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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Esophagitis Not Healing
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8 posts in this topic

Just had my follow up EGD yesterday,good news was my duodenum has healed no ulcers. But still experiencing esophagitis. Started on Carafate along with the Protonics I was taking. I drink a significant amount of coffee in the morning and diet pop. I also have a great deal of stress in my life besides the Celiac diagnosis. Do you think the caffeine could be a real issue with not healing well? I'm learning how unhealthy any kind of pop is for your body. Any suggestions would be appreciated. Thank you

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Just had my follow up EGD yesterday,good news was my duodenum has healed no ulcers. But still experiencing esophagitis. Started on Carafate along with the Protonics I was taking. I drink a significant amount of coffee in the morning and diet pop. I also have a great deal of stress in my life besides the Celiac diagnosis. Do you think the caffeine could be a real issue with not healing well? I'm learning how unhealthy any kind of pop is for your body. Any suggestions would be appreciated. Thank you

Hello! My son has Celiac and GERD/Reflux and my father-in-law has a severe case of GERD as well. My father-in-law has completely eliminated coffee (and tea) as well as soda from his diet and he is now able to eat things that he used to never be able to eat. So it's clear that some healing did indeed take place upon eliminating those 2 items. All of the reading I've done on GERD states that coffee and soda are big no-no's. I know it's hard to give them up, but as long as you keep agitating your esophagus, you're healing will be delayed. I heard a product called DGL helps people heal. I just ordered a bottle for my son last night. Crossing my fingers b/c he is in a lot of pain. Good luck!

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In case it helps I got rid of my Reflux (the one that comes up at night) when I stopped putting pepper on my supper.

 

I found that out by chance.

I haven't tested it since. Who wants to wake up in a startle.

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I had to get up from the table and I know there was nothing in my body that was not supposed to be there.  I have been following the diets thoroughly.  Any ideas?  I felt like my Esophagus was closing up on me.  End result was spitting up in the bathroom, and then I felt better.  No foods, came up, just coughing up, some fluid and all was well, I could breath and the tightness/pain went away.

 

I have no food/drink vices left, its all just meats and veggies, water and green tea.

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Just had my follow up EGD yesterday,good news was my duodenum has healed no ulcers. But still experiencing esophagitis. Started on Carafate along with the Protonics I was taking. I drink a significant amount of coffee in the morning and diet pop. I also have a great deal of stress in my life besides the Celiac diagnosis. Do you think the caffeine could be a real issue with not healing well? I'm learning how unhealthy any kind of pop is for your body. Any suggestions would be appreciated. Thank you

caffeine relaxes the cardiac sphincter, the muscle at the bottom of the esophagus.  Don't just stop all caffeine because you may end up with a withdrawl H/A.  Also, are you taking the Carafate as order? and in tab or liquid?  the liquid/suspension, would be more appropriate in your case.

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I had to get up from the table and I know there was nothing in my body that was not supposed to be there.  I have been following the diets thoroughly.  Any ideas?  I felt like my Esophagus was closing up on me.  End result was spitting up in the bathroom, and then I felt better.  No foods, came up, just coughing up, some fluid and all was well, I could breath and the tightness/pain went away.

 

I have no food/drink vices left, its all just meats and veggies, water and green tea.

Refluxing does not necessarily have to be acidic based. There is no acid reflux as well. My child had both reflexes and MEDS did not stop the refluxing. Might want to google that.

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Do you have any specifics to the damage in your esophagus? 

 

In my daughter's case of Eosinophilic Esophagitis, there is an airborn allergen as well as food "triggers".  (More cases are diagnosed by symptoms that "flare up" late summer to early fall.)

 

Here is the odd part.  There is a connection to Celiac and EE.  A major gluten free product line uses pea starch in a lot of their products.  For some reason peas tend to be a higher reactive food allergen.  In my daughter's case we did the elimination diet to try and determine what the food triggers are.  She needs to avoid gluten (that diagnoses was years before), fish, shellfish, eggs, and peas.

 

Keep a food journal, you might find different things make symptoms worse.  (If it was determined to be eosinophil involvement ~ keep in mind once eosinophils have been activated, they stay actively damaging tissue for up to 12 days.)

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My GERD damaged my throat. It took about a year to heal. I ended up cutting out tea, soda, milk (it would coat my throat and make it irritated, no allergy though and i was able to handle cheese just fine), spicy, acidic and anything that triggers the acid reflux. I have never drank coffee either.

 

Out of that list, I have only gotten milk back.

 

I fully understand that feeling with your throat.

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