• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
DingoGirl

Article Shared By Dietitian Who Doesn't Believe Celiac Exists....

Rate this topic

Recommended Posts

HI everybody,

 

I haven't posted in AGES here!  [not sure I'm posting this in the right spot?] But this article  - rather, the dietitian who posted it, got me rather agitated. 

 

 

Long long story (which I have just deleted) - but there is a dietitian with whom I am somewhat acquainted (who riles me up! she doesn't believe Celiac exists) who posted this writing (she did not write it) on her FB page last night.  This article makes me quite sad.....the dietitian's intent was to convey to her mainly eating-disorder clients that it is okay to not diet, accept your weight, etc.....but I was smacked in the head with this poor man's untreated (I presume) celiac and slow, horrible death.  HIs daughter wrote the article and i have left a comment today (SusieQ) which may or may not show up yet.

 

Take a look -

xo.

 

http://morecabaret.com/2013/05/07/why-i-dont-diet-an-ode-to-my-father/comment-page-7/#comment-953

Edited by DingoGirl

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Didn't see your comment. Maybe its not approved yet? Or I missed it?

I'm a little confused. This dietician who doesn't " believe" in Celiac posted this on her website? But the dietitician isn't the author, right? She just re- posted it?

Share this post


Link to post
Share on other sites

Yes.....dietitian shared this on Facebook for her patients, but she didn't write it. 

 

My comment not there? hmmm.....maybe takes a while.  Or maybe it was too stupid?  ;)

Share this post


Link to post
Share on other sites

Yes.....dietitian shared this on Facebook for her patients, but she didn't write it. 

 

My comment not there? hmmm.....maybe takes a while.  Or maybe it was too stupid?  ;)

Did you share this on FB? I thought I saw it earlier.

On the site you link to, there don't appear to be any comments in the last few days.

Share this post


Link to post
Share on other sites

I ranted about it on a FB page.....probably showed up in the feed. 

Share this post


Link to post
Share on other sites
Ads by Google:


Karen, I see you found me on there....my rants  ;)  did you see the article that was posted today, on that same site?  OH MY LORD......my ranting goes on there as well.....   :ph34r:

Share this post


Link to post
Share on other sites

Now I feel bad.....I am wondering if I should have this post removed?  Didn't know my rants could be traced on FB....and the dietitian's identity known !  What do you think, Kareighnne?

 

Could simply post the article the girl wrote.....

 

I dunno.  Where is Poeter?  Let him decide :)

Share this post


Link to post
Share on other sites


Ads by Google:


Now I feel bad.....I am wondering if I should have this post removed?  Didn't know my rants could be traced on FB....and the dietitian's identity known !  What do you think, Kareighnne?

 

Could simply post the article the girl wrote.....

 

I dunno.  Where is Poeter?  Let him decide :)

I can find them because we are FB friends. Edit/ Change the dietitians name to Beelezbub and it will be harder for people who don't know you to find.

Share this post


Link to post
Share on other sites

Well, I didn't see anything on FB and I am also a friend. The item linked to is harmless, but does not tie in with this supposed dietitian.

Share this post


Link to post
Share on other sites

HI Poeter ! I just re-wrote my whole introductory post. ;) 

 

And, my comment is awaiting moderation.....sadly, I don't think she'll allow it.  was hoping more Celiacs would join in and also comment.  I don't know why but this article,  in connection with the dietitian who posted it (this is most likely the reason - my intense concern about her methods/beliefs as a dietitian) has got me rather riled !   Must head out now.....gorgeous day here.

 

my comment:

 

I am sorry for the loss of your father, and his struggles, this is so terribly sad and this is how Celiacs often die. What SCREAMS OUT at me in your beautifully-written article is his untreated Celiac Disease (“scarred intestines” CAN improve!)….gluten kills Celiacs. Period. Had he followed a strict, gluten-free diet from the time of diagnosis (did he? I am presuming he did not – forgive me if I am in error), his life would have changed dramatically and he would have dropped weight very easily (assuming he didn’t load up on gluten-free snacks). You are Vikings….Celiac is hugely common in Scandinavia (you can get gluten-free Big Macs there!), and it is a *genetic* auto-immune disorder which kills slowly and is truly miserable. One may have it without displaying symptoms for a long, long while….but I would bet every possession and penny I own that you have it too, beautiful one. Please don’t suffer as your father did…it is entirely avoidable. If you are interested in learning more, go to a website such as Celiac.com (check out the topics in the forum) and read up because in this country, where medicine and doctors are controlled by Big Pharma and very income-driven, Celiac is grossly and sadly misdiagnosed…my own diagnosis took decades and I verged on the brink of malnourished death. God bless! x.

  • Upvote 1

Share this post


Link to post
Share on other sites


Ads by Google:


Way to go, Soooozle....  :)

Share this post


Link to post
Share on other sites

YES!  Good Job Susan, or Suzzells.  You can put it out there and hope that it's accepeted. That's all you can do.  You did good. :)

Share this post


Link to post
Share on other sites

HI Poeter ! I just re-wrote my whole introductory post. ;)

 

And, my comment is awaiting moderation.....sadly, I don't think she'll allow it.  was hoping more Celiacs would join in and also comment.  I don't know why but this article,  in connection with the dietitian who posted it (this is most likely the reason - my intense concern about her methods/beliefs as a dietitian) has got me rather riled !   Must head out now.....gorgeous day here.

 

my comment:

 

I am sorry for the loss of your father, and his struggles, this is so terribly sad and this is how Celiacs often die. What SCREAMS OUT at me in your beautifully-written article is his untreated Celiac Disease (“scarred intestines” CAN improve!)….gluten kills Celiacs. Period. Had he followed a strict, gluten-free diet from the time of diagnosis (did he? I am presuming he did not – forgive me if I am in error), his life would have changed dramatically and he would have dropped weight very easily (assuming he didn’t load up on gluten-free snacks). You are Vikings….Celiac is hugely common in Scandinavia (you can get gluten-free Big Macs there!), and it is a *genetic* auto-immune disorder which kills slowly and is truly miserable. One may have it without displaying symptoms for a long, long while….but I would bet every possession and penny I own that you have it too, beautiful one. Please don’t suffer as your father did…it is entirely avoidable. If you are interested in learning more, go to a website such as Celiac.com (check out the topics in the forum) and read up because in this country, where medicine and doctors are controlled by Big Pharma and very income-driven, Celiac is grossly and sadly misdiagnosed…my own diagnosis took decades and I verged on the brink of malnourished death. God bless! x.

 

What an eloquent post. I'm very proud of you! If the moderator doesn't post your reply then it's a very sad commentary. There was not anything you wrote that was questionable. I agree that you should change the doc's name to Beelzebub - (quite fitting under the circumstances). You go girlfriend!!!

 

I was very close with my cousin who was "morbidly obese." She got lap band surgery and it turned out her stomach was riddled with cancer and due to the surgery it wasn't found in time. She passed on within 3 months. I wasn't diagnosed with Celiac at that time but I wonder if she suffered from it.

 

Love,

Loey

Share this post


Link to post
Share on other sites

I read that story, and I couldn't see where he had celiac disease.  Anyone want to help me with that?

Share this post


Link to post
Share on other sites


Ads by Google:


I read that story, and I couldn't see where he had celiac disease.  Anyone want to help me with that?

 

 

"Eventually, doctors found he had celiac disease. A wasting disease. No one had bothered to look for such a condition in a fat man. Years of being in and out of the hospital, and no one asked why he was throwing up all his food. They joked it was probably for the best that his GI system wasn’t working well."

Share this post


Link to post
Share on other sites

"Eventually, doctors found he had celiac disease. A wasting disease. No one had bothered to look for such a condition in a fat man. Years of being in and out of the hospital, and no one asked why he was throwing up all his food. They joked it was probably for the best that his GI system wasn’t working well."

 

Thank you Kareng.  I must have a worse case of brain fog than I thought.  When I looked again I don't see how I could have missed it.

Share this post


Link to post
Share on other sites

I read that story, and I couldn't see where he had celiac disease.  Anyone want to help me with that?

Thirteenth paragraph, first sentence: "Eventually, doctors found he had celiac disease."

Share this post


Link to post
Share on other sites

Thank you too Peter.  Kareng already answered above.  Maybe I'm not the only one with brain fog... :rolleyes:

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,888
    • Total Posts
      943,369
  • Member Statistics

    • Total Members
      67,095
    • Most Online
      3,093

    Newest Member
    Lindsey24
    Joined
  • Popular Now

  • Topics

  • Posts

    • Hello!  When I find myself up at odd hours, I put on this celiac disease Mozart for Meditation... https://www.amazon.com/gp/aw/d/B000VFQ58U/ref=mp_s_a_1_1?ie=UTF8&qid=1516086445&sr=8-1&pi=SX350_PI_PJPrime-Sash-Extra-Large-2017,TopLeft,0,0_AC_SX118_SY170_QL70&keywords=mozart+for+meditation+celiac disease And I get out my dot to dot book, like one of these for adults.... https://www.amazon.com/gp/aw/s/ref=is_s_ss_i_0_5?k=dot+to+dot+books+for+adults&sprefix=dot+t&crid=2B42N4PRIT56H Sometimes I knit mindless objects such as hats, washcloths or socks.  Knitting has a soothing rhythm to it and is easy to learn... Or I read a book about knitting and life... https://www.amazon.com/gp/aw/d/1603420622/ref=mp_s_a_1_2?ie=UTF8&qid=1516087016&sr=8-2&pi=AC_SX236_SY340_FMwebp_QL65&keywords=McPhee+knitting&dpPl=1&dpID=51fHYy2xXsL&ref=plSrch Or a knitting mystery.... https://www.amazon.com/gp/aw/d/B001LRLJUG/ref=mp_s_a_1_6?ie=UTF8&qid=1516087587&sr=8-6&pi=AC_SX236_SY340_FMwebp_QL65&keywords=knitting+mysteries&dpPl=1&dpID=51z43F8UuuL&ref=plSrch Knitting is really easy to learn.  I find it soothing to work with natural fibers, organic cotton for washcloths or luscious alpaca for socks...  But I find it inadvisable to shop online in the wee hours...  😸 I've got way too much yarn now...hee hee hee...  besides, the light from electronic devices keeps your brain awake longer.... Hope this helps.... Knitty Kitty  
    • My only symptom was slight nausea. Lasted 6 months before it started to only happen if I ate too much food in a sitting. I would eat simple, bland foods and eat 6 small meals instead of three big ones.
    • I've lost some of my sense of taste due most likely to zinc deficiency from not eating beef for a couple of years. Zinc supplement doesn't seem to help, but eating .5 to 1 lb of beef per day definitely does help. I noticed a positive change within days of eating beef. I don't know if your diet includes beef, but if it doesn't there's a reason for you.   Zinc and Geographic Tongue
    • I was in your same boat when I was diagnosed. Terribly fearful of cancer and all the damage I unknowingly had done. I don’t cheat, but I’m not as good as I need to be at restaurants (I only order off gluten-free menus but I don’t talk to managers like I should, etc) and I eat out once a week with never having symptoms. My main symptom is absolute, complete brain fog. I am truly not the person I used to be. I’ve always had anxiety, so that wasn’t any worse, but I hate to say this about myself but i got “dumb”. It was my first week in nursing school when I was diagnosed. What a great time, huh? I had to stay at school until midnight-2am 4 nights a week just to try to focus and control this brain fog. I used to be smart, quick witted, and very present in the moment. I know life changes, but my life is busy yet very peaceful and I struggle with this daily. I can’t comprehend medical concepts quickly like before and it’s very depressing. I also have a pretty good diet but have weighed 165 (I’m 5’4”) for three years with doing cardio, training for marathons,  etc..nothing gets this weight off (have had thyroid issues since age 7). Anyways. You are not alone. My doctor diagnosed me 5 years ago and told me to stay gluten free and I never saw him again! No follow-ups... I had no clue I had to! Anyways, I have an appointment upcoming as well.  Best of luck to you ❤️
  • Upcoming Events