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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Loss Of Courage
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13 posts in this topic

Could this illness rob you of character, determination and courage? I haven't always been this way but this last year and a half seems to have taken all those qualities from me. In the past I have been ice skating, horse riding, ski ing and even abseiled down a quarry. I have driven everywhere and towed a caravan, with none of this anxiety. Now I seem to feel afraid about doing anything.

Jo

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In short?

http://youtu.be/fb_HJGimzts

 

Before the worst of it hit me several years ago I was very much a different person. I eventually became housebound because of a variety of circumstances. In short, it is because this stupid disease took too much from me. I am finally taking back. I have back now what it takes to do things for myself and leave the house alone, even go to doctor's appointments alone. It may be a hell of a battle, but it is for sure worth fighting.

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That made me smile. Thank you. I have been housebound for a few months but getting out a bit now, as long as I have someone with me and don't go too far. Sometimes it seems immpossible to get back to how I used to be.

Jo

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It isn't impossible, merely daunting. I am also an avid My Little Pony fan, and could cite what feels like a billion reasons why the show is now obviously made for adults and nerds, not for 8 year old girls. There really is nothing in quite like ponies to bring a smile. :D

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Hi Adalaide. Thank you for the encouragement. I have not yet been diagnosed Celiac, but something is not right with me. I love all animals, but horses and ponies are beautiful, that's a fact.

Jo

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i have been feeling braver lately - my brother moved nearby and we are going camping over memorial day weekend.  we were talking about things to keep the kids occupied and one of his suggestions was badminton.  he told my husband:  she was so good, and so aggressive when we were younger.  and I WAS!  nowadays, i can't even throw or catch a ball.  don't have the desire to try.  but when he was talking about the badminton, Old Me wanted to whip his a$$ just for a second.  Old Me is still in there, i hope to find a little more of her every day.  i hope you find your answers, jo :)  

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i have been feeling braver lately - my brother moved nearby and we are going camping over memorial day weekend.  we were talking about things to keep the kids occupied and one of his suggestions was badminton.  he told my husband:  she was so good, and so aggressive when we were younger.  and I WAS!  nowadays, i can't even throw or catch a ball.  don't have the desire to try.  but when he was talking about the badminton, Old Me wanted to whip his a$$ just for a second.  Old Me is still in there, i hope to find a little more of her every day.  i hope you find your answers, jo :)

Thanks Ariene. That's just how I feel, no energy and no desire. A bit of crafting interest is creeping back, but not like I used to be. I hope you ger back to yourself soon.

Jo

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Hi There Jo!!!

 

Yes....I lost those things along with a thriving career over the past fourteen years -- others have lost as much or more.

 

Here is the good news -- you can get things back -- a little at a time that small desire to do a bit of crafting or wanting to walk out the front door -- will happen. 

 

Take it slow - finish all the necessary testing -- then remove gluten -- then be patient -- I was not born patient - far from it -- Celiac taught me patience -- even more good -- those of us that lost much....greatly appreciate the little stuff and I for one enjoy finding joy in all the little stuff!

 

Hang in there :)

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I noticed I got really insecure when I continually eat gluten, to the level where I can now understand why I stayed in an emotionally abusive relationship for 3 years. Celiac's can mess with more than just your gut. Well, the messing with your gut can mess with your mind. The types of losses in courage and determination can be associated with depression, which (according to this article: http://www.psychologytoday.com/blog/the-breakthrough-depression-solution/201105/is-gluten-making-you-depressed) is over 4 times more likely for people with celiac disease. This is because over 90% of our serotonin is produced by the gut (http://www.scientificamerican.com/article.cfm?id=gut-second-brain). If you listen to or read any anti-depressant medication advertisement, they mention dopamine and serotonin as being key to "fixing" depression. But if your gut is damaged, you can't absorb nutrients or produce serotonin --> depressive symptoms. The good thing is, that if your loss of determination is caused by a nutrient/hormone imbalance from celiac's then once your body heals on the gluten free diet, you should go back to what you thought of as normal. I've found it really helpful to have people to talk to about all of the issues as well. 

 

(Full disclosure, I do study psychology and have a personal interest in the biological basis for pathologies, but I haven't done any personal research on these topics. I've cited my sources so feel free to take a look and form your own opinions)

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Hi There Jo!!!

 

Yes....I lost those things along with a thriving career over the past fourteen years -- others have lost as much or more.

 

Here is the good news -- you can get things back -- a little at a time that small desire to do a bit of crafting or wanting to walk out the front door -- will happen. 

 

Take it slow - finish all the necessary testing -- then remove gluten -- then be patient -- I was not born patient - far from it -- Celiac taught me patience -- even more good -- those of us that lost much....greatly appreciate the little stuff and I for one enjoy finding joy in all the little stuff!

 

Hang in there :)

Hi Lisa and thank you.

It seems odd to think food can cause so much trouble, especially the psychological aspects. I was begining to think I was going mad till I read others suffer the same things.

Jo

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I noticed I got really insecure when I continually eat gluten, to the level where I can now understand why I stayed in an emotionally abusive relationship for 3 years. Celiac's can mess with more than just your gut. Well, the messing with your gut can mess with your mind. The types of losses in courage and determination can be associated with depression, which (according to this article: http://www.psychologytoday.com/blog/the-breakthrough-depression-solution/201105/is-gluten-making-you-depressed) is over 4 times more likely for people with celiac disease. This is because over 90% of our serotonin is produced by the gut (http://www.scientificamerican.com/article.cfm?id=gut-second-brain). If you listen to or read any anti-depressant medication advertisement, they mention dopamine and serotonin as being key to "fixing" depression. But if your gut is damaged, you can't absorb nutrients or produce serotonin --> depressive symptoms. The good thing is, that if your loss of determination is caused by a nutrient/hormone imbalance from celiac's then once your body heals on the gluten free diet, you should go back to what you thought of as normal. I've found it really helpful to have people to talk to about all of the issues as well. I

 

(Full disclosure, I do study psychology and have a personal interest in the biological basis for pathologies, but I haven't done any personal research on these topics. I've cited my sources so feel free to take a look and form your own opinions)

Thank you EmiPark. It is good to be able to discuss your fears etc with people who understand. I have been feeling a bit low just lately and getting it all out on here helps a lot. I am just expecting to be told the blood test is negative.

Jo

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Hi Dozey,

 

Celiac disease and malabsorption can cause lots of different mental symptoms.  This thread talks about some of them.

 

Short temper thread

http://www.celiac.com/gluten-free/topic/34917-anger-quick-temper-depression/

Thanks again, I'll have a look.

Jo

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