• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Gi Apt - Endoscopy Scheduled For Next Week
0

4 posts in this topic

Wow can't believe how well that went. I think. Lol

GI was on the up & up w/current Celiac/NCGS research, and immediately started talking about scheduling an endoscopy/biopsy (such a relief to me as I was very nervous about being brushed off). Apparently, my PCP was incorrect about my blood tests, or I misunderstood her interpretation. The only test she took (aside from the total IgA to verify I wasn't deficient) was the tTg IgA, which was negative (my level was 8, when range was <10 being normal), but the GI said that test could have been false neg as I had been gluten-free for 6 weeks when it was taken. He listened to my symptoms and concerns & did a brief physical exam of my mid section. Spent a decent amount of time explaining the basics of Celiac/NCGS (little did he know I had already been schooled by you fine folks ;)) and discussing other possible issues. They ran some additional blood work (thyroid and the celiac gene test) and were able to get me in for the scope next week! Only 5 more days of gluten challenge for this girl. Yahoooooooooooooo!!! *happy dance conga line*

One weird thing, when he was checking my stomach, my lower right quadrant hurt like heck when he pushed on it. I guess my face showed the pain, caz he asked me to confirm my discomfort. My lower left quadrant was tender, also, but the right side HURT. Anyone know or want to take a guess what that could mean?

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


No guesses. Nor should I try. I just know I had SEVERE  abdominal pain for so long, it could just be gluten-related.

If it were your appendix, for example...you'd have screamed bloody murder and kicked him someplace he would have noticed.

and the pain would be constant. He may need to do a CT scan of the area. Let him decide.

 

Still think you have celiac (or NCGI) but what I really want to say is:

 

Kudos for being so brave for continuing this gluten challenge.

 

Kudos for finding a GI who "gets it". Hang in there and no matter the results, I do hope you will stay gluten-free as the gluten really seemed to cause you so much trouble.

 

And despite it all, you kept your sense of humor. Impressive as all get-out, In my book. ;)

0

Share this post


Link to post
Share on other sites

No guesses. Nor should I try. I just know I had SEVERE abdominal pain for so long, it could just be gluten-related.

If it were your appendix, for example...you'd have screamed bloody murder and kicked him someplace he would have noticed.

and the pain would be constant. He may need to do a CT scan of the area. Let him decide.

Still think you have celiac (or NCGI) but what I really want to say is:

Kudos for being so brave for continuing this gluten challenge.

Kudos for finding a GI who "gets it". Hang in there and no matter the results, I do hope you will stay gluten-free as the gluten really seemed to cause you so much trouble.

And despite it all, you kept your sense of humor. Impressive as all get-out, In my book. ;)

Thanks, Irish. :) And lol at the "kick him somewhere he would have noticed. I'm guessing you meant his shin. ;)

0

Share this post


Link to post
Share on other sites

Thanks, Irish. :) And lol at the "kick him somewhere he would have noticed. I'm guessing you meant his shin. ;)

 ah yeah,  sure...that's what I meant  :ph34r:

 

:lol:

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,339
    • Total Posts
      935,565
  • Member Statistics

    • Total Members
      64,999
    • Most Online
      3,093

    Newest Member
    Con Smith
    Joined
  • Popular Now

  • Topics

  • Posts

    • It seems like you really need a concrete or near concrete answer so I would say maybe you ought to get the gene testing. Then you can decide on the gluten challenge.   Thanks! I am convinced our dogs are there waiting for us. Meanwhile they are playing, running, laughing, barking & chasing. I have another favorite quote dealing with dogs: "If a dog will not come to you after having looked you in the face, you should go home & examine your conscience."  ~~~ Woodrow Wilson ~~~
    • I can't help thinking that all of this would be so much easier if the doctor I went to 10 years ago would have done testing for celiac, rather than tell me I probably should avoid gluten. He was looking to sell allergy shots and hormone treatment, he had nothing to gain from me being diagnosed celiac. I've been messing around ever since, sort-of-most-of the time being gluten free but never being strict about it. I really feel like three months of eating gluten would do my body a lot of permanent damage. I've got elevated liver enzymes for the third time since 2008 and no cause can be found which might be good, I guess. I wonder if it would be reasonable to do the HLA testing first, to decide if I really need to do the gluten challenge. If the biopsy is negative, that is. Squirmingitch, love your tag line about dogs in heaven. We lost the best dog ever last December. I sure hope all my dogs are there waiting for me!
    • Most (90%-95%) patients with celiac disease have 1 or 2 copies of HLA-DQ2 haplotype (see below), while the remainder have HLA-DQ8 haplotype. Rare exceptions to these associations have been occasionally seen. In 1 study of celiac disease, only 0.7% of patients with celiac disease lacked the HLA alleles mentioned above. Results are reported as permissive, nonpermissive, or equivocal gene pairs. From: http://www.mayomedicallaboratories.com/test-catalog/Clinical+and+Interpretive/88906  
    • This is not quite as cut & dried as it sounds. Although rare, there are diagnosed celiacs who do not have either of those genes. Ravenwoodglass, who posted above, is one of those people. I think she has double DQ9 genes? Am I right Raven?  My point is, that getting the gene testing is not an absolute determination either way.
    • Why yes it is! jmg and myself are NCIS, I mean NCGS specialist/experts or is it NCGI people ourselves. posterboy,
  • Upcoming Events