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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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Do I Need To Do A Gluten Challenge After Being Low-Gluten?

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I've been eating reduced gluten since January, but not fully gluten free.  I haven't been eating it every day, but maybe once a week a small bowl of pasta or a slice of pizza, a granola bar here and there (maybe every other day?), and maybe one beer per week.  I also haven't been avoiding foods that contain hidden gluten, like sausages, soups that use flour, etc.  Does that count as typical gluten consumption or do I need to do a gluten challenge?  I've started loading up on it a bit more about two weeks ago, cereal every morning, and a granola bar in the afternoon...  Should I wait a few weeks to test, or should this be enough seeing as I wasn't fully gluten-free before.   Before January it was the full cereal in the morning, sandwich for lunch and pasta for dinner.

 

I'm about 99.9% sure I have Celiac (thyroid condition, anemia on and off throughout my life, hand/foot swelling after eating gluten, joint pain/stiffness, and hand/arm numbness, GERD/reflux within an hour of eating wheat, depression during months where we rely more on bread/pasta than on meat/veggies, random nausea/vomiting, eczema next day after eating wheat.. you'd think my doctor would have connected the dots by now?).  I need the piece of paper to get my family to respect me wanting to be gluten-free.  My husband does the cooking and unless I have an actual medical condition gluten-free is just a diet that I can cheat on a couple times a week.  He doesn't believe that it affects me the way it does and often my only choices are the pasta he made for dinner or just not having dinner at all (or having sliced cheese and pickles for dinner). 

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I don't think there is any real way to know if you were consuming enough gluten, by eating gluten-light, to have a positive celiac test.  People produce autoantibodies at different rates so it would be tough to predict.

 

I would guess that you are probably eating enough, especially since you have been increasing your gluten consumption to at least 2 servings a day.

 

Good luck with the tests. I hope you get very clear results.  :)

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No the doctors don't connect the dots  :( .

The specialists are even worse as they are so focussed on the one organ they treat.

 

 

On the bright side it's a good time to do a Celiac blood panel before going completely gluten free.

Just make sure you are eating bread daily in the weeks before the test.

I read it's 4 slices of bread for 3 months for those who were gluten free so maybe you won't need to wait as long.

It's good to mix whole wheat and white bread and pasta.

 

 

 

This is the  Celiac panel that I did:

 

Total IgA
Transglutaminase IgA         tTG-IgA
Deaminated Gliadin IgA     DGP-IgA
Deaminated Gliadin IgG     DGP-IgG

 

 

 

It's best to check with your lab first and then give the lab's Celiac test panel code to your doctor

as he problably won' t know what test to give and he'll just give the tTG test alone (not good enough).

 

PS: Potatoes can replace pasta.

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