• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Sooo Mad! /mums/allergy Tests!
0

6 posts in this topic

found something out today while having a conversation with my mum,

 

we were talkin abt the date of my allergy tests and how im gonna get there.she said not to have anything to eat before you go in and i said why? they are only gonna have a chat with me. she then said " when i had mine done they just put this plastic grid on my arm and pinpricked me,they did it straight away. the following conversation went like this...

 

when you had what done?

my allergy tests.

youve had allergy tests?

yes.

proper allergy tests, at a hospital?

yes.

what did they find?

im allergic to beef and tomato,s

(me-in my head)so this is the tomato,s that im having problems with. but you eat beef and tomato,s?

yeah - but its never done me any harm.

but you have asthma,thyroid problems, gall bladder removed, diabetes, raynauds syndrome!!!!

yeah but its nothing to do with that.

but your eating foods that your body cant deal with, it causes inflammation throughout your body- thats probably why your thyroid has packed in!!!   

so why did you go for allergy tests then?

coz i had unexplained rashes and things - like when i ate chocolate and i had to run to the toilet with diarrhea and then id come out in a rash.

your allergic to chocolate!!!!

yes and errrm dairy.

YOUR ALLERGIC TO DAIRY????but you eat chocolate all the time and eat cheese.

yes but it never bothered me.

why have you never mentioned this before?

i probably did but you cant remember.

WHAT!! how old were you?

(she now realises she,s said too much and clams up) - i cant remember how old i was.

you must know how old you were, were we small,toddlers, teenagers??

i was about 35

(me in my head) so a bit older than i was when i started having problems!!

 

i cannot express how mad i am with her at the moment.why hasnt she said something when i told her id given up dairy!! when i told her im having problems with food intolerances all she had to do was say - oh i had problems too, i had to go for allergy tests.she could have saved me so many years of problems but shes said nothing!!

my poor sister had to listen to me venting on the phone today..and ive given her the job of interrogating mum to see if she,ll tell us more.

 

 

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Try having this convo in two years, when she's watched you go gluten-free (and whatever else f) and still refuses to be tested for celiac disease or stop eating gluten. Or get hormone/thyroid labs past tsh.

And when she tells you she thinks she going to develop Alzheimer's....try not to strangle her. This is after you've explained gluten can cause neuro damage...

When she tells you that your diet (gluten-free) seems too restrictive, when she can't eat HALF of the foods she used to eat because she gets "mysteriously ill"...just try not to scream "you're effing Celiac, it's GENETIC. I didn't get it from kissing boys!!!!"

0

Share this post


Link to post
Share on other sites

hi,

 

ive calmed down a bit now lol. thats just my mum- the more i read about celiac the more im convinced shes got it! but my results were negative- maybe we are ncgi. hopefully these tests will give me some answers!!

0

Share this post


Link to post
Share on other sites

hi,

ive calmed down a bit now lol. thats just my mum- the more i read about celiac the more im convinced shes got it! but my results were negative- maybe we are ncgi. hopefully these tests will give me some answers!!

Potato/potatoe.....

It seems gluten issues in general are genetic. Didn't mention my dad had food allergy testing and it came back + for EVERYTHING.....

I drew the "gluten screwed" card, I think. Genetics are just grand.

0

Share this post


Link to post
Share on other sites

found something out today while having a conversation with my mum,

 

we were talkin abt the date of my allergy tests and how im gonna get there.she said not to have anything to eat before you go in and i said why? they are only gonna have a chat with me. she then said " when i had mine done they just put this plastic grid on my arm and pinpricked me,they did it straight away. the following conversation went like this...

 

when you had what done?

my allergy tests.

youve had allergy tests?

yes.

proper allergy tests, at a hospital?

yes.

what did they find?

im allergic to beef and tomato,s

(me-in my head)so this is the tomato,s that im having problems with. but you eat beef and tomato,s?

yeah - but its never done me any harm.

but you have asthma,thyroid problems, gall bladder removed, diabetes, raynauds syndrome!!!!

yeah but its nothing to do with that.

but your eating foods that your body cant deal with, it causes inflammation throughout your body- thats probably why your thyroid has packed in!!!   

so why did you go for allergy tests then?

coz i had unexplained rashes and things - like when i ate chocolate and i had to run to the toilet with diarrhea and then id come out in a rash.

your allergic to chocolate!!!!

yes and errrm dairy.

YOUR ALLERGIC TO DAIRY????but you eat chocolate all the time and eat cheese.

yes but it never bothered me.

why have you never mentioned this before?

i probably did but you cant remember.

WHAT!! how old were you?

(she now realises she,s said too much and clams up) - i cant remember how old i was.

you must know how old you were, were we small,toddlers, teenagers??

i was about 35

(me in my head) so a bit older than i was when i started having problems!!

 

i cannot express how mad i am with her at the moment.why hasnt she said something when i told her id given up dairy!! when i told her im having problems with food intolerances all she had to do was say - oh i had problems too, i had to go for allergy tests.she could have saved me so many years of problems but shes said nothing!!

my poor sister had to listen to me venting on the phone today..and ive given her the job of interrogating mum to see if she,ll tell us more.

Hello sister!  We must have the same mother!  I grew up with my mom claiming that she was allergic to various things.  She would sometimes avoid them for a while and then not.  Her claim was that she craved the things she was allergic to.  Now whether her issues are true allergies or IgG/intolerances I do not know.  I do know that some are intolerances.  And two of those were chicken and spinach.  And yet?  She went to a naturopath who put her on a bizarre diet where she could eat anything she wanted and as much as she wanted and then a super strict one where she was to eat nothing but spinach, chicken and fruit until she lost weight.

 

I just don't get my mom's logic.  At times she will say that she has to eat _____ because she craves it.  Other times she will say that perhaps a Dr. told her not to eat it but that doesn't mean anything.  Or that she doesn't have to do what the Dr. said.  I would say at this point in her elderly life that senility is coming into play but...  She was like this when I was a kid too!

 

Now my daughter and I have food intolerances.  She makes nasty comments to us about our diets.  She gets angry if she offers us a food that we can not have.  Then she will ask why and if we say we are intolerant to it, she gets even more angry and says that we should not say that and we should just get over it.  Or she will suggest that we eat at a place where they have literally nothing we can eat.  And then tells us that we can't use our food issues as an excuse.

 

I think my dad has food intolerances or allergies as well.  He goes through tissues like crazy.  Since I stopped eating dairy and eggs, I've cut waaaay back on the tissues I use.  In fact I rarely have to use them for my nose at all.

 

The thing that really gets me is that my mom will often get sick after eating.  "Ohhhhhhhh...  Why does my stomach hurt?  Oh poooooor me!" And she expects sympathy.  Or she will make a big announcement.  "I am NOT going to eat any eggs tonight!"  And then she will order French Toast!  She doesn't cook so it is quite possible that she doesn't know that there are eggs in there.  But if I point it out to her, she gets angry and tells me that I don't know that.  To her, eggs are yellow and white things in a shell.  They couldn't possibly be in some other dish.  Right?  Had the same argument over Avglolemeno soup.  She said there was cream in it.  But it's not cream that gives it the creamy texture.  It's eggs.  I know.  I made it when she came to visit.  This before I knew what a number eggs do on me.

 

So yeah.  I hear ya.  And good luck with that!  My mom is pushing 80 now.  I've lived with it all my life and it's only getting worse.

0

Share this post


Link to post
Share on other sites
Ads by Google:


I am in too!

I am NCGI (well, until testing catches up with me...) and so very clearly are my Mum, her 2 sisters and my grandma. Along with a host of other intolerances each. My Mum has given up wheat, cheese, chocolate among other things at various times, but when I told her about gluten-free and what it has done for me, she said she started to lose other foods, so started eating wheat again so she didn't lose any more. What?? Well, I hope the cfs and chronic migraines are worth it. Grandma had blood transfusions every few weeks because her B12 and iron kept dropping. She lives on toast and food replacement sachets. In the past she had food addictions.

Seems that mostly they are going to drive us mad.

At least I know where my stubbornness genes come from as well as the gluten intolerance ones.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,341
    • Total Posts
      935,585
  • Member Statistics

    • Total Members
      65,004
    • Most Online
      3,093

    Newest Member
    susa
    Joined
  • Popular Now

  • Topics

  • Posts

    • Thankyou squirmingitch that is useful info, i have decided to go ahead with the endo and biopsy but i know what you mean there are still alot of people out there who still think celiac is not serious and thinks it is a choice. I have a 11 year old daughter and i think it would be foolish not to go the whole hog with this has it would help her in later life if i have the gold standard confirmation as im sure some docs still dismiss it because they do not specialise in this subject.
    • Furthermore, getting a positive on the endoscopy will leave no doubt either in your mind nor in the minds of the rest of your family or friends. All first degree relatives of celiacs need to be tested every 2 or 3 years in the absence of symptoms & immediately if symptoms present since celiac can present at ANY age. So your parents, siblings & your children will need to be tested. Believe me, there is oftentimes a TON of pushback by family members simply because they don't want to have celiac so they stick their heads in the sand & say you're off your rocker, refuse to get tested because they say they don't have it and you don't have a concrete diagnosis so how can you be sure they need to be tested? Friends can be even more doubtful. People are really, really doubtful of people who don't have an ironclad diagnosis. I think it's stupid of them to be so negative & questioning what you know to be true but they are. I mean, when you say you are diabetic, no one doubts that you are, no one questions your diagnosis and everyone respects the implications of diabetes but that is not the case with celiacs. I think it must be that people can not conceive of never eating wheat flour again for life. They can easily accept a diabetics diet but not a celiacs. Yet they will grill you as if they are experts in celiac disease unless you can tell them you've had the full nine yards of testing & ARE, no doubt about it, celiac.
    • Hi ch88, You could try going nightshade free to see if it helps your arthritis.  It might help.  The common food nightshades are potatoes, tomatoes, peppers, eggplant, turmeric and paprika.  If you try nightshade free for one month that should be enough time to know if it helps IMHO. Sweet potatoes/yams are ok, as they are not nightshades.
    • Thankyou both of you for your advice, i will have the endoscopy will just have to wait, my blood tests were not hitting the roof with reading but a low to medium result, dont want to be one of them people who have gone gluten free with no need, however i do show typical symptons of celiac but no overwhelming symptons apart from feeling nauseous and crampy at times, and extreme tiredness. There is soooo much to learn
    • You are normal!  All the things you are going through are normal for someone with celiac disease....probably with any life changing illness.  What you need is patience.  Most here take a year to heal or longer due to setbacks on the diet or healing from systemic damage.  The nervous system seems to take the longest.  Ask your doctor to check you for any deficiencies.  No sense guessing what you might need.  It is a common and recommended practice to check for vitamin and mineral deficiencies.   http://www.cureceliacdisease.org/faq/what-common-nutrient-deficiencies-might-an-adult-experience-prior-to-diagnosis/ Once healed, you might not need any supplements, if you eat a wide and varied healthy diet.  
  • Upcoming Events