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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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kramery

Gluten Sensitivity? Opinions Are Appreciated!

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This is my first post although I have lurked here in the past.  I recently found out that geographic tongue is associated with celiac disease, and as I have had this since childhood, I'm thinking maybe I do have it!

 

My Timeline:

-Geographic tongue (constant since young age, not bothersome)

 

-2008: IBS-constipation (colonoscopy to rule out Crohn's; diagnosed as post-infectious IBS, after Salmonella infection 2 years before)

-extreme gas and bloating after meals (especially after having a sandwich with wheat bread) 

 

-10/2012: iron-deficiency anemia diagnosis. began iron therapy.

-11/2012: Became unable to drink tea or alcohol. Both would now make me feel 'weird in my head' (alcohol - bad kind of weird. also felt like i could feel it in my muscles. it was very strange.)

-12/2012: Began having really weird feelings after eating. Felt light-headed, dizzy, foggy (however, these symptoms went away after 2 weeks when I went back to school.)

 

-01/2013: Doctor suggested testing for celiac disease in addition to gluten-free diet for 3 weeks

-IgA test was negative

-Within a few days of starting gluten-free diet, I suddenly became lactose intolerant. I also couldn't handle fructose, as apples would give me bad gas. About a week later I was able to tolerate these foods again in small amounts.

-I noticed I was pretty bloated still throughout my gluten-free diet, which was disappointing, because I seriously look pregnant sometimes. When I started eating gluten again, I didn't notice any changes, and assumed I was not sensitive to gluten.

 

Now I am still bloated 24/7.  I am wondering if I should have done the gluten-free diet for longer than 3 weeks? Also, are there other blood tests besides IgA to transglutaminase? 

 

Thanks!!

 

 

 

 

 

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Were you gluten free prior to the blood test?

That will give you a false negative result.

 

The other tests you asked about are:  DGP-IgA  and DGP-IgG

 

 

Later after you've done the Celiac blood test panel, you could try a digestive enzyme pill.

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Thanks, I'll look into the other tests and this digestive enzyme.

 

And no, I was not gluten free prior to the test. However, my normal diet doesn't have a ton of gluten in it.

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