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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Can Symptoms Come On Suddenly?
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9 posts in this topic

I just wanted to know if symptoms can come and go suddenly because I have had other symptoms before but never anything as bad these past few weeks. I still can't get a doctors appointment, he's just come off holiday and is fully booked for the next 3 weeks! I'm guessing my symptoms will probably be gone by then.

 

Symptoms these past 5-6 weeks are:

 

- serious stomach bloating/distension

- hard stomach

- tender around abdomen/intestine area

- sharp pain which lasted a few hours a few inches from belly button at left

- constipation

- laxative didn't work

- loss of appetite 

- pain in stomach and increased hunger (even after eating a short while earlier), eating makes the pain better for a while

- pressure in stomach after eating

- increased sensitivity to milk (with no change to the amount added)

- nauseous

- increased gas

- stomach cramps

- shaky, weak and feeling jellified at times

- unable to think clearly

 

Symptoms I've had all my life:

 

- possible lactose intolerence (I had a small amount of milk in a coffee for years, slight too much and I felt nauseous)

- stomach cramps even when eating same thing as others I was the only one experiencing pain and gas

- gas

- chronic constipation

- dry skin

- wounds not healing properly, no matter how small

- easily bruise

- chronic fatigue

- irritable

Edited by sammy01
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Mine came on very suddenly. I was fine for 28 years and then just like that.... I got celiac.

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Try going dairy free.

And do see a doctor.

You have to keep eating gluten if you want to do a Celiac panel.

 

Total IgA
Transglutaminase IgA tTG-IgA
Deaminated Gliadin IgA DGP-IgA
Deaminated Gliadin IgG DGP-IgG

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Thanks guys, I've also been more or less dairy free my whole life the small bit in coffee has been the only dairy I ever have because the slightest too much has always made me feel really nauseous, these past few weeks after the other symptoms began even that amount has seemed to affect me. Luckily my docs back off holiday so I can get an appointment soon.

Edited by sammy01
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Hi Sammy01,

 

DeaminatedMarcus gave a great list, but I would also add ttg igG onto it.

 

We share a lot of the same symptoms.  I've also suffered from constipation and dry skin, particularly my hands.  Sometimes even when using lotion, they will bleed.  yuck :o   I can also relate to the wounds taking a long time to heal, and easy bruising.  I thought from what I had been reading that maybe my iron level would come back low, but I was deficient in Vitamin K and D.  check out this page http://www.umm.edu/altmed/articles/vitamin-k-000343.htm  Request your doctor to test your nutrient/vitamin levels as well.  Request a CBC, CMP, Vitamins B, D, K, A, E, iron, ferritin, magnesium, zinc, and copper.  

 

In regards to the constipation, one time I drank a whole bottle of magnesium citrate, and no reaction  :wacko:  I am happy to report since going gluten free, I am becoming increasingly regular without the use of constant laxatives.  Have you tried glycerin suppositories or liquid glycerin suppositories?  I've used the brands that are strictly glycerin with no added stimulants.  The Fleet brand is effective for me  :P

 

Good luck!

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Sammy, just to test, try using NO dairy at all, such as, using almond beverage in your coffee.

You could be hypersensitive to something in the milk.

I hope your doctor takes your concerns seriously and that he does all the necessary tests.

 

................................................................................................................................

 

Powerofpostivethinking:

 

I don't put the  tTG igG in my list because it wasn't on my Celiac blood test panel.

 

I do agree with you that it should be part of the testing panel because in my case my total IgA was a borderline inside normal.

But the labs were I live don't offer it as part of a Celiac panel or on it's own but they should.

If readers can get the  tTG igG from their local lab then I agree they should include it. 

 

 

What is frustrating about your comment about constipation is that doctors think of Celiac as being just diarrhea and underweight.

By sharing your experience,  readers will know the symptoms vary more.

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it would be great if a standard panel included all of the above tests regardless of where you live  :)  I know testing can be expensive, but think of all the savings if you figured out your problem before years and years of health problems.  In fact if I had just been given ttg igA, it would have come back negative, but with LabCorp, the lab I have to use for my insurance of Blue Cross/Bue Shield, their comprehensive celiac panel includes:

 

ttg iga/igg

dgp iga/igg

EMA

total iga serum

 

the other insurance my work offers is Aetna, and check out what they say about the DGP tests, IV bullet:

http://www.aetna.com/cpb/medical/data/500_599/0561.html

 

"Aetna considers the use of deamidated gliadin antibodies (DGP) experimental and investigational as serological markers for celiac disease because its clinical value has not been established."

 

They also still support AGA, even though labs are phasing those tests out.  They're a little behind the times  :P

 

 

I understand DGP hasn't been around too long, but if my insurance wouldn't have been willing to cover DGP, I would still be wondering if gluten was a problem for me  :huh:

 

 

constipation...i loathe it :(   it just makes me feel weighed down and not wanting to do anything, especially exercise.  in fact at my initial GI visit, the doctor said that celiac presents with D and weight loss, and I am thankful that although I didn't exhibit those symptoms, he was willing to order the test.  My second visit I brought an article from the World Gastroenterology Organization regarding celiac disease and symptoms, where it clearly listed constipation as a symptom.  Luckily, my doctor doesn't seem to sit on a high horse, keeping fingers crossed this continues, and is willing to listen.  In fact the DGP test that came back positive, he was going to dismiss, but then I showed him the same article where it listed the high sensitivity and specificity for DGP igG, and he agreed that it was cause for a concern.  He is willing to listen and look into something when he doesn't know the answer, and that is an invaluable quality in a doctor.  My hope is that this continues!

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To powerofpositivethinking:

 

I'm figuratively banging my head about the insurance company statement about DGP not being proven.

 

But you know what? I saw an allergist-immunologist who wrote to my doctor telling him to have me do the AGA tests to test for Celiac!

I'm the one who did the research and it was reading on this site about people like you who test positive for one thing only that made me decide to do the full panel (of 3 tests).

Why are we the patients having to educate our doctors?    It makes NO sense!

 

Wouldn't that insurance company (or my health ministry) want the most complete tests to be covered?

By diagnosing people sooner, they will save money on doctors visits for all the health problems that Celiac entails?

 

 

When I was doing my research months ago and more so as I came up to my planned testing date, I read on this web site then I read published studies showing that the DGP-IgG is much much more accurate, especially for children.

Even DGP IgA is good patients with liver disease.

 

In your case either you are having a direct response to Deaminated Gliadin which is already diaminated in Whole wheat (the added gluten) or you have the begginings of Celiac that wasn't detected by your endoscopy.

So it's either gluten sensitivity or Celiac. 

 

Still I'm jealous of you. I was gluten free for 2 years and did the panel after 5 months of eating bread again.

I'm sure it was Celiac back in 2010.  Everything I ate was processed breaded everything back then.

 

And lucky you for having a good gastroenterologist. Mine was way way up on his high horse looking down on me.

I regretted so much not going to see my uncles gastroenterologist whom I met and who was so nice and easy to talk to when I went with my uncle for his problem.

I don't know if my PCP will send me there.

 

I agree again, the panel should have tTG-IgG. My IgA was just inside normal.

If I had a high IgA like sammy01, I would have felt more confident about the test results.

 

I hope you find more answers.

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Thanks for all the replies, I find everything to be really helpful, especially the test names and what to ask for :)

 

@powerofpositivethinking - I used senokot laxatives but I can't remember what type lol

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