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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

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Hope no one minds the constant questions. But do thes sound like symptoms too?

Ringing in head/ears

Feeling faint even when resting

Burning itching feet

Disturbed sleep/ disturbing dreams

Strange blurry vision, almost like being underwater.

Trembling in limbs and some times whole body shaking

Typing words wrong way round

Feeling exhausted by conversation

Dry mouth/ sticky nasty taste in mouth

Thank you

Jo

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Hi Jo

 

Well, they sound like gluten-related symptoms to me. (I had almost all of those, too) but they could also be

 

caused by something else, so it is difficult to say for sure.

 

Here is a list of possible celiac- related symptoms and conditions.

 

http://www.cureceliacdisease.org/wp-content/uploads/2011/09/CDCFactSheets10_SymptomList.pdf

 

 

I know you are awaiting your test results, so you may wish to read a little bit while waiting.

Hang in there!

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Hi Jo

Well, they sound like gluten-related symptoms to me. (I had almost all of those, too) but they could also be

caused by something else, so it is difficult to say for sure.

Here is a list of possible celiac- related symptoms and conditions.

http://www.cureceliacdisease.org/wp-content/uploads/2011/09/CDCFactSheets10_SymptomList.pdf

I know you are awaiting your test results, so you may wish to read a little bit while waiting.

Hang in there!

Hi IrishHeart

I know they are also symptoms of b12 def which I have, but I am clutching at straws here ☺. I am also being tested for vit D def and I don't know what else as the nurse said the doctor had asked for several tests. She said he is very thorough so I am hopeful of some answers this time. Sounds crazy but In a way hope it is Celiac, then at least I will know something.

Jo

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Not crazy at all! I was THRILLED to learn it was celiac after years of living in hell. It was something treatable

and I was not "making things up" and I got to do the "I told ya so" dance! :D .

 

Believe me, many of us "get that part". 

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The "I told you so dance" is nice -- validation is huge and sadly many of us had to fight far too much to obtain it.  This above all else is why I hang around celiac.com -- when I stumbled in four years ago -- others that were already dancing helped me.

 

Welcome Jo!

 

I hadn't seen your other questions...but keep reading and keep asking questions.  Good Luck with your results :)

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Thankyou IrishHeart, Lisa and Nicole. This is a lovely forum and I have found some welcome comfort here. And even if I am not Celiac I hope I can still keep visiting. Yes I had noticed that happy little dancer!

Jo

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hey guys, Jo is in the midst of a gluten challenge, so we are cheering her on!

 

http://www.celiac.com/gluten-free/topic/101386-anyone-feels-worse-in-the-morning/?hl=%2Bdozey#entry865664

 

and yes, I am dancing because at one point, I could not even walk without assistance. Lisa was in the same boat, Jo and she and I

are both so much better!

 

..........so do not despair. Healing happens!

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Thanks Irish Heart. I can't walk very far which of course isn't helping the agoraphobia. My husband insisted on getting a wheelchair and although it just doesn't feel right being in it, it does mean I can get a bit further without worrying about ending up on the floor. So, when I feel well enough I try to go a bit further each outing. If I do too much I pay for it the next day, so I am trying to pace it.

I had my blood test yesterday but typical for me can't get to see my new doc until next Friday. I am dreading him saying I need an endoscopy because there is no way at the moment. I nearly passed out at the surgery and that's only two miles away. The hospital is 23 miles. An epic journey for an agoraphobic!

Jo

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But for you to get to the bottom of this and stop the madness and get your life back, you may well have to do this, Jo.

 

I am not a drug pusher, but maybe you can ask the primary care doc for a small dose of xanax to calm you enough to get you to doctor visits. IMHO

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But for you to get to the bottom of this and stop the madness and get your life back, you may well have to do this, Jo.

 

I am not a drug pusher, but maybe you can ask the primary care doc for a small dose of xanax to calm you enough to get you to doctor visits. IMHO

I know this sounds as though I am being negative about everything but I can't take drugs. Even ordinary painkillers have an effect on me. I was given Diazepam some years ago and it just knocked me out for a few hours, then I felt worse when I woke up. So now I am afraid of taking drugs of any kind.

Jo

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I have similar issues with drugs, which is why I put up with chronic pain rather than take the stuff they give me,

so no need to explain. The one that did not make me yucky for days was when I took just  a teensy bit of xanax

before a dental surgery that was going to last over an hour. Without it, I may have balked at doing it and it had to be done..

 

I am just suggesting it as a therapeutic measure to get you out of the house.

Certainly, you should always do what's best for you. 

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I have similar issues with drugs, which is why I put up with chronic pain rather than take the stuff they give me,

so no need to explain. The one that did not make me yucky for days was when I took just  a teensy bit of xanax

before a dental surgery that was going to last over an hour. Without it, I may have balked at doing it and it had to be done..

 

I am just suggesting it as a therapeutic measure to get you out of the house.

Certainly, you should always do what's best for you.

I appreciate that. Maybe it's going back to the car crash we had in 2004, although I recovered from that and have driven myself about since, even did a stint as a taxi driver. Lately I just have difficulty going anywhere in the vehicle. I don't think we wil crash or anything but maybe it's just general anxiety.

Jo

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