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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Whole Body Stiffness
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5 posts in this topic

I recently had a positive celiac panel test and have been gluten free for 45 days.  I also have hypothyroid disease and had a positive ANA 1:320 speckled.  The Rheum. at Wake Forest was unimpressed with that number and me not having any joint pain but rather inflammation and tendonitis which is believed to be caused by celiac.  My recovery process has been slow but is improving, however I wanted to know if anyone else has experienced or is experiencing whole body stiffness.  I am stiff the entire day.  I know thyroid issues can cause stiffness and I also know I am deficient in Vit D, Magnesium, Vit B and maybe more. 

 

Sometimes I think I'm crazy, I am doing therapeutic massage and she said my entire body was tight and I had muscle knots everywhere.  She used trigger points and it helped but here I am again this morning stiff.

 

Ugh.  I have three small children and it kills me to not be the way I used to be. 

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I recently had a positive celiac panel test and have been gluten free for 45 days.  I also have hypothyroid disease and had a positive ANA 1:320 speckled.  The Rheum. at Wake Forest was unimpressed with that number and me not having any joint pain but rather inflammation and tendonitis which is believed to be caused by celiac.  My recovery process has been slow but is improving, however I wanted to know if anyone else has experienced or is experiencing whole body stiffness.  I am stiff the entire day.  I know thyroid issues can cause stiffness and I also know I am deficient in Vit D, Magnesium, Vit B and maybe more. 

 

Sometimes I think I'm crazy, I am doing therapeutic massage and she said my entire body was tight and I had muscle knots everywhere.  She used trigger points and it helped but here I am again this morning stiff.

 

Ugh.  I have three small children and it kills me to not be the way I used to be.

Hi Tigerlilley

I have a lot of stiffness especially after sitting for any time, I am also quite tense and often have my shoulders up around my ears, and my teeth clenched. I am not diagnosed with Celiac but have had the bloods done this morning. I have hypothyroidism and b12 deficiency. Also getting tested for vit D def. hope things improve for you soon.

Jo

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I have this too.  It helps to get out and walk.  I thought that I had Lupus or RA is was/is so bad sometimes.  It's all just part of celiac. You will be ok.....it takes so much time to heal from this.

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Celiac and nutritional deficiencies do play a big role, in my experience. However, don't underestimate hypothyroidism's role.

In short, despite being on t3/t4 meds for years and receiving some relief in symptoms - I was not getting adequate absorption. This leads to suboptimal levels if t3/t4, too much rt3, stressed adrenals (I also have steroid damage), and hormone imbalances.

So, I'd look into adrenal and thyroid, and probably hormones more to help relieve those symptoms faster. It's very hard to separate celiac and thyroid. Time helps. I'd advise assuming they're causing as much trouble as Celiac and just start working on them.

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Mineral and vitamin deficiencies can definitely cause muscle rigidity. But it's so complicated to figure out what specifically is the cause! Vitamin D, calcium, potassium and magnesium all contribute to that, I think. I mean, the lack of those things.

Have you been checked for SIBO (small intestine bacterial overgrowth)?

Almost forgot about your hypothyroidism. That also definitely plays a part, and is by itself can cause low blood calcium, I think.

 

Edited by etm567
needed to add something
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