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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

How Long For Symptons To Go Away After Starting gluten-free Diet
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I started having medical issues in Aug 2012.  I started out itching all over my body.  My face itches really bad and I get little red bumps around my chin, forehead and cheeks.  I've always had bowel/intestine issues and that seemed to get worst (feeling bloated, painful bowels).  I've been constipated for the last 17yrs.  I started getting really bad heart burn which I've never really had before.  My stomach ached for no reason.  I went to my primary doctor and she checked me out and ordered blood test.  Everything came back normal.  She suggested that I take over the counter medicine for the heartburn and itching.  I went to a dermatologist to see if she could figure out why I was itching all over.  She gave me a steroid shot and a prescription cream to help with the itching.  I went to Allergist to see if she could find anything.  Nothing.  She suggested that I take over the counter Allergy medicine.  I tried all the OTC allergy medicines and they all made me sleepy all day so I stopped taking them.  I started using Bragg's ACV.  It helped with the heartburn but the itching would not go away. 

 

I kept searching on the Internet for possible causes of the itching because that was bothering me the most.  I ran into an article about Wheat and the harm and can do to your body.  I asked my doctor for a test to see if I have Gluten sensitivity and the test came back negative.  I'm not sure which test she requested but I decided to start a Gluten-Free diet anyway.  I started the Gluten-Free diet on 4/9/2013.  The only diary I consume is cheese.  I still eat sweets (fruit, candy, and honey), white rice and potatoes and I've lost 4lbs in two weeks.  I'm still learning what I can and can't eat.  I bought some Gluten-Free cookies, crackers and chips for my kids but I've also been eating them.  I've learn just recently that I probably shouldn’t eat these items just yet.  The itching has decreased but not completely gone away.  The bumps on my face have disappeared until I eat something that contains Gluten.  I went to a birthday party a week after I started the gluten-free diet and ate a piece of cake.  The next morning my stomach was aching really badly and I itched all over for an entire week.  I still have constipation.  I have 4yr old twins and my daughter has been itching since September/October 2012 so I think she may have the same sensitivity.  It seems like an ingredient was changed in something because I don't recall the itching before then.  My son does not have the itching symptoms.

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Try not to eat processed food for a while if you can. As far as eating goes just pretend it's 1930 and you should be ok. I even suggest using lard or butter rather than modern oils, everything was better in the old days

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That steroid shot, and if it was a steroid cream...

May be why you tested negative on Celiac tests. Steroids are a contradiction to testing...they are used to send celiac into remission.

I haven't ever seen a firm timeline on steroid use and testing problems...if you use them within 3 months of testing? Maybe it's 1...who knows.

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I started having medical issues in Aug 2012.  I started out itching all over my body.  My face itches really bad and I get little red bumps around my chin, forehead and cheeks.  I've always had bowel/intestine issues and that seemed to get worst (feeling bloated, painful bowels).  I've been constipated for the last 17yrs.  I started getting really bad heart burn which I've never really had before.  My stomach ached for no reason.  I went to my primary doctor and she checked me out and ordered blood test.  Everything came back normal.  She suggested that I take over the counter medicine for the heartburn and itching.  I went to a dermatologist to see if she could figure out why I was itching all over.  She gave me a steroid shot and a prescription cream to help with the itching.  I went to Allergist to see if she could find anything.  Nothing.  She suggested that I take over the counter Allergy medicine.  I tried all the OTC allergy medicines and they all made me sleepy all day so I stopped taking them.  I started using Bragg's ACV.  It helped with the heartburn but the itching would not go away. 

 

I kept searching on the Internet for possible causes of the itching because that was bothering me the most.  I ran into an article about Wheat and the harm and can do to your body.  I asked my doctor for a test to see if I have Gluten sensitivity and the test came back negative.  I'm not sure which test she requested but I decided to start a Gluten-Free diet anyway.  I started the Gluten-Free diet on 4/9/2013.  The only diary I consume is cheese.  I still eat sweets (fruit, candy, and honey), white rice and potatoes and I've lost 4lbs in two weeks.  I'm still learning what I can and can't eat.  I bought some Gluten-Free cookies, crackers and chips for my kids but I've also been eating them.  I've learn just recently that I probably shouldn’t eat these items just yet.  The itching has decreased but not completely gone away.  The bumps on my face have disappeared until I eat something that contains Gluten.  I went to a birthday party a week after I started the gluten-free diet and ate a piece of cake.  The next morning my stomach was aching really badly and I itched all over for an entire week.  I still have constipation.  I have 4yr old twins and my daughter has been itching since September/October 2012 so I think she may have the same sensitivity.  It seems like an ingredient was changed in something because I don't recall the itching before then.  My son does not have the itching symptoms.

hi there i have the exact same things and feelings as u i was on stomach tablets for acid stopped them 6 days ago to see my my stomach would break up my food more... i started getting stinging in the intestines and find it very hard to pass as my poo is rock hard and big i have pins and needles in my hands the last 6 weeks i started a gluten free diet 8 days now have a feeling im letting gluten in some way buy im very strict on my diet very plain diet gluten free bread with ham dinner i have chicken or salmon and breakfast i have porrage wheat and gluten free oat free organic stiff im on my oins and needes go from my hands to my lips and up my arms goes to my legs as well any ideas?? im 8 days clean of wheat now 

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    • Does he run a lot? On hard ground? My ferritin started at 74 and is now 20. My rbc count was normal but showed mild anemia after an 18 hour fast.   I initially also thought it might be due to malabsorption, and it may be, although my gut doesn't show a ton of damage. Coincidentally I started running around  all of this, with A 6 month break in between, and have also recently read that Runners Who log a lot of miles generally are pretty low on ferritin if they don't supplement.  I only do between 6-15 Miles per week.  I eAt a mixed green salad about 5 times a week, red meat a couple times a week, and then a lot of other high iron foods.  lamb stew is a tremendous source of iron, as well as muscles. I am a big fan of garden lights chocolate zucchini muffins as well each mini muffin contains 20% of the daily value.  I Like to eat Two for breakfast with my coffee.  if he stopped eating gluten about a month ago you might still be able to get the blood test done. I'm sure you have read by now that you need to be eating gluten to be tested.  antibody start falling Right away but for some people it takes a long time.     did they order a total iron binding capacity?  and was the iron panel done while fasting? You don't really need to fast for a ferritin but serum Iron can easily be elevated With food.  Although symptoms vary depending on the individual I have read quite a bit online that When ferritin drops below 40 people can start getting symptomaTic.  so you are likely correct that his feeling better is related to his ferritin level increasing.  giving up gluten means giving up certain nutrients as well. So if he's already vegetarian he needs to really pay close attention to what nutrients he might be missing in his diet now if he's giving up whole grains.
    • Thank you! I will look into it! 
    • You would honestly think that after you body goes nuts attacking your insides trying to kill the gluten after 2 days of food poisoning yourself with it the damn antibodies would show up in insane levels in your blood Life is not that easy though.
    • Some days I have 3 pieces of bread, other days I just can't handle more than 1.  I had to take a day of gluten rest after the first week.  I felt too aweful. Now I'm almost done with week 2 and I feel like I need another break.  Just so hard to do something to yourself that you know will hurt.  They just don't know how much and for how long.  There was a recent study that looked at gluten challenges in folks actually diagnosed with celiac and some took months to have elevated antibodies.   Just one day at a time.  I hope things go well for you. 
    • Thank you for replying. I think you are right- why take the chance of reinfecting myself with gluten exposure again when ive been trying so hard to rid it from my life?  I just read some interesting articles on Sjogrens Syndrome and gluten sensitivity and that they are related so that may answer one of my questions. Your symptoms took over a year to resolve?! Holy moly.. I fear that is going to be my issue too. Are you feeling better now?  
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