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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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3 posts in this topic

I should point out that I have zero trust in my current doctor who ordered these tests. It's a long story, and I trust the opinions and knowledge of you forum moderators and participants more than my Dr. at this point.

 

Doc said she was running a Celiac panel. Turned out it was only 2 tests. These are the results:

 

Immunoglobin A, Qn, Serum - Result (264) Reference 91-414

Endomysial Antibody IgA - Result (Negative)

 

Everything else was in range except for my Vitamin D which was very low (14.4) Reference 30.0-100.0

 

My biggest question!

Are the two test she ran conclusive that I'm negative for Celiac?

 

 

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unfortunately, those two tests do not disqualify you from having celiac.  In fact, the first one is to make sure you make enough igA antibodies, which you do, and although EMA is highly specific to celiac, it doesn't become positive until there is major tissue damage.  Your low Vitamin D is suspicious.  Can you go back and ask specifically for this panel:

 

DGP igA/igG

ttg igA/igG

EMA (already done)

Total igA serum (already done)

 

good luck!

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Nope you don't have Celiac....   (just joking)

 

Me and problably powerofpositivethinking are banging our heads on our desks at how dumb the doctor is to order just the one test.

 

You have lots of  Immunoglobin A  so that is the good news.  (mine are quite low just within the norm).

By this number being enough, it means you have enough for the  IgA related tests to work. 

 

To echo  powerofpositivethinking here is  the Celiac panel that I did:

 

 

 

Total IgA
Transglutaminase IgA       tTG-IgA
Deaminated Gliadin IgA    DGP-IgA
Deaminated Gliadin IgG    DGP-IgG

 

 

 powerofpositivethinking   adds    tTG-IgG to the panel.

 

Phone or go online to get your local labs code for the panel then when you see the doctor, you just give her the test code.

 

and of course be sure that you are actively eating about 4 slices of bread for 12 weeks prior to the test.

(white and brown bread)

 

 

About the vitamin D:

my D 25 was low normal but my D 1.25 was over the limit so don't take supplements till you have your D 1.25 levels checked.

 

 

Thanks for the compliments... :D .... yes we know more  :rolleyes:  because we read about each others experiences... :unsure:

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