• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Gluten Free 2 Years Still Having Issues
0

3 posts in this topic

I was diagnosed 2 years ago this July and after looking back on everything I probably had symptoms for at least 5 years before I was diagnosed. I have been on a strict gluten-free diet with no cross contamination. I don't go to restaurants and I prepare my own food at home. I am very careful about checking lables on everything right down to hand lotion. 2 years ago I had almost every symptom on the list except for seizures or thyroid problems. Since I've been on a gluten-free diet my symptoms seemed to have gotten better, everything seemed to have healed so I don't have digestive issues anymore and I've been fairly healthy. But over the last few weeks it seems that some symptoms have returned. I am very tired all the time again. My muscles are cramping, twitching and aching. My blood pressure has gone up again. My skin hurts. I am bloated and retaining water. And my hair is falling out and very dry/brittle no matter what I do to it. I do take extra vitamins (Multi, B Complex and D), but I just had bloodwork done yesterday to test levels. Is it possible that even after 2 years I could have issues again or still with absorption? If not what are other possible issues? Has anyone else gone through this? Thank you in advance for your help.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Possible it has nothing to do with Celiac?  Check your thyroid? 

0

Share this post


Link to post
Share on other sites

Definitely have a work up to see if it is unrelated.  If celiac, did you make any changes to your diet recently?  You say you prepare your food at home.  It is produce and unprocessed meats?  If eating products, could processing have changed in any of them to add cc chances?  Do you eat gluten-free grains?  There have been studies showing that they can have cc issues.  You can try eliminating suspect items one at a time to see if anything helps.  Some of us get sensitive to lower levels of cc as time goes on.   I hope that you feel better soon.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,349
    • Total Posts
      935,642
  • Member Statistics

    • Total Members
      65,031
    • Most Online
      3,093

    Newest Member
    TyishaErin
    Joined
  • Popular Now

  • Topics

  • Posts

    • I am sorry that you are sick!  Ennis has offered some great advice.  With small children, they can be glutening you.  I recall member Jebby getting glutened by her kids.  She worked full time as a neonatologist (premie doctor) and her kids would give her slobbery, adorable kisses, etc.  Jebby had the household go gluten free.  That might be something to consider.  
    • Hmm... my massage therapists use aromatherapy and specifically ask you to inhale several times while they hold it very close to your face and I do have them rub my face (although some people don't like that and don't have it done.) Lotion also ends up on your hands which you could transfer to food you eat afterwards if you haven't washed your hands well (obviously hand washing is key!) But I don't think that is too far of a stretch to think it *could* be injested and to double check to be sure the products used are gluten-free.  And at a salon I realize that they'd wash my hair tilted back but what about product(s) being spritzed on your hair when styled? Rare yes, but I do know I've "tasted" those products before! Ick.  
    • I was noticeably gray at 18. Both of my parents went gray young as well. I have no thyroid problems and I'm pretty sure my celiac issues didn't start until 20 years later....   I started dying it when I was 28. I wanted to look more professional!
    • Celiac disease is not diagnosed by symptoms alone. Why?  There are over 300 of them and many, if not all, overlap with other autoimmune issues or other illnesses.  Learn more about proper testing: http://www.cureceliacdisease.org/screening/ I am formally diagnosed.  My hubby is not.  His mis-informed doctors told him 16 years  ago to give up gluten.  It worked, but now we do not really know if he has celiac disease or not.  He will be the first to say that I get WAY more support from family, friends and medical.   I am sorry at your doctor gave you the wrong advice.  Now, you must decide if testing is worth pursuing.  I wish you well.  
    • I am considering having my brother - who inherited Daddy's power woodworking tools - plane down my cutting boards and sand the edges enough so I can keep them. The spoons and soup stirring things though will have to be decorative. Breaks my heart. I've had good luck with Merle Norman cosmetics. They have a listing of things that are gluten-free that has helped me. My local store owner was able to get the list and knows what I can use and what I can't.
  • Upcoming Events