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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Need To Vent About My Own Stupidity!
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15 posts in this topic

I'M NOT SURE IF THIS IS THE RIGHT PLACE TO VENT, BUT HERE I GO!!

 

I have been gluten free for almost 3 months and have been feeling better than ever (with the exception of illness from CC a few times).  This morning, I go to the gas station and decide I want beef jerky (the very LARGE bag, just to be clear).  I don't know why I wanted beef jerky for breakfast, but I THOUGHT I had looked up once that it was gluten free!!  Well, in a matter of about 10 minutes I DEVOURED the entire bag!  While at my desk, I start to feel dizzy and weak all of a sudden. I immediately started thinking, "I feel like I've been glutened." So, I grab my empty beef jerky bag and read on the back "CONTAINS WHEAT" in big, BOLD letters!!!  How in the WORLD did I not look for this???  I have not made this kind of mistake since the beginning!!  Of course, now I feel like an idiot since this is COMPLETELY my fault...Just waiting it out to see how severe it gets...and hoping I don't have to leave work!  I can already feel the brain fog and tears coming on as I type.  Hummm...Am I the only one who has ever done this?

 

Yours truly,

 

The Glutened One

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No, you aren't the only one and you won't be the last. 

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Oh no. :(. I hope you feel better quickly!

And no, you are not the only one.... I would be very surprised to meet a celiac who had been gluten-free for a few months and not been gluten end at least once.

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I think we let down our guard just a little bit after a couple of months.  I bought something in a rush and didn't check it until I got home.  Had to throw it out -- what a waste!  Teaches us to remain vigilant.

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I think we let down our guard just a little bit after a couple of months.  I bought something in a rush and didn't check it until I got home.  Had to throw it out -- what a waste!  Teaches us to remain vigilant.

I agree!  I'm trying to think of this as a lesson learned, but I know I'm going to have a rough few days ahead of me...Not looking forward to that at all. :(

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I've been gluten-free for 4 years. And just the last few months, I glutened myself with soy sauce. Three times. Yep, three freakin' times, from the same bottle. I knew I had been glutened, but couldn't figure out what it was because everything in my house is gluten-free (or, so I thought). I was blaming it on the fish food (even though I carefully wash Mt hands after feeding my fish). It took my mom pointing out the wheat listed on the sot sauce label when she was at my place. It happens! Not that it doesn't suck when it does.

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You are most definitely not the only one! At a party I was being pushed to 'just try a little' of this lady's special dip. Everyone else tried it and were scowling at me expectantly. I figured I would just have a dab on the end of a veggie stick....WRONG. Whatever the hell it had, I was gassy , bloated and had heartburn nonstop for hours, I had to go home early because it was was getting embarrassing. Never made that mistake again lol.

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I was extremely stupid last week and ate some chinese food. I broke out with a rash on my toes and ankles along with some blister type sores. It burned alot. I have had celiac disease for 8 mos.. Whenever i have been glutened i get the bloating, gas, headache, stomach ache and i have on going constipation. I know how stupid i was but i love chinese food and thought i could deal with it. I have learned that it is not worth it! Is there such thing as mourning the food that you loved but can no longer eat? I know that sounds foolish but thats how i feel when i watch my family and friends eat whatever they want. But this really scared me and i learned my lesson. My feet are still healing. Thanks

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Oh, I definitely mourn the loss of all my fab foods! For breakfast, I used to eat cereal, donuts, or muffins! For lunch I ate subway EVERYDAY! For dinner, I ALWAYS had bread!! Just knowing I can't have these anymore make me pretty sad sometimes...or going to the mall and not being able to eat in the food court with everyone else. All of that sounds silly...but I think it's completely normal to miss those things! I do try to find substitutes for my favs! If Chinese is one of yours why don't you look for a gluten-free recipe to manage your craves? Just be sure to get gluten-free soy sauce! :)

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Three months is the infancy stage for being gluten free and there hasn't been one of us that didn't make a mistake like this in the beginning.  Lesson learned, you pick up and move on. It takes a while before your brain is trained to automatically go into "check the ingredients before it lands in my mouth" mode, so don't worry about it.  You won't be doing this down the road and it does serve as a reminder of why you need to be gluten free.  The only problem is that you become more sensitive as time goes on and when you do take a hit, it's bad.  I have been gluten-free for 8 years now and I had a rare incident with cc a few months back and I couldn't believe how sick I got.  It was short in duration but very violent.  But I'm back on the horse, so to speak!

 

You know, there are some excellent breads out there so no reason to think you cannot have bread anymore.  That may have been true 20 years ago but not today.  Canyon Bakehouse has the best bread and I have served it to the gluten eaters and they did not know it was gluten-free.....really. Not to mention homemade, gluten-free bread, either. And once you start to feel 100% better and gain your health back, you'll find that the food in the Food Court is not so appealing anymore.  High in fat and salt, it's the reason so many people are overweight and feeling bad today.  Trust me, after being gluten-free for a long time, I don't miss anything because I either make my own or find fantastic substitutes for everything I miss.  You'll get there!

 

I hope it's not too bad for you and you feel better really quickly!

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I managed to test the gluten full pasta I was cooking for my kids. Preeeetty dim :)

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I managed to test the gluten full pasta I was cooking for my kids. Preeeetty dim :)

Omg, I did the same exact thing early on (not for kids, but for at the time bf) - was cooking pastas separately - his pot, my pot...his spoon, my spoon.  Checked to see if mine was done by munching on it.  Then did the exact same thing with his...really??  I blamed the healing brain fog ;-)

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Oh... trust me... you're not the first and won't be the last. I've been doing this for TEN years... and picked up a bag of Rudi's (Rudy's??) hot dog buns thinking that all of Rudi's offerings were gluten-free. Two hours after I ate, I spent the next 3-4 hours sicker than I've ever been. The next morning I read the bag... WHEAT hot dog buns.

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WOW!  Last week I did the exact same thing with the exact same food!  I was working in a part of my territory that offers little of nothing to eat for our diet.  I was in a gas station and grabbed a bag of "Old Wisconsin" beef sticks.  I'd looked this brand up before and everything checked out.  I grabbed a different flavor this time.  Took my first bite and thought "man this is good!"  So instinctively I flip the bag around to read the ingredients when all of a sudden...

 

Off the top rope....

 

"contains wheat"--SLAM!!!!

 

I hadn't swallowed yet.  Grabbed the "One Stop" bag and spit it into the bag.  At the stoplight.  In front of others.  Everyone must have thought I was getting sick but no, just another day!!!  Shook it off, grabbed a can of nuts and rolled on.  #wheatsucks

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Thanks Jaimie for the advice and your thoughts. I have found a couple recipes for chinese food so if i want it that bad again i will try them. Thank you, Nancy:)

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