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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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Hello, I am LeeAnn, mother of 5 children and wondering if my son and myself may have gluten intolerance. My son worries me the most. Several months ago my son started having "episodes" they last just about 10 seconds or so but we thought they were seizures. He starts to mumble and just wonder around, very confused but he knows who we are and where hes at. But he answeres in very short and shallow words/voice. Then he snaps out of it and can tell you that he just had an episode.  They are coming more frequent and sometimes followed by a headache and sometimes not. He does sleep walk(always has) so I thought of this as well.

We had an MRI and EEG done followed with bloodwork. The only concern is his liver enzymes were slightly elevated so we will repeat the bloodwork next week. We see neuro again on Monday to get his ideas of that this may be. But the thought of gluten intolerance came to my mind for some reason....

My son does not eat healthy or well, he is a texture guy and only eats sweets and they items that would be good for him are grains like sandwiches, chicken nuggets, pizza, bread sticks, and such. So he would always be on "gluten overload".

 

Has anyone experienced episodes like what I described? Also here are mine and his other symptoms that alert me to gluten intolerance.....please tell me what you think

(son) very thin and pale

(me) larger and gained alot of belly fat over the last 5 years

(son) hemaglobin D diagnosis when born

(both) ibs, intestinal issues

(me) bruise easy

(me) memory loss and just out of it alot

(both) I have dermatiasis(even cerebral) and son has eczema

(son) lots of stomache aches

(me) anxiety attacks,depression, was getting sores on both sides of tongue, my knees and legs have been troubling me for some time now

(son) sore/stiff legs occasional

 

I am sure there are more symptoms and of course I am almost 40 yrs old so some of ine may be due to age but my biggest concern is my sons episodes and if anyone has experienced any thing like this.

 

Thanks

LeeAnn

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My eldest spaces out when she's had gluten, it's bizarre

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My eldest spaces out when she's had gluten, it's bizarre

It is wierd isn't it? When the MRI and EEG came back normal, I was just at a loss as to what this might be??? But my first instict even pre"seizure" thought was dietary as he is soooo finicky about what he eats.

We also tested his blood sugar during an episode and it was normal.

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Sounds like u need to ask doctor for a celiac test, it may be more serious than a intolerance. I can relate to some of what you've described w/ my kids. Gluten-Free may be the answer. You have enough symptom for doctor to suspect, but too often celiac is overlooked.

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There was an episode of a show called "mystery diagnosis" where a little boy had weider "seizures". No one knew what caused it. Til finally he was diagnosed celiac (the neuro stuff was partly due to malabsorption).

I'm on my phone, so I can't post a link. But I'm pretty sure I found it on YouTube by searching for "mystery diagnosis celiac". The show even had a clip of a home video of the child having one of these episodes. You might want to check it out

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Thanks Everyone! I found the YouTube video (Mystery Diagnosis), that boys episode reminds me of my son  a little bit. We see Neuro tomorrow and I will definately be asking for a Celiac test for both of us.

Thanks

LeeAnn

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