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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Poop (Sorry!)
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Ugh. Anybody still have loose poop 7 months gluten-free??? Sorry, totally gross etc but I don't know what to do. No cc. I have many food issues and mostly exist on fruit veg and rice. I eat rice to try and bulk me up... (It's not working) still waiting to see a GI specialist (still had no follow here in UK, docs been crap etc)...

My poop is very loose and often looks 'undigested'... I had a pee test (arranged by myself) that showed severe gastro int inflammation, liver not working properly, and adrenal 'collapse'. And a few defiencies (no big surprise)... Haven't had the energy to research it all yet but wondered if any of it is linked (apart from inflammation) to my loose poop. I haven't had a normal nice 'movement' for months.

Wwwwwwwhhhhyyyy??!!

Anyone think that it could be just because of my diet? Too much fibre with nothing to bind it up?

Love to hear from anyone else with same issues (sorry, I know, bit gross!)

(Thanks for any replies. Apologies if I don't respond immediately, I have terrible connection probs at moment, sometimes I manage to log in for 5 mins)

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Not sure how you've identified your food allergies/intolerances, but I can tell you that I'm allergic to rice.   My best advice is to be sure you're on a four or ten day rotational diet.  Do not eat the same foods, day-in and day-out!  You can continue to develop food intolerances or allergies.  You need to give your body a rest and "put out or at least calm down" the fire (inflammation).  I was on a rotational plan 15 years ago for about 8 months to a year and it worked! 

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Thanks for you reply.

Yes maybe you're right, I just don't know how to rotate so few foods and get a reasonable amount of vitamins... Or energy for that matter. Not to mention protein!

Thank you, I will look into rotational diets :)

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How do you know no cc?  I remember reading about someone on this forum finding a piece of wheat in their rice.  Anyone remember who it was?  Could you be super sensitive?  I am super sensitive and I sort and wash my grains or I also have loose poops.  I also need to avoid produce grown with wheat straw.  Of course, it could be something else, but it could also be a greater level of sensitivity.

 

I like the rotational diet idea.  Keep a food/symptom journal.  Keep track of sources of foods as well as the foods themselves.  That way you can track cc sources as well as possible food intolerances.  Be patient and disciplined and you will get there.  Hopefully your doctors will be able to help out when you get to them.

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Also, digestive enzymes. It can help process the stuff you are eating. I found they made a huge difference in my, er, consistency. I was having more trouble with C than with D, but they should help with either.

 

And a rotation diet is probably a good idea. Also a food journal.

 

Good luck!

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Hi, I am not knowledgable at all on Celiac issues, but I would think anyone who lives mostly on fruit veg and rice would have that kind of problem. I think you need more bulk in your diet.

Jo

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Hi, I am not knowledgable at all on Celiac issues, but I would think anyone who lives mostly on fruit veg and rice would have that kind of problem. I think you need more bulk in your diet.

Jo

I have to disagree, Jo.  There's plenty of fiber (bulk) in fruit and veggies.  Sweet potatoes, butternut squash (and other hard squashes) are full of fiber and nutrients that will keep you feeling full.   In the UK,  there was a show that had 9 volunteers eat just what the gorillas at the zoo.  Participants  lost weight, cholesterol, and they got plenty of fiber!  Here's the link:  http://news.bbc.co.uk/2/hi/uk_news/magazine/6248975.stm  It was a really cool experiment.   :rolleyes:

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I love my fruits and veggies I have them fresh everyday, but I didn't stop having problems with D and C until I had a good balance of both fresh fruits and veggies and proteins like beans and nuts. Everyone on here has different food sensitives so its hard to give the best advise I feel great when I eat lots of beans and potatoes and some can't have beans, nuts give me energy too but not all if us can have those either.... I think I maybe off subject.... Ummm my thinking is if your food still isn't digesting properly you maybe still consuming something that is causing damage, I didn't read everyone's reply so sorry if I'm repeating anything, I saw food journal and that is definitely a good idea for all of us developing food allergies seems inevitable for us.

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Months on the diet and I still have C issues.  I didn't even think my C was an issue/symptom before diagnosis because I thought it was just how my system worked.  I take probiotics.  I have tried three and the two I've tried with other vitamins in them (one specifically made for Celiac sufferers) made the C worse.  Like I went to the doc to make sure the constant pain in my lower left pelvic area wasn't an ovary issue kind of worse.  His official dx:  I was full of poop.  I have one that works for me that has 10 billion live cells.  When I was on antibiotics I took a double dose because those meds will kill all the good stuff in your gut and EURIKA!  I was like a normal person.  If you fool with these, I think it takes a lot of trial and error to find both the right kind and the right amount.

 

I hope the GI doc helps you out when you eventually get to him/her.  Sounds like something isn't functioning properly if you have half digested food coming out the wrong end  :blink:


 

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Thanks everyone for your replies.

Bit disheartening. I feel like I'm the only one with loose poo!

(@diletantesteph) never thought of that... just looked at my rice packet... it says gluten free??

I'm going to see about probiotics again, they seemed to help before... just that since I became corn intolerant I can't seem to find a corn free one. 

 

How do you rotate so few foods??? How do you get adequate amounts of nutrition???

My GI was wonderfyl. NOT. Told me that in her opinion, the 1 year endo to check for healing was a waste of time if your symptoms were gone. She also said that loose bowels were not diarrhea. Which I kind of get. But... ugh.

 

I kept a food journal. For ages. And whilst it helped eliminate problem allergy food, I have never been able to find a food or foods that cause my loose poop. 

 

Again, thanks for all your help, REALLY appreciated as always. 

 

Just a question then... Does everyone pass normal poo then?!!!! I mean, you know, nice sausages??!!! (I'm SO sorry, can't help asking!!)

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Thanks everyone for your replies.

Bit disheartening. I feel like I'm the only one with loose poo!

(@diletantesteph) never thought of that... just looked at my rice packet... it says gluten free??

I'm going to see about probiotics again, they seemed to help before... just that since I became corn intolerant I can't seem to find a corn free one. 

 

How do you rotate so few foods??? How do you get adequate amounts of nutrition???

My GI was wonderfyl. NOT. Told me that in her opinion, the 1 year endo to check for healing was a waste of time if your symptoms were gone. She also said that loose bowels were not diarrhea. Which I kind of get. But... ugh.

 

I kept a food journal. For ages. And whilst it helped eliminate problem allergy food, I have never been able to find a food or foods that cause my loose poop. 

 

Again, thanks for all your help, REALLY appreciated as always. 

 

Just a question then... Does everyone pass normal poo then?!!!! I mean, you know, nice sausages??!!! (I'm SO sorry, can't help asking!!)

Just as an after thought... Is something I'm eating then damaging me then?? 

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How I do rotation dieting to determine cc is to keep a really regular diet.  Then if I have enough foods, I will eliminate them one at a time, one per week.  It can take that long to notice an improvement.  If don't have enough foods to want to eliminate anything, then I eat a large amount of one food to see if things get worse.  It takes a long time, but is worth it when I get better.  I have found wheat berries in grains labelled gluten-free.  Sometimes they miss one.  I have to source my rice very carefully and then I have to wash it on top of that.  When I tried it unwashed I had a reaction.  I am unusually sensitive.

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How I do rotation dieting to determine cc is to keep a really regular diet.  Then if I have enough foods, I will eliminate them one at a time, one per week.  It can take that long to notice an improvement.  If don't have enough foods to want to eliminate anything, then I eat a large amount of one food to see if things get worse.  It takes a long time, but is worth it when I get better.  I have found wheat berries in grains labelled gluten-free.  Sometimes they miss one.  I have to source my rice very carefully and then I have to wash it on top of that.  When I tried it unwashed I had a reaction.  I am unusually sensitive.

Thanks for that. Thats a good idea about increasing foods as I don't want to eliminate any more unless really necessary.. I only have a few! I must admit, I know that lots of roast carrots or parsnips upset my tummy but just one or two don't really do much.

 

Awesome, thanks.

 

And actually to be honest I never used to eat rice everyday, only every 2-3 days... I have increased it to 5-6 times per week... Mainly because I have been SO hungry and the rice REALLY helped with energy levels (get a bit sick of potato) and obviously it contains useful amino acids for my protein intake (bit low with just fruit and veg). 

 

Anyway, to be honest, I would say that the increase in rice hasn't made any difference to my 'movements'... If anything, they are a tiny weeny bit better. I think anyway, but certainly no worse. 

 

Thank you again

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I also buy Thai rice in 10lb bags (cause for someone who eats it several times a week, its much much cheaper) and have never run into contaminants in my rice.

 

And as for "normal" poos, if I have them, its always a good sign, but its certainly not consistent.

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I spoke yesterday with a GE doctor who has (to me) - the advantage of being a celiac herself. She told me that she was DX late in life (as me) and that it took OVER ONE YEAR for her villis to grow back and that until then her BM were anything but 'normal'. I'm almost at six months and vary from 'normal' (farily rare) to 'very loose' (often) to D with pains (thankfully rare). In the third option I normally feel also generally sick (that malaise, brain foggy-, dizzy-, slightly nauseus- worsened eyesighty- oh-so-tired- etc etc feeling we know so well).

 

So - I'm planning to sit and wait out. Easier this week for instance 'cos I'm feeling fine and bright. Much more difficult when I'm not feeling well. Still: what else can I do but eat sensibly and pretend I'm ok?

 

Well yes, there are a couple of things more. I have not taken probiotics until now and I'm starting these days (have to understand which ones, also lactose-free). I think they're going to make a difference to my, er, consistency as somone said. The second thing is that I'm going to see a very good homeopath I heard about. I'm not sure I BELIEVE in homeopathy and I am sure it cannot cure celiac. But this woman is also apparently a very good general practioner and that is what I need: someone who will tell me "yes, go take that test" or "do not worry about that, it's nothing". If she is not what I'm looking for, I'll look for somebody else but I really need a sensible doctor to follow me and help me NOT to be too anxiosu and not to jump from one "specialist" to another looking for improbable answers. The good thing about homoepaths is they're supposed to look at the patient and not the symptoms.

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I spoke yesterday with a GE doctor who has (to me) - the advantage of being a celiac herself. She told me that she was DX late in life (as me) and that it took OVER ONE YEAR for her villis to grow back and that until then her BM were anything but 'normal'. I'm almost at six months and vary from 'normal' (farily rare) to 'very loose' (often) to D with pains (thankfully rare). In the third option I normally feel also generally sick (that malaise, brain foggy-, dizzy-, slightly nauseus- worsened eyesighty- oh-so-tired- etc etc feeling we know so well).

So - I'm planning to sit and wait out. Easier this week for instance 'cos I'm feeling fine and bright. Much more difficult when I'm not feeling well. Still: what else can I do but eat sensibly and pretend I'm ok?

Well yes, there are a couple of things more. I have not taken probiotics until now and I'm starting these days (have to understand which ones, also lactose-free). I think they're going to make a difference to my, er, consistency as somone said. The second thing is that I'm going to see a very good homeopath I heard about. I'm not sure I BELIEVE in homeopathy and I am sure it cannot cure celiac. But this woman is also apparently a very good general practioner and that is what I need: someone who will tell me "yes, go take that test" or "do not worry about that, it's nothing". If she is not what I'm looking for, I'll look for somebody else but I really need a sensible doctor to follow me and help me NOT to be too anxiosu and not to jump from one "specialist" to another looking for improbable answers. The good thing about homoepaths is they're supposed to look at the patient and not the symptoms.

Thanks for that :)

It nice (for me at least) to hear of other people with loose bowels. Sounds awful doesn't it?! But you know what I mean! It's so frustrating to know if something is 'normal' or not. Like today and the last few days I have had lots if squelching gut noises?! Why?! Is this normal. My diet has been the same. Should I ignore?! When should I worry. At diagnosis I suffered with bloating and occasional diarrhea... (Defiencies and neuropathy and migraines too etc) but only 'mild' classical symptoms. So at what point do I think 'this isn't right'! I no longer actually know what's normal!!

I think I am like you though, diagnosed later in life after a long time... I was a marsh scale 3 at biopsy and I had already been gluten-free for 2 months when they biopsied.

I wish I had a celiac doc, wow! Truly envious! You have reassured me a little so thank you :)

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