• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Dermatologist Wouldn't Due A Biopsy. :-@ (X Post...sorry Didn't Know There Was A Dh Board)
0

Rate this topic

1 post in this topic

Recommended Posts

NP said "well if the blood test were negative? then why test?" 

 

Hmmmmm how about you should biopsy a persistent skin rash in general before you go prescribing medication??? So then the doctor comes in and says she has two other patients with DH and my rash is not the areas that DH presents. Really...currently on face, neck, back, scalp...scars on arms and chest from past issues??? Not many other areas left???

 

Scolding me for scratching...that's why they aren't healing...use this medication for 14 days so the areas can heal. Ok...so I ask...this will heal the areas, but will it stop new spots from developing? "If new spots occur put medication on them and DON'T SCRATCH". Ok so if medication is so strong I can only use it for 14 days...what happens after that? 

 

It's like I'm asking for a full body scan or something radical and expensive???? Skin biopsy...in office procedure.

 

So do I try to find another doctor...I mean how do you know until you get there? I don't want to waste more time and $ going to doctors who will refuse to actually DX something...I say that again because why not biopsy to see WHAT it is...of course by her ignorance on the matter I figured she'd have not done the biopsy correctly anyway. 

 

OR do I just cut out gluten and see what happens? I haven't gone back to GI yet because I was going to see what the skin biopsy results were. He was certain it was "just IBS" but at least he ordered the Celiac panel which was negative. 

 

PCP in FL (I'm back in OH), is concerned with SED rate of 65, normal is under 20...she wants to know what my doctors here are saying is the reason...um yeah the doctors HERE suck and have not said anything about...she would like it checked again got see if it's still high. I told her I'd try...but doctors around here don't seem to like educated patients.

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,109
    • Total Posts
      939,715
  • Member Statistics

    • Total Members
      66,093
    • Most Online
      3,093

    Newest Member
    RowdyPope
    Joined
  • Popular Now

  • Topics

  • Posts

    • if you have celiac and you eat gluten, you will feel terrible and do damage to your body.  there isn't any 'morning after' (for lack of a better term) tried and true remedy.  if i am accidently glutened (and i am insanely careful, so this does not happen often anymore) i find that drinking plenty of water and long, hot showers make me feel better, but it doesn't leave until day 14.  14 days.  ain't nobody got time for that.  no matter what i try, it's naps and snacks for 14 days.  then the fog lifts and my guts stop protesting.  you will get better at avoiding gluten and cc by practicing being gluten free.  i would eat whole foods (avoid processed while your guts are healing) and skip eating out for awhile until you get better at knowing how to determine which restaurants are safe and which ones don't give a crap if they give you the craps <see what i did there lolz) go to the coping page and read the newbie thread.  there is much useful info there - more things to avoid than just bread - and ways to navigate this lifestyle.  welcome to your new normal.  pack a lunch, because if ya got celiac, every day's a picnic.  literally. 
    •   My mistake... HUGE Oops... She hasn't been diagnosed with anything as of yet. I couldn't remember the name so I googled and DH came up. Well that was wrong.... it is Keratosis pilaris she has. i just really don't want her to get to 20 years old and finally become allergic to lactose like her father, and continue to gain so much weight that she needs knee replacements, and diabetes,  and depression, and bipolar, and brain fog and dementia beginning at 48 and dead at 50 like my MIL, or like my mother having allergies to soy, egg, now corn and milk too, also a diabetic.... because of all these allergies she's allergic to a lot of antibiotics and much OTC medicine as well Thank you for your advice thus far
    • i was at a meeting recently, where they serve dinner, ironically the meeting is at a communitiy room at our local hospital (where the meal is catered by the hospital cafeteria and i do not eat BECAUSE THEY CAN'T DO GLUTEN FREE.  AT A HOSPITAL.)  but i digress.... 'oh, my doctor told me i have that, too.  i just can't stop eating bread ha ha ha' as she chomps a bite of dinner roll.   worse?  she's a doctor's wife    ya can't fix stupid 
    • If she was actually diagnosed, by a skin biopsy, for DH, then she has Celiac.  NO need for further testing. http://www.cureceliacdisease.org/faq/can-a-skin-biopsy-for-dermatitis-herpetiformis-dh-confirm-celiac-disease-or-is-an-endoscopy-still-needed/  
    • i find that i can tolerate some foods that were off limits to me (soy, certain veggies, ice cream, chocolate, etc) if i do not eat them two days in a row, for whatever reason.  i'm thinking histamines.  whatever it is, i can eat many more/different foods.  i usually eat the same sort of food/meal every 3 days.  i was puzzled why i could eat something one day and be fine.  then eat the same thing the next day and not fine.  seems to be working i thought i had a problem with eggs bc i was eating them nearly every day for breakfast, but if i rotate it with cereal one day, a bagel or waffle or pancakes etc for day 2 then i can have eggs the third day as long as i go back to cereal the next day (for example) i can even tolerate fresh (and frozen lolz) fruit once every 3 days when i thought i couldn't tolerate fruit at all.  so long as i don't eat it tomorrow it's trial and error, and what works for one may not work for another.....  but this seems to be working for me.  right now lolz
  • Upcoming Events