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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Stomach Pain
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9 posts in this topic

I have no official diagnosis but I am gluten-free, DF, EF and peanut free. Have been feeling better until Monday when my long term side pain reared its ugly head. Today I layed on the floor after breakfast and took a stomach muscle relaxer to prevent me from passing out. My digestive tract feels like I have lesions in it. I don't have these pains often anymore, but not sure what is triggering it lately. I am severely constipated and take Miralax several days in a row then there is no need to take it for a week or two later. I have several questions:

1. What do you eat when your stomach hates food? I need to prepare chicken noodle soup and freeze it.

2. Could it be the miralax, although it has been a week since I took a dose?

3. I have also been eating soy icecream with strawberries and bananas in it before bedtime, oops.

4. Could I have been glutened?

Feeling really sad and sickly-like

Renaye

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What side is that pain on?

 

You sound like i did when my gallbladder was going on me.

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My pain is on the left side and I believe it is colon related. I have had this pain since I was 13. I had my gallbladder checked out 2 years ago before I knew that I had something like a diagnosis and it is operating at the minimum of normal, I think 30%?? I wonder if it ever functions at a higher % after a change of diet? I have ate some sausage and brats lately...hum....

Renaye

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My pain is on the left side and I believe it is colon related. I have had this pain since I was 13. I had my gallbladder checked out 2 years ago before I knew that I had something like a diagnosis and it is operating at the minimum of normal, I think 30%?? I wonder if it ever functions at a higher % after a change of diet? I have ate some sausage and brats lately...hum....

Renaye

I agree with Shadow.  It sounds like your gallbaldder.  My pain always was much lower and nowhere near my GB.  Pains started on and off at age 16.  Serious enough for me to most always pass out.  Had it removed when I was 45 while on a business trip to Las Vegas.  First time I had a HIDA scan (ultrasounds showed no stones and a healthy GB).  HIDA results showed a non-functioning gallbaldder (0%).   It was also infected.   I believe my GB would work on and off all those years and I was lucky finally to catch it when it wasn't working!  

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I know the pain your talking about and can be intestinal. Have you tried cutting out soy? Something must still be in your diet that you can't tolerate...

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Constipation can cause stomach/intestine/colon pain...especially the type you're talking about. My son gets c, and had an X-ray for it. I asked the doctor if c could cause what he's been feeling and he said most definitely. He described some pretty ugly cases.

You need to find out why you are so constipated!

I agree you should have your gallbladder checked - don't want to miss that if its the problem.

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I agree with Shadow.  It sounds like your gallbaldder.  My pain always was much lower and nowhere near my GB.  Pains started on and off at age 16.  Serious enough for me to most always pass out.  Had it removed when I was 45 while on a business trip to Las Vegas.  First time I had a HIDA scan (ultrasounds showed no stones and a healthy GB).  HIDA results showed a non-functioning gallbaldder (0%).   It was also infected.   I believe my GB would work on and off all those years and I was lucky finally to catch it when it wasn't working!  

You mentioned that your last HIDA scan reported a 30% function rate.  It might now be below 20% which is the cut-off for surgery.  Other than lower abdominal pain and passing out, I did not have the typical gallbladder symptoms.  

 

Non-functioning gallbladders run in our family.  Dad's one of 7 and 6 have had theirs removed.  I'm one of 27 first cousins, the fifth oldest and the fifth to have my gallbladder removed.  No stones for anyone.  Just works on and off until it starts to rot/"get hot"/infected.  I would have died if the infection would have spread.

 

Since you already have a gallbladder that was only functioning at 30%, I'd ask for a re-check.  

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I will have my gallbladder rechecked when I go see my PCP. I am feeling better and have been doing alot of thinking. I alter my milks due to my theory of having a leaky gut. I over-did it with almond milk and have not reintroduced that back after 2 years. I don't do rice milk because I can't find anything other than Rice Dreams. I was altering coconut, soy and flax. Since I was on soy milk, last week and also ate soy ice cream the night before my pain, I am wondering if it is soy. I just love my mayo. Wah!! I feel like I am running out of options these days and don't know how to fix it.

Renaye

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Definitely have your doc check for anything serious.  I know I get stomach pain from gluten contamination so you might want to check for that.  Some of us are more sensitive to that than others.  It would help you to keep a food/symptom journal to look for connections with cc or other food intolerances.  I hope that you feel better soon.

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