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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Celiac With Pacreatic Cancer
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3 posts in this topic

I was diagnosed with Celiac disease two years ago.  I was told to start a gluten free diet and come back for blood tests in three months.  When I went back for blood tests, my liver functions were abnormal.  Further testing confirmed I had pancreatic cancer.  I went through chemotherapy and the Whipple procedure.  Today I am cancer free, but a lot of my pancreas was removed, along with my gall bladder and some of my stomach.  I was told not to eat fatty foods.   I was told the symptoms I had for Celiac were similar to those of pancreatic cancer.  I would like to hear from those suffering from Celiac. What happens when they eat gluten?  Do they know it immediately or does it take a day or two to cause symptoms?  Once symptoms begin how long before the bout is over?  Since I had the two problems at the same time I don't know which is causing my issues.  I try to follow the gluten free diet, but I know it's easy to conume gluten unknowingly (especially in restaurants).  Please help.  Thank you.

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Congratulations on beating the pancreatic cancer! Unfortunately, that is one of the cancers that tends to show up more often in celiacs than in the regular population. I'm glad you got a diagnosis and are eating gluten-free now.  :)

 

Celiac disease has a lot of symptoms and it varies from person to person: some people get neurological presentaions, it affects skin and hair, some poeple become anemic... it's pretty broad.  Here is a pretty good list of symptoms: http://www.celiac.com/articles/1106/1/Celiac-Disease-Symptoms/Page1.html

 

When I eat gluten, I get a general feeling of "unwellness", a bloated stomach, a stomach ache, headache, and fatigued. If I eat it often and for a long time I lose hair, get constipated, gain weight, develop joint pain, get pimples, and my back gets sore more often (I have a back injury).  The first few symptoms I listed hit within hours and last a few days, the other symptoms last weeks or months (but need more than a tiny bit of gluten to set them off).

 

I don't eat in restaurants very often - I don't consider them to be very safe places for me. When I do eat out, I tend to go with salads or eggs. I have had some bad luck ordering off of supposed gluten-free menus so I'm a bit gun-shy now. I tend to bring in my own food - I have young kids so no one questions us when we order a milkshake and bring out our own lunch.  LOL

 

Best wishes.  I hope you continue to be well.  :)

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Hi and welcome to the forum! :)

 

Symptoms and reaction times do vary an awful lot with celiac disease.  Some people get no GI symptoms at all.  Some react in an hour or less and some after a day to two.  It is not a set thing.  I used to react within an  hour myself.  I am not sure I still would but don't want to try to find out!  And symptoms for me could last a month or more.

 

Congrats on surviving pancreatic cancer too.  That's great!

 

Some starting the gluten-free diet tips for the first 6 months:

Get tested before starting the gluten-free diet.
Get your vitamin/mineral levels tested also.
Don't eat in restaurants
Eat only whole foods not processed foods.
Eat only food you cook yourself, think simple foods, not gourmet meals.
Take probiotics.
Take gluten-free vitamins.
Take digestive enzymes.
Avoid dairy.
Avoid sugars and starchy foods.
Avoid alcohol.

Helpful threads:

FAQ Celiac com
http://www.celiac.com/gluten-free/forum-7/announcement-3-frequently-asked-questions-about-celiac-disease/

Newbie Info 101
http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/

What's For Breakfast Today?
http://www.celiac.com/gluten-free/topic/81858-whats-for-breakfast-today/

 

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