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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Unknown Leg Pain. Result Of Celiacs?
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13 posts in this topic

I have a pain in my lower right leg that has been occurring randomly over the last few months. It almost feels like my bone is about to split or theres a ton of pressure on the bones. I'm concerned that it has something to do with osteoporosis but I think I am just psyching myself out. I know there is a heightened risk with celiac disease so that is why I am concerned. I guess I should mention that I am only 20 years old and have been gluten free for about a year and a half now. Should I get anything specific checked out by a doctor or should I just mention that my leg feels this way? Has anyone else had this pain?

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I don't have any specific advice since I have not had any bone pain, but as a mom I'd recommend seeing a doctor.  Take care.

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I had bone pain for awhile and it was my femur (thigh) bone.  That sucker hurt for 3 years after I went gluten-free.  I was limping some days, it was so bad.  Bone pain....not anything else.  I also have osteoporosis but that is a silent disease.  You usually never have pain with it or any discomfort....until you break a bone.  I am weight training to reverse that but have never broken a bone.

 

I doubt you have osteo because you are young and, even if your bones were a little compromised, at your age you should regenerate bone pretty easily because you still have your hormones. At 20, you have good levels of hormones too. 

 

I had an x-ray of my leg done and the doctor said the bone looked perfect....no arthritis or anything else.  So I went home and dealt with it.  At the 3 year mark of

being gluten-free, all of a sudden one day, I realized that my leg did not hurt anymore.  It has never returned.  I think it was either a vitamin deficiency that resolved once I healed or it was a neurological issue that healed and the leg stopped hurting.

 

You have been gluten-free for a year and half and that is good but not very long, in Celiac terms.  It can sometimes take 3-4 years for pain issues to resolve.  You could ask for an x-ray but if it comes back OK, then I wouldn't worry.  You may wake up one day and it will be gone.  That is the norm for many.

 

I wish you luck but it most likely is one of those quirky things that happen to us for many different reasons. If you are really worried, ask for an x-ray.  Those are pretty easy to do!

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It may be shin splits, especially if you have taken up any activities such as jogging, tennis, fast paced walking or if you started wearing new shoes. Spring weather brings out the flattest of flats so these actually work your lower legs. I just broke in a pair of new running shoes that were as flat as I could get and then got shin splits - was also forewarned from the salesperson I bought them from that this would happen. And this was from everyday movement, not running. Just a few things to think of while you work out where the pain is coming from.  Good luck.

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You might want to ask your doctor if these blood tests are appropriate for your symptoms:

 

CBC

Protein Electrophoresis
Immunofixation Electrophoresis

Immunoelectrophoresis

 

Do see a doctor.

Good luck and keep us posted.

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have you moved somewhere or gotten a new job, etc, that has alot of stairs?  that (just in one leg and similar to shin splints) happens to me sometimes - one time my friend's elevator went out in her building and we had to walk it - 12 flights!!  it took them a week to get the part and oh, boy, i thought it was broken.  maybe try heat or ice?  to see if it goes away.  i think you are too young to worry with osteoperosis <sp but that is my opinion :)

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Here is the story of a little girl with Osteoporosis that was posted on this forum.

 

http://www.celiac.com/gluten-free/topic/101118-questions-re-blood-tests/

 

 

When it comes to Celiac, don't take anything for granted.

Osteoporosis does not cause any pain.  It's a silent disease.  Even if someone that young, or anyone under the age of menopause, had it, once they go gluten-free and heal, it almost always reverses itself easily, due to youth and hormones.

Older people can reverse it too but it takes work and dedicated exercise. 

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You might want to ask your doctor if these blood tests are appropriate for your symptoms:

 

CBC

Protein Electrophoresis

Immunofixation Electrophoresis

Immunoelectrophoresis

 

Do see a doctor.

Good luck and keep us posted.

I'm sorry but....recommending electrophoresis? Why? Seems a bit odd & extreme to recommend.

 

Natzag-

Do you run or do a sport a lot? You might want to see the doctor. It could definitely be shin split type thing. It sounds a little like someone I know who had a stress fracture. It sort of came and went. They figured it started to heal and then, when she felt better and used it more, it got worse.

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I'm sorry but....recommending electrophoresis? Why? Seems a bit odd & extreme to recommend.

 

Agreed.

Serum protein electrophoresis is most often done to screen for a disease such as multiple myelomamacroglobulinemia, oramyloidosis.

Not sure why would someone with leg pain would request these tests .

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Are you a runner or doing workouts/athletics?

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I have bouts with shin splints from time to time. Most recently, it occurred after I had been carrying heavy things up the flight of stairs from the basement. I did this repeatedly over the course of an hour (we were spring cleaning)

 

It hurt like hell. Really bad. The PT/MT that I see told me to ice the area-as in rub an  ice cube briskly over the area quickly... and make it numb.

 

Then, she told me to massage it. Then, apply heat for a few minutes. Ice takes care of inflammation and heat makes it "pliable" and relaxes the muscles.

 

She said:  do this a few times... in that order. I did.

 

The next day, it was all better.

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