• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Symptoms And Self Diagnosis
0

3 posts in this topic

When I eat anything containing gluten my stomach feels like there are thousands of tiny needles in my stomach within a minute. Within 5 minutes my whole body starts shaking like I'm incredibly nervous and I cannot control it. I begin to feel nauseous and feel so weak that even lifting my arm is difficult. My heart rate increases and i have a hard time breathing.The shaking and weakness last for hours after I consume the food.  

 

I've had abdominal ultrasounds, blood tests, and stomach biopsy's with my GI and had no luck. Unfortunately, I do not know what the doctor was testing me for when I underwent these tests. I only know that the day before my stomach biopsy I went gluten-free on the advice of my mother (who suggested that I do it because my dad is allergic to gluten,soy, and dairy).

 

It's been almost 2 months since I became gluten free. The only time I've experienced the symptoms described above was the day I ate bread, in an effort to test my "self-diagnosis."  I've also noticed that I am more sensitive to gluten now than I was 2 months ago, the smallest amount of cross contamination will make me experience my symptoms. 

 

I'm debating how to proceed, I apparently was highly allergic to gluten for almost a year and lost a lot of weight (currently 99 lbs) and muscle due to the constant weakness and lack of nutrients being absorbed in my intestines. Do I go to a primary care doctor to make sure that gluten is the only thing I'm allergic to?  Should I make sure than the extra stress on my body didn't cause some long term issue? I have thousands of dollars in medical bills from the constant doctors visits and tests over the last year so I don't want to waste any more money or time if it is not necessary.

 

Any comments help :)

 

 Anne- 24 years old 

Michigan resident

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Welcome to the board. :)

Celiac disease is not an allergy; it is actually an autoimmune disease with many symptoms, some of which you have, that attacks the small intestinal villi when gluten is eaten (as I understand it). To get a celiac disease diagnosis from the medical establishment, you need positive blood tests and/or a positive endoscopic biopsy after consuming 1-4 servings of gluten (ei. bread slices) per day for 4-12 weeks - the amount and time period varies depending on the source.

The most common blood tests are:

tTG IgA and tTG IgG (anti-tissue transglutiminase)

DGP IgA and DGP IgG (deaminated gliadin peptide)

Total serum IgA - a control test

EMA IgA

If you are not consuming gluten in the weeks prior to testing, there is a strong possibility that your test results could be inaccurate and a false negative.

Celiacs are often low in some nutrients like calcium,iron, ferritin, potassium, D, and B's. Thyroid problems are common too are should be checked if you have hypothyroid symptoms.

Other food intolerances are possible too. Lactose intolerance is very common but sometimes resolves with healing. Soy and corn are problems for some too.

If the test results are negative, you could have non-celiac gluten intoleranc(NCGI) which has all the same horrible symptoms except for the villi damage.

I hope that helped a bit. Good luck! I hope you find some answers soon.

0

Share this post


Link to post
Share on other sites

Hi Ann,

 

I had my first blood test yesterday after a week off gluten (and all grains). My doctor said that it takes six months for the antibodies involved in celiac to clear out. I suggest you go ahead and get tested asap, and also ask to be tested for the genetic marker.

 

Even if you don't have celiac disease you may be seriously gluten intolerant. But if you do have celiac, it needs to be part of your medical record.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,460
    • Total Posts
      930,670
  • Member Statistics

    • Total Members
      63,883
    • Most Online
      3,093

    Newest Member
    Stephanie kate
    Joined
  • Popular Now

  • Topics

  • Posts

    • What did you drink and where did you drink it?   NOTE if you drink something at a bar using their glasses your asking for trouble BEER IS EVERYWHERE in most bars and a CC hell.   If it was at home and a non grain based liqour then I would be really concerned that it might just be alcohol. I personally can not really drink much of anything any more. I love rum, and I cook with it sometimes in sautes. I also have rum extract/butter rum extract/and rum emulsion I use in shakes, homemade keto pudding/ mixed into dishes. and even add some to drink to give it a rum flavor lol.
    • I can only think of two things, 1 something you put on your potato was contaminated like the butter container could have crumbs in it or something like that as mentioned before, and you could be having a reaction to dairy or what ever was put in it.......IF it was just plain potato and you reacted with bloating and cramping you might have a carb issues, tad rare and most associated with additional auto immune diseases but could be in which case a diet of fats and protein would be your answer much like it is for me now days. What all have you eaten in the privous 8 hours including beverages, condiments, spices and foods?
    • They are gluten-free.  Did you use butter that might have gluten crumbs on it?  For me , it takes more than 2 hours to feel the effect of gluten- maybe something you ate before?  Maybe  stomach virus?
    • Has anyone had an reaction to potatoes? Just made couple bake potatoes 2hrs ago and now I feel awful...just wondering thought potatoes were gluten free🤷🏾‍♂️
    • I recently covered some pizzas when adding some grain free options to the gluten alternative list....I actually found a company that makes gluten-free hot pockets also sorta made me laugh. There are some unique ones out there now days even found one that made low carb crust out of chicken breast and cheese. https://www.celiac.com/gluten-free/topic/117090-gluten-free-food-alternatives-list/    
  • Upcoming Events