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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Celebrating May And Celiac Awareness Month - Houston Chronicle (Blog)
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PR Web (press release)

Celebrating May and Celiac awareness month

Houston Chronicle (blog)

Back then, celiac disease was considered a rare disease. Now, thanks to a prevalence study by Alessio Fasano, MD of the Center for Celiac Research and Treatment at Mass General Hospital, we know the incidence is much higher, 1 in 133 Americans.

New ALL BUT GLUTEN™ Baked Goods Launches During Celiac Awareness ... PR Web (press release)

Susan Hart: May is Celiac disease awareness month Nevada Appeal

Celiac Advocate Miranda Jade Turbin's Article is Featured in the Renowned ... Virtual-Strategy Magazine (press release)

Los Angeles Times  - Ottawa Citizen  - Carlisle Sentinel

all 15 news articles »

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    • Once your tTg is in the normal range, and it's only 1 point away from that, that would be considered excellent results.  tTg just has to be in the normal range to be called a success.  The number you want to be as low as possible within the normal range is the DGP or AGA testing, as that tests for dietary compliance.  This is why it is a good idea to run both tests because it gives a more complete picture.  But with these results I would say you are doing an excellent job with the diet!
    • I started a topic a couple of weeks ago about my type 1 daughter with a ttg iga result of greater than 100 being suspected of having celiac.  She saw the GI and has her biopsy scheduled for this coming Tuesday.  Seems like there is no doubt that it will show celiac but we will know soon.  I have started thinking about some of the symptoms that I have had and before my house goes gluten-free would like to test and make sure that I am not testing positive for celiac as well.  My symptoms are always tired--easy to write off--been really constipated and bloated which is a relatively new phenomenon for me.  Sometimes I get tingling in my legs/feet but that hasn't been too bothersome.   My primary care doctor tested my ttg igg which was 3 (<6 is negative) and ttg iga was <1 (<or =4 positive)  It doesn't look like he ran an immunoglobulin a test to verify that I am not immunoglobulin a deficient   He ran a cbc that showed that my MCH was high (34) indicating that I could be deficient in B12 or folic acid--I rarely drink so I don't think that could have skewed the results.  Could this be indicative of anything?  My doctor just said all my labs are good.  Do you think this rules out celiac for me or would you try to do further clarification/testing? Thanks!
    • Hi all, my TTG/iga came back. It was 4. 0-3 is considered negative and 4-10 is weak positive.  In January it was 12 and before my endoscopy in October it was >100. it plummeted those first 2 months but seems to be taking more time to get lower. Should I feel optimistic? I guess 4 seems ok. 
    • Yes, i was 230 lbs upon diagnosis. My crp had been high for over 10 yrs. The first year i lost 70 lbs of water. Then i started to realize my continued irratic gi problems were more intollernces from processed foods as well as things like dairy and legumes. I went on an elimination diet and lost 20 more lbs. I finally stopped at 135 lbs which was still healthy weight, not that i had seen it until high school. Check your folic acid. Just found i am positive for one of the MTHFR genes meaning i cannot convert folic acid, which i lost stopping processed food, so i take 3000 mcg l-methylfolate daily. This is improtant because the body needs to detox all the gluten and chemicals i stored undiagnosed so when that was blocked i developed terible nerve pain. I am 10 years clear and things are amazingly better. I am finally adding in foods i could not tolerate like avacados and turkey. I had a pill cam and colonoscapy this year and there is no visible damage like there was 10 years ago. I think it was my clean diet and time to heal. I should have had a full vitamin panel when diagnosed but had no follow up advice except stop gluten. Am on d3, k2 as well. L glutamine helped heal my gi and d ribose gave me some blood sugar stability. I get these at amazon, NOW brand. My d3 is blue bonnet since its fish not lanolin. My k2 and l methyfolate is life extension. It is a long journey but it has become normal to live gluten free and my diet is so much healthier i think my longevity is increased because i have to eat this way. Plus the arterial sclerosis i had 10 yrs ago is gone, cleaned by my body and food. Well wishes.
    • Thanks for the well wishes Jmg. It appears that you & cycling lady think the sugar maybe our issue, let me clarify that's not our issue for it is manifesting as one of our additive intolerance exposure symptoms. One both my son and I have discovered over 2016. It's not a sugar crash type or a gi symptom in our case . But excellent info for consideration for others. My concern was about additives not listed on a label which is currently not required by regulations and the havoc it can cause the consumer .It's a clear cut symptom we get when exposed to a corn derived additive. At this juncture we are possibly sensitive to a highly processed flavor or coloring from a source other than corn that would be helpful to know what that source is per label  . That's where transparency in labeling would be helpful to me and others like me. The links I included on my post reflect concerns by others out on the web  to this concept. The food diary is helpful and has been to us in discovering these sensitivity issues, but not ideal when not all additives are labeled. the label says 100 percent juice but my body says otherwise . I am well aware from personal job exposure that the food industry is not required to list every ingredient particularly if it is not a top 8 allergean which is why I went look for the info to share. As you both pointed out and maybe even helped to bring to light the importance of sugar labeling my dream is to see it a step further with additives.      
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