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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Blog Entries Posting To Draft Only
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16 posts in this topic

Hi there,

I have a few blog posts that seemed to work fine then after them they just all appear as pink and say draft ... how do I publish them please?

Many thanks in advance for help x

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That is too bad, Usually on the upper right of the draft you get options and can select Publish Immediately.

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nope just double checked it wasnt the fog that lives in my head... I can go into options on the draft blog entries it has 2 options edit and delete - if I chose edit I can then submit changes ... It looks like maybe thay are awaiting approval from somebody before they show??

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Oh, too bad again, I was waiting to read it.

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....and It Continues ...

Posted by Ohmyword, 09 May 2013 · 7 views (I tried to edit and it changed date!) actual date: 22nd April

 

I was slightly annoyed with our beautiful sunny day yesterday because of ....well, basically the sun ... it was too, well ... sunny! the light hurt my eyes...I drive around with my sun visor down (and have done for years) because the light is to bright - the computer back light is turned real low (DH keeps highering it up); and driving at night wow who needs drugs! the lights from street and headlights - its like looking at starbursts with rays of light shooting from the centre.

My DH will be pleased about the next one ....there is a reason for my low sex drive thats not just post baby/breast feeding/co-sleeping related - He now feels happy at the posibility of some action before I plan to stop feeding ..... in a year or so!

Physio appt - I showed some improvement ... but need to try harder! I dont physically have the time in the day when the baby is not attached to me! ... although she did show some appreciation for the reintroduction of gluten hindering my progress ... she continued to manipulate my back .... several rounds of paracetamol and ibuprofen later - it still hurts! .... or am I a wuss?!

Generally I'm feeling old 'normal', head in a fog, tired, lacking in concentration - unable to get to the end of a conversational point without asking - what was I talking about!?, no motivation,headachy etc etc etc ... ... yada yada .....

The days are passing though, and with every blog entry I'm a day closer to my gluten free, happy healthy, non farty days :)

Until tomorrow ... or sooner if I find more symptoms! lol! x

Quicky

Posted by Ohmyword, 23 April 2013 · 3 views

 

Health visitor seemed to have a knowledge of gluten intolerance/celiac and seems to think that babys 1 off mucous nappy is a reaction to my change in diet and not to worry about it... still not heard back from breast feeding association (although tbh this is the first time I have sat down today and not checkked emails)- fx that they think so too.

As a complete turn around to my normal toileting issues I now seem to be constipated however Im feeling less bad and more old 'normal' today although my nails are history (again) They were just starting to get nice ...big sigh ...

Its my birthday today - Im 35 - mid thirties, I welcome my approaching middle age especially as Im going to get a complete health boost when I stop eating yacky gluton as of 8th May and will feel like Im a teenager (well in my twenties) compared to how I am presently.

Only a quick one tonight getting an early night x

2 Gluten Days To Go :)

Posted by Ohmyword, 06 May 2013 · 2 views

 

6th May: A beautiful warm day - had family round for a bbq (those willing to brave the dreaded chicken pox anyhow) and only 2 gluten eating days to go - hoorah - I have tried to enter other posts but my STUPID computer keeps deleting my entries! also I have 2 entries sat off with draft marked on them and dont know how to get it off anyhow.....I feel dreadful headachy, achy in general and tired, tired, tired.  Im not sure if I have had a reaction to something Ive eaten today but my throat feels really tight - like somebody is crushing my windpipe - I have had this on and off (mostly off tbh) for a number of years - to the point (at its worst) where I wouldnt even let my partner touch my throat ... Im thinking that this could be a symptom???...everything else is!

My last failed entry: my sadness - I was (and still am) feeling a little low, unmotivated and a little defeated - even though I know that my gluten free days are litterally around the corner and my body will recover from this hell I have put it through ... The revolution that I may have had a surgical proceedure some time ago for no point what so ever has made me sad, sad and angry - nothing major - a laproscopy key hole - which left a (not so neat) scar under my tummy button, its purpose - to help find the source of pain on intercourse - when they found multiple small cysts on my ovaries but nothing to explain the pain I was shipped off to counselling ... because obviously it was (is) in my head - the counselling didnt work and like most of the reasons I have been to the Gp over the years I just stopped asking why and have lived with it - like the tiredness, I get a 'blood tests come back fine' from the Dr.'s receptionist and thats that - occassionally I get iron tablets - so more recently I just self prescribe multi vitamins! Also the knowledge that the dryness down there may also be attributed to this is maddening - I have lived with this for all of my adult life.

Im worried about going into hospital on Thursday - not for me but for my baby - he refuses to take bottles or tippee cups and is hit and miss taking puree'd foods - I know he wont starve over the course of a day but he wont be happy - he has to start taking formula soon though as im back to work in July ... God help my dad who has the daunting task of looking after him for the day (incidentally - the first day I have ever left him).... Thinking about it - maybe I am slightly anxious about going into hospital and maybe this is the reason for my throat feeling like its closing up ... hmmm

I really need to look into the best way to help my body heal after the last 3 weeks (even though I was only off gluten for a matter of weeks the first time) ... thats my goal to help tomorrow pass a little more quickly ....

Im pretty sure there was something else I was going on about in the last failed post ... but cant remember! ...

 

My Last Doughnut.... :)

Posted by Ohmyword, 08 May 2013 · 1 views

 

It will be with great joy this lunch time that I sink my teeth into my last ever glutenous doughnut - I only have 13 and a half hours left of eating this stuff that has made me sick for so many years I CANT WAIT!

Scopy tomorrow, not sure what to expect but looking forward to the first day of the rest of my life :)

.....just to add to my ever growing list of suspected gluten induced symptoms .... It doesnt happen very often but when it does it leaves me really disorientated and sick to  my tummy .... generally its when i have been driving if you imagine (like in the movies) when somebody gets ran at and pushed backwards by the chest but  really fast and everything around them rushes past ... then that - as I say maybe once or twice a year ... luckily I recover quickly :)

 

Endoscopy Day

Posted by Ohmyword, 09 May 2013 · 1 views

 

Its over - not as bad as I thought - didnt end up having the sedative either so I could get out quicker and get home to my baba - Don't get me wrong it wasnt nice being able to feel the tube moving up and down my throat or being aware of this thing moving around inside my stomach but it made it a hell of a lot quicker.  Dr. couldnt see anything other than that my tummy was distended (but I could have told him that!) and only one biopsy taken :/ had understood that he was taking more than one - oh well cant do anything about it now...got to wait a couple of weeks for the results but celiac or ncgi.....This is the first day of the rest of my gluten free life!

Im so happy that my body can now start to heal itself, with my help - and that Im going to start to feel better - when I get my results Im going to write to my dr. (first time I had seen her) and thank her so much as her action will make a major difference to my heath (once this stuff is out of my body) Im going to give her a list of all of the other symptoms ive had too so that it may help her help others like she did me.  And its so easy just stay away from gluten no major surgery or life long medication Im so so thankful.

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I'm not sure what is going on. I just tried it. I saved a draft and then had a little box to pick options - publish, edit and delete were my choices. You are saying that you click the box and publish is not an option? That's what I think you are saying.

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yup kareng thats exactly what im saying :(

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yup kareng thats exactly what im saying :(

This is a puzzlement! It worked for you before.....you have several blog posts. I'm referring this to a higher power...Peter or Scott

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This is a puzzlement! It worked for you before.....you have several blog posts. I'm referring this to a higher power...Peter or Scott

Thank you x

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Something has indeed gone wrong. The problem is reproducible.

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Something has indeed gone wrong. The problem is reproducible.

Sorry Im not sure if its my baby addled brain, gluten induced fog or the fact that Im a couple of red wines in .... is it some thing Ive done/not done ??

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Sorry Im not sure if its my baby addled brain, gluten induced fog or the fact that Im a couple of red wines in .... is it some thing Ive done/not done ??

Nothing you have done. Looks like a system issue.

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I have published the missing entries, but of course they show as being posted today--since that is, in fact, when they were published.

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Nothing you have done. Looks like a system issue.

Okies ... will leave it with you! x

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Okies ... will leave it with you! x

They are appearing now. Peter tweaked something and made them appear. It seems to be a system issue that they are looking into.

You could probably edit them and add a line that says something like " written on April 25" or whatever date.

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We believe that this has been resolved. If anyone has any more problems trying to publish, please post here or send me a personal message.

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    • Hello Anonymous, and if nobody has said as much yet, welcome Don't worry (difficult to do when it can cause anxiety :P) it's very early days and you have a lot of healing to come.  If you've not already seen it there's advice and further info here:    It gets easier over time as checking becomes routine, you know your 'safe' products and your eating pattern changes. You'll get there  Maybe start a thread of your own if you'd like some input from others? Finally, back on topic. My Aunt has narcolepsy and although she's fiercely resistant to giving up gluten she has now made a connnection to eating bread and it's onset. As often, not conclusive but suggestive...
    • Hello again   Well first thing is the - Usual disclaimers apply... and this is something you have to follow up with your doctors as you know. But it's helpful sometimes to get another perspective so here's this layman see's from outside.  What I have seen from the various results posted here is that people's numbers vary wildly and, just as important, the numbers often don't bear any direct relationship to the level of intestinal damage revealed via endoscopy. Ultimately although you're not scoring much above positive, you are scoring a positive  and there are a couple of other risk factors you've mentioned that are suggestive if not conclusive - you have another autoimmune which raises the odds of having another one for example.  You've had two tests that are positive. The purpose of taking the second test was either to invalidate or confirm the first. I'd suggest it's achieved the latter, at least inasmuch as a GI may want to check you via endoscopy. That's still the 'gold standard' of celiac diagnosis and would give you an idea if there's any intestinal damage. I suspect with 2 positive tests and the history above that's what they'll suggest.  If your doctor or GI doesn't want to proceed with that you have a decision to make. Push for a second opinion or new doctor or if you're done with testing give the gluten free diet a proper try. Make a journal and see if some of those subtle things you reference may actually be symptoms. Fwiw, there are a lot of people here whose thyroid issues improved dramatically once they were gluten free, so whether celiac or gluten sensitive you should certainly give the diet a try. Only however once the testing is completed and remember: 
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But if you are not celiac or gluten-sensitive (celiac before it starts to wreck your small intestine), going gluten free isn't healthy - you can do some research on this if it interests you. If you feel bad/unhealthy after going gluten free it's probably a sign. Good luck, also know that you might come to a point of stress in your life that can start celiac's destructive path. Ultimately, it is your body, and you should not feel forced or hesitate to act on health issues that impact you.
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