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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Newly Gluten-Free, Over-Sleeping
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2 posts in this topic

Hey Everyone,

 

First, this forum is great :) Thanks for sharing all of your knowledge!

 

Second, I just started a gluten-free lifestyle (going on 3 weeks). Here are a list of symptoms that lead me to this change:

 

For the past two years:

Diahrrea (managed for 2 years with probiotic treatment. Never fully corrected, but managed).

Intense and painful gas.

bloating.

Brain fog.

Poor Performance on Balance Test.

Weak fingernails with pits (I was told this reflected poor absorbtion of nutrients).

 

For the past three months:

Migranes

More noticable brain fog.

Chronic Urticaria.

 

Once the Chronic Urticaria (hives) kicked in, and having seen 7 different doctors to no avail (they simply said "IBS" after I tested negative in a blood test and colonoscopy), I self-diagnosed some type of gluten intolerance (I notified my doctor before starting the diet) and began a 100% gluten-free diet. The Hives cleared up in 2 days, and I've taken 1 probiotic in 3 weeks and have had much more normal digestion than I ever had in the past 2 years (I had been taking 2 Probiotic Pearls a day for half a year, and before that 1 a day). I'm still learning which things to avoid (I've accidentally glutenated myself a couple of times...and Udi's products cause most of my symptoms to return), but on the whole my life is much improved on the diet.

One thing that I've noticed is that since starting the diet, I've needed a lot more sleep. It's fairly normal for me to sleep nearly 10 hours. One day I stayed home from work and slept almost 20 hours for that day (I was, however, on anti-histamines because the hives had returned thanks to a so-called "gluten-free" option at a local resturaunt).

So a few questions:

1) Does anyone have any tips on how to navigate going to the doctor? I've been pretty frustrated by their inability to put two and two together. Not to be offensive towards doctors, but I have seen 6 of them!

 

2) Has anyone else had this over-sleeping experience? I figure that my body is trying to heal itself and that's causing me to sleep so much. What are your thoughts?

 

 

 

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Yes, healing makes you sleepy. Allergies and glutenings don't help. It will lessen in time.

Keep personal copies of all lab reports. Keep a diary of symptoms or put them on a calendar.

If docs go in circles start cutting. Be honest with them and tell them they aren't working for you. No need to be rude, but it benefits no one if you don't speak up. Perhaps an integrative practice is better, or an ND. Good docs are rare but if you find one keep him/her.

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