Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

The Not So Yummy Journey

crystal-jade

Recommended Posts

crystal-jade Newbie
crystal-jade
Posted

My name is Crystal and I am 34 yrs old I Just got my diagnosis on Tuesday what a kick in the gut. Celiacs. I have been having symptoms for 7 yrs, serious for bout 18 mths heard everything from gallbladder to pancreas. My joints and muscles have been affected. Not to mention every digestive issue my dr thought up. I am at a lost as to even where to begin. I have done Internet searches of course but I still don't feel prepared to deal with all these changes I mean this is forever. What is one piece of advise you have found invaluable?

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Here is a good place to start:

 

https://www.celiac.com/forums/topic/91878-newbie-info-101/

Link to comment
Share on other sites
nvsmom Community Regular
nvsmom
Posted

I'm sorry to hear you've been feeling so poorly but I'm glad you have a diagnosis and can move forwards towards healing.

 

Acceptance is the key to happiness... That was the best fortune cookie I ever got - or ever will get since I've never seen a gluten-free fortune cookie. LOL  I just found I had to accept it and move on. Really, we have no other choice. Fighting this diagnosis will get us no where, all we can do is embrace it and do the best we can with it.

 

It helped me to look on the bright side too. Celiac disease is the only autoimmune disease out there that the patient has full control over her or his own treatment. We don't have to rely on doctors to medicate us properly to just treat the symptoms. Over time, we can pretty much stop the autoimmune attack and actually heal. that doesn't happen in RA, Lupus, Diabetes (type 1) or even hashimotos. I consider it to be the best of a lot of other bad options.

 

Yes, it sucks that I can't eat any baked goods that I want, or that I have to read any processed food label, but in the long run it is probably better for my health anyways.

 

Best wishes to you. Give yourself time - possibly months to years - and you'll feel better.

 

And welcome to the board.  :)

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,215
    • Most Online (within 30 mins)
      7,748
    Michelr
    Newest Member
    Michelr
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • mishyj
      Why?

      By mishyj · Posted

      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
    • mishyj
      Why?

      By mishyj · Posted

      My daughter has celiac disease and has had for a long time. She fell loses strictly gluten-free diet and recently got rid of all cutting boards in any gluten in her house at all. She just had a stool test and it came back showing of gigantic response to gluten in her diet. What could be going on since she doesn't eat any gluten and is very careful about any kind of hidden glue? Help!
    • cristiana
      Constant low back, abdominal and pelvic pain!

      By cristiana · Posted

      I think sometimes the pain described here can be a result of a sort of 'perfect storm' of contributing factors.  Recently I had an appalling bout of lower back pain, lower burning gut pain and what felt like cramps.  I then started to think about what could have caused it and I realised it was several things that had set it off: I'd been carrying heavy luggage (back strain); I had been sitting down in a car for too long and wearing a tight belt (I have pudendal nerve issues and sacroiliac issues and this exacerbates the pain), and I had bloating and burning pain in my colon caused by eating too much soy, latte and caffeine, I guess putting further pressure in the lower abdomen.  I had this same pain prior to my diagnosis and a couple of years post-diagnosis, I'd quite forgotten how unpleasant it was. 
    • cristiana
      Have this rash forming on the back of my legs. Looking for relief outside of going to the doctor.

      By cristiana · Posted

      HI @Kirbyqueen That's great news your insurance will be kicking in soon.  Sorry to see that you have been dealing with this for six months now, but I do hope you have managed to find some relief with some of the suggestions in the meantime. Perhaps come back and let us know what the doctor says. Cristiana
    • Scott Adams
      Trying to read my lab results

      By Scott Adams · Posted

      I agree, and hopefully your doctor will contact you soon about the next step, which will likely be an endoscopy to confirm your diagnosis. Do you have celiac disease symptoms? 
×
×
  • Create New...