat something that contains Gluten.  I went to a birthday party a week after I started the gluten-free diet and ate a piece of cake.  The next morning my stomach was aching really badly and I itched all over for an entire week.  I still have constipation.  I have 4yr old twins and my daughter has been itching since September/October 2012 so I think she may have the same sensitivity.  It seems like an ingredient was changed in something because I don't recall the itching before then.  My son does not have the itching symptoms.

hi there i have the exact same things and feelings as u i was on stomach tablets for acid stopped them 6 days ago to see my my stomach would break up my food more... i started getting stinging in the intestines and find it very hard to pass as my poo is rock hard and big i have pins and needles in my hands the last 6 weeks i started a gluten free diet 8 days now have a feeling im letting gluten in some way buy im very strict on my diet very plain diet gluten free bread with ham dinner i have chicken or salmon and breakfast i have porrage wheat and gluten free oat free organic stiff im on my oins and needes go from my hands to my lips and up my arms goes to my legs as well any ideas?? im 8 days clean of wheat now 

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    • I know-pretty dumb. I'm usually very careful. I didn't check into it. Thanks for reply. DebLee
    • LexieA, This thread might help you. You say you never have "heartburn/GERD". You can have something called Silent Reflux. It  could also be NERD. some of these links are in this thread but I will post some releavent information in this reply as well. here is a good overview of the difference in this fox news article. http://www.foxnews.com/health/2012/11/13/gerd-or-nerd-new-type-acid-reflux-doesnt-respond-to-drugs.html but if your throwing up it is probably from Bile Relfux. . . . instead of acid reflux. I actually wrote a blog post on celiac.com about these conditions. the NYTimes article called Bile Reflux a "Shadowland" in Medicine and part of the reason for the title of the post. here is the NYtimes article about some of the issues you are describing. http://www.nytimes.com/2009/06/30/health/30brod.html throwing up is actually a protective reaction. and this normally protect us from poison's or food poisioning etc. but when our biofeedack loop is broken down like having bile in the stomach instead of the small intestine . . . it can be hard to break this cycle. The green portion is probably the bile portion. It is actually very caustic as Plumbago pointed out.  this would/coul scald our insides (lower GI/Small Intestines). Normally stomach acid is neutralized by bile after it leaves the stomach . .. not while in the stomach. I wouldn't never recommend anybody do this on purpose . .. but if you are already puking your food up then simply buy a pH test kit. testing your food/chyme/puke (food outside the body) you will quickly get an idea of how acidic/basic your food chyme (digested food) is. It will almost be a pH of 4.0 or more. the paleo nurse explains this well why strong stomach acid is important to your health. http://thepaleonurse.com/the-truth-about-stomach-acid-why-low-stomach-acid-is-jeopardizing-your-health/ quoting the paleonurse. "In the infinite wisdom of the human body, the stomach was designed to produce the acid that is necessary for proper digestion of food.  When functioning properly, the parietal cells of the stomach secrete hydrochloric acid that bring the stomach pH to a range of approximately 1.5 to 3.0" if it is a higher pH than this you can benefit from taking BetaineHCL to restore your stomach acid to more natural level. . . especially if you are not already taking PPI's since a proton pump inhibitor is lowering stomach acid. .. . by their very ability to cut off almost all stomach acid production. **** this is not medical advice I only know taking powdered stomach acid (BetaineHCL capsules)  helped me. I was not barfing my meals though. . . so your experience my be different. Maybe Ennis_tx will comment because he has some of the same symptom's/issues. But if I was puking I think I would be curios to know what my pH really is? And not Assume? anything at this point. If you test your stomach pH with easy to buy pH strips you will know whether it really is high pH (low stomach acid or a little stomach acid as your describe it) or low pH (really high stomach aid) that is causing the issue's. Once you know for sure you  will know who to go about correcting it. Supplementing with BetaineHCL is fairly harmless . . .unless you have an ulcer. And you will/would probably know it instantly if you take some BetaineHCL and it feels like someone is putting out a cigarette in the middle of your stomach.  It is acid burning your sore/ulcer. thankfully eating protein/food quickly neutralizes/raises stomach acid especially when taken with a glass of water. staying hydrated with a meal also helps improve digestion so be sure to take some water/drink like a tea or juice etc. for example if you want to the BetaineHCL to work properly. Milk has the opposite effect.  If you feel a burning milk can coat the lining of your stomach helping to erase/ease the effect of strong acid. And why people who eat hot **** five alarm peppers aka known as Hot heads keep milk close by if they need to dampen the fire in their stomachs from eating too many peppers. . . . and drinking water can aggravate this practice of eating the hottest peppers you can find. I hope this is helpful. I have rambled on long enough. be sure to read the sickboy user in the medhelp thread of how he helped his GERD/bile reflux. here is medhelp link for easy reference included in the "silent reflux" thread if you haven't read it yet. https://www.medhelp.org/posts/Gastroenterology/UNCONTROLLABLE-BILE-REFLUX-PLEASE-HELP/show/738242?page=1 he was suffering for 5 years and got better so don't lose hope. It can seem very daunting but people on this board do get better. we have used different methods but people do get better. again this is not medical advice just things that have helped me. good luck on your continued journey but it is not a long way back if you know the way. 2 Corinthians (KJV) 1:3,4 3) “Blessed be God, even the Father of our Lord Jesus Christ, the Father of mercies, and the God of all comfort; 4) who comforteth us in all our tribulation, that we may be able to comfort them (sufferer still suffering)   which are in any trouble, by the comfort wherewith we ourselves are comforted of God.” posterboy by the grace of God,    
    • LOL sorry but really? You trust that, dominos, papa johns, and pizza hut ALL say they can not 100% guarantee their gluten-free pizza are celiac safe. THEY USE the same prep areas, same ingredient bins, same ovens and in many cases the same cutters and spoons used to spread the sauces and cut the pizza. I doubt the employees would even bother changing gloves between pizzas during rush.   Seriously if you want a gluten free pizza....gut a premade one in the freezer section from UDI, Dayia, RealGoodPizza or a crust from cappellos or califlower foods and make your own....Here please save yourself here is a list. BTW Pizza hut uses UDI crust and just tops them with their sauce etc....CCing in most cases and delivering them. Also the REAL good pizza will mail you cases of their pizzas fully made. Califlour foods and capello will mail you empty crust by the case. SO you can order them if  local stores do not carry them.


      http://udisglutenfree.com/product-category/pizza-crust/
      https://daiyafoods.com/
      http://iansnaturalfoods.com/products/gluten-free-cheesy-french-bread-pizza/
      https://www.geefree.com/collections/all/products/cheese-pizza-pocketshttps://cappellos.com/collections/pizza
      *^Grain Free Pizza crust to make your own with using eggs, coconut and arrowroot for a base crust blend. The Naked pizza crust is dairy free. Order frozen by the case and they ship them to you.
      https://realgoodfoods.com/productpage/
      *^Grain Free Pizza They use Dairy Cheese blended with chicken breast to form personal pizza crust. You can order them frozen and shipped to you. NEW PRODUCTS they do Enchiladas NOW
      https://www.califlourfoods.com/collections
      *^ This is the only one I buy, grain free, low carb crust, and the plant based one is great, NOTE these make a New york style flat crust, I use 15 min prebake before adding toppings to make them extra crispy
      http://glutenfreedelights.com/our-sandwiches/
      ^Gluten free hot pockets? YES they make them for when you need the old instant hotpocket, odd craving but I know they hit sometimes.
      CRUST MIXES Grain free
      https://www.simplemills.com/collections/all/products/almond-flour-pizza-crust-mix
      https://julianbakery.com/product/paleo-pizza-crust-mix-gluten-grain-free/
    • My MRI has been clear. They did a spinal tap back in May which was also good.  MS ruled out many times. All my symptoms match Gluten Ataxia, but I don't know for sure since I don't have a dx. However, I DO have Hashimotos so at least going Gluten Free is necessary for that. I go to my Rheumatologist on Jan. 30th, 2018. Can a Rheumatologist determine Gluten Ataxia? If so how long should I be back on Gluten for testing?  Thanks for the heads up on Free and Clear products. I will look into that.
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