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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.
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Stage 2 Kidney Disease? Just Noticed Lab Result.
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My PCP in FL (I moved back to Ohio last year) is back from maternity leave so I emailed her an update that I'm pursuing possible Celiac or Gluten intolerance as cause of some of my medical issues. I told her the Celiac panel was negative but I have appt with dermatologist this week. I mentioned my SED rate was 65, and she replied back that was very high (I knew this), said Celiac would not cause it to be THAT high and wanted to know what reason the doctors here gave me for it being so high....and asked me to send her the labs. I told her I have not gone back to the GI who ran those tests, waiting until after the Derm appointment in getting the labs to fax to her I noticed my GFR was 81 and under it the range stated it was Stage 2. So I look it up and it's Glomerular Filtration Rate...related to creatine in blood...kidney function. 

 

Is that common with Celiac/Gluten intolerance? Or do I have something else going on?

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Some renal issues can be associated with celiac and other problems. Infections and other dietary situations come to mind. Many renal insults will improve when the cause is identified and resolved even those worse than what yours appear. Stage II is better used to identify damage that is progressive and untreatable.

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My mom is stage 4, she is 66 and had told me it was due to her chemo and radiation from breast cancer 12 years ago....her father (my grandfather) also had kidney issues I believe, he drank a lot though. Thankfully I do not have diabetes or high blood pressure...I do wonder if it's the lymphedema issue that contribute to protein in urine. 

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That is a possibility. Urine isn't supposed to have protein, it's a molecule that is big and can block tubules. How is that being treated?

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How is what being treated? The lymphedema? It's in maintenance, There is no treatment other than compression therapy, I have compressed all that can be compressed, wear garments to keep legs from swelling up with lymph fluid....lymph fluid is protein rich fluid.

 

Mom's kidney issue just being monitored and BP being controlled. 

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Do you know what caused your lymphedema? 

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Being born.  :) I have actually primary lipedema which causes abnormal adipose tissue to accumulate in my hips, thighs, and upper arms...that excess tissue puts additional pressure on my lymph system causing the lymphedema in my legs.

 

http://women.webmd.com/guide/lipedema-symptoms-treatment-causes

 

Actually no gluten diet is recommended by some lipedema doctors.

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Your doctor may decide on more aggressive and combined treatment (CDT) or may decide that would put further stress on your kidneys. I'm sorry, I don't know. 

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I really haven't had treatment for lymphedema for years because it's maintained by wearing my garments, I just went yesterday to be measured for new ones and my legs are in very good condition, considering...I just think it might be the overall issue causing the kidney problem...who knows...just monitor it all...awaiting word from my PCP. 

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    • I do have a referral to another GI at one of the top hospitals in North Carolina. I'm just waiting on the call to schedule an appointment. 
    • OK, that's good news, not the milk in the cabinet, that you've not cut gluten! Stick with it and wait for the test results. If they're positive then it will be another endoscopy, but this time with the biopsies. If negative, don't despair. Your GP may still refer you but if not you can try the gluten free diet for yourself. Keep a food diary and follow all the instructions here in the newbie thread and establish for yourself if it's the problem. If it is, don't stress overmuch about a diagnosis. I tested negative but gluten is a big problem for me and many others. The good news is the diet worked for me and it may still for you. In the meantime, try and eat as well as possible and take a good quality B vitamin and multi vitamin to try and boost those levels. Good luck!
    • No I havent cut out any gluten. I cut out stuff I knew hurt me. Like watermelon. Which sucks because I LOVE watermelon.  There are days that I cant even get words out. I can think a sentence and just cant get it out. I constantly stumble and feel drunk in my head. I'm hoping these daily shots of B12 I'm getting will start to help some.  Yesterday I put the milk in the cabinet    
    • Hello, I am new to the glutten-free diet FOR ABOUT 6 WEEKS because I am trying to find a way to clear up my seborrheic dermatitis that I have since I was a teenager. Recently, it is all over my face as well, usually after light sun exposure. The dandruff is annoying and I was checking to see if it because of gluten. I really do not notice any difference with my skin. It has not helped. Should I give it more time? Is 6 weeks enough time to start seeing results? I don't want to be on any medicines. Shampoo's help, but not with my face. Any help would be appreciated. Thanks,    
    • Hello and welcome Its good that your doctor has ordered the celiac test, not sure why your GI didn't, as you say perhaps he was presupposing IBS... You mention cutting out food, you haven't tried cutting gluten yet have you? That can throw the results of any testing. You are best to stay on it for now at least, once testing is done it would be worth trying the gluten-free diet regardless of results. Dont lose heart, be persistent, get those answers and best of luck!
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