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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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Dealing With Being Asymptomatic

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I am a 19 year old celiac and have had it for five years. Prior to being diagnosed, I was asymptomatic. While a lot of people may consider me lucky for never having to deal with the crappy feeling of being "glutened," it does have its downsides. For example, I am never sure whether something I ate had gluten and sometimes, I feel I exhibit some symptoms of being "glutened" but am never sure.

 

Well, today I have been feeling terrible. I have seriously gone to the bathroom around ten times today not feeling well and am itchy and sweating a bit more and I feel hot. Of course, I am wondering if maybe I did somehow eat gluten and that is the cause or if it's just regular food poisoning or just a bad bout of something. And that's my issue......I never truly got a feel for how it feels to be contaminated so when I have stomach pains or something along those lines, I never am sure whether it could be gluten or something else.

 

So I guess I am asking......can someone give a summary of how they feel when they eat gluten? How do you differentiate this from something else?

 

PS: I know the symptoms are all over the web and I have looked many times at them and it just gets so confusing. I just thought personal help would be better for me to understand the actual symptoms of the disease, as I never truly "experienced" them knowingly ever.

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I am not very symptomatic...and that said my symptoms have changed multiple times over the past two years.

The only way I figured it out was that "it" happens more than once after eating out. And that's the ONLY time I feel "it". Then, I'm pretty sure it's gluten since that's the only thing I avoid.

I've gone from a headache in 2 hours to a ball in the belly, to stomach clenching at 24 hours (and continuing for 2 weeks) to bloated belly instantly.

It's irritating.

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I am a 19 year old celiac and have had it for five years. Prior to being diagnosed, I was asymptomatic. While a lot of people may consider me lucky for never having to deal with the crappy feeling of being "glutened," it does have its downsides. For example, I am never sure whether something I ate had gluten and sometimes, I feel I exhibit some symptoms of being "glutened" but am never sure.

 

Well, today I have been feeling terrible. I have seriously gone to the bathroom around ten times today not feeling well and am itchy and sweating a bit more and I feel hot. Of course, I am wondering if maybe I did somehow eat gluten and that is the cause or if it's just regular food poisoning or just a bad bout of something. And that's my issue......I never truly got a feel for how it feels to be contaminated so when I have stomach pains or something along those lines, I never am sure whether it could be gluten or something else.

 

So I guess I am asking......can someone give a summary of how they feel when they eat gluten? How do you differentiate this from something else?

 

PS: I know the symptoms are all over the web and I have looked many times at them and it just gets so confusing. I just thought personal help would be better for me to understand the actual symptoms of the disease, as I never truly "experienced" them knowingly ever.

I am also an asymptomatic Celiac. But while I was eating gluten before my dx I felt horrible all the time. I was afraid to go to the doctor because I thought I might have intestinal cancer. After a few months gluten free I realized I hardly had a reaction anymore. But I know I have celiac, I had every classic symptom plus complications that could not have been anything else, so I avoid it at all costs. Its hard to tell when I've eaten gluten, sometimes my feet and hands ache but even that might only last a couple minutes. Several times I have had random symptoms like itchy skin. By contrast, my other allergies involve hours of intense stomach cramps, nausea, or vomiting.

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