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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Urologist Wants To See Me About Kidney. Worried....
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6 posts in this topic

Ok, so yesterday my GP called with results of my blood work.  Everything was great according to her.  My liver, my kidneys, my cholesterol etc... except for low ferritin.  So I was happy that all sounded good, but still wondering about the low ferritin.

 

My GI did my endo Apr. 2 and his secretary called to schedule me back on May 27th.  They don't call for follow-ups for nothing so I assume there's something.  But it wasn't urgent obviously because that was still quite some time away.  I kinda thought "aha I'm right, he found celiac".  I guess I'll find out in 10 days.  In the meantime he had also sent me for CT enterography (abdomen) to rule out crohn's before he even got results of the endo.  I like that he's thorough.

 

WELL, today when I got home I had a message from a urologist that wants to see me next Wednesday.  I was scheduled because of a consult request from my GI.  I thought "A urologist??? What the heck???"  Anyway called his office and his secretary told me it's because of my kidney and that my GI had made the request.  I'M FREAKING OUT!!!  Obviously something came up in the CT scan.  I'm thinking the worst now. OMG! I'm completely freaking out.  It's a holiday here on Monday so I probably won't be  able to reach my GI to ask questions.  I have no symptoms of kidney issues whatsoever.  They didn't refer me to a nephrologist.  If it's a urologist it makes me even more worried. They only touch kidneys when it involves bad stuff requiring surgery.  And of course I looked up his bio and he specializes in laparoscopy nephrectomy to remove cancerous kidneys. He's listed as general/oncological urology. 

 

I can't understand that nobody bothered to call me to explain anything and just left me to wander my mind alone.  I'm freaking out.

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Probably saw a kidney stone or two. They might not be bothering you but there are ways to get rid of them before they cause you trouble. Relax.

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Your GI should be shot! Why do they think it isn't important to communicate with us? It is OUR bodies! They don't even consider that we are living thinking human beings! We are just "parts" to them. GRRR...

 

I hope it turns out to be nothing serious. Maybe your GI hasn't fulfilled his "quota" of referrals this month. I swear, they are all in on a money-making scheme. ("Hey, if I refer x amount of patients to you, can we split the $?")

 

Sorry, I'm a bit down on the medical profession. Please let us know as soon as you find out. In the meantime, (((HUGS)))

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Probably saw a kidney stone or two. They might not be bothering you but there are ways to get rid of them before they cause you trouble. Relax.

 

Ok, I'm trying to breathe...... I just googled low ferritin and kidney cancer and that REALLY didn't help.  Sometimes I hate the internet (or myself for being such an info junkie)  I don't know how I will make it to next Wednesday. 

 

Why would I need to see anyone if they found kidney stones?? If that's what it is, I sure don't feel anything.  Do they have to get rid of them?  Is that urgent?  Because the reason I'm freaking out is that they are seeing me SO QUICKLY!  The health care system here doesn't move that fast for unimportant stuff.  I just had the scan last Friday and already I'm being seen by the urologist.  Before I've even had my follow-up with the GI. Would this be important to deal with that fast?  For some reason, I doubt it. 

 

I'm freaking out. 

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Your GI should be shot! Why do they think it isn't important to communicate with us? It is OUR bodies! They don't even consider that we are living thinking human beings! We are just "parts" to them. GRRR...

 

I hope it turns out to be nothing serious. Maybe your GI hasn't fulfilled his "quota" of referrals this month. I swear, they are all in on a money-making scheme. ("Hey, if I refer x amount of patients to you, can we split the $?")

 

Sorry, I'm a bit down on the medical profession. Please let us know as soon as you find out. In the meantime, (((HUGS)))

 

I soooo agree.  I am really angry!  Wait until I speak to them!  Don't they realize that this is going to worry someone to no end!!??  Actually I think if they have something bad to tell you they sure as heck aren't going to do it over the phone, right?  So what else can they do but call you asap and set up an appointment, without saying anything at all?  It's not like the secretary is going to call and say "Hi the CT scan you had done showed cancer in your kidney and the doc wants to see you asap!"  I dunno.

 

Thanks for the hugs. It helps.

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Hi, please try not to worry too much. I had something similar recently. I was diagnosed with very low B12 and my doctor said he would refer me to a Gasrto. The letter came two days later with an urgent appointment for the following week. I was terrified especially as cancer was mentioned in the letter. It turned out to be nothing, just an appointment to rule out anything serious. And some years previously I had a phone call from my surgery to say the doctor needed to see me asap over some blood test results. I spent the weekend worrying, only to be told I was anaemic and needed iron tablets. Obviously I was pleased things had been taken seriously and teated quickly. The trouble is I don't think secretaries are allowed to give out information. Your appointment is possibly a precautionary one. But if it is something, then you are getting it dealt with quickly.

Jo

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