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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Article Shared By Dietitian Who Doesn't Believe Celiac Exists....
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19 posts in this topic

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DingoGirl    12

HI everybody,

 

I haven't posted in AGES here!  [not sure I'm posting this in the right spot?] But this article  - rather, the dietitian who posted it, got me rather agitated. 

 

 

Long long story (which I have just deleted) - but there is a dietitian with whom I am somewhat acquainted (who riles me up! she doesn't believe Celiac exists) who posted this writing (she did not write it) on her FB page last night.  This article makes me quite sad.....the dietitian's intent was to convey to her mainly eating-disorder clients that it is okay to not diet, accept your weight, etc.....but I was smacked in the head with this poor man's untreated (I presume) celiac and slow, horrible death.  HIs daughter wrote the article and i have left a comment today (SusieQ) which may or may not show up yet.

 

Take a look -

xo.

 

http://morecabaret.com/2013/05/07/why-i-dont-diet-an-ode-to-my-father/comment-page-7/#comment-953

Edited by DingoGirl

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kareng    1,992

Didn't see your comment. Maybe its not approved yet? Or I missed it?

I'm a little confused. This dietician who doesn't " believe" in Celiac posted this on her website? But the dietitician isn't the author, right? She just re- posted it?

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DingoGirl    12

Yes.....dietitian shared this on Facebook for her patients, but she didn't write it. 

 

My comment not there? hmmm.....maybe takes a while.  Or maybe it was too stupid?  ;)

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kareng    1,992

Yes.....dietitian shared this on Facebook for her patients, but she didn't write it. 

 

My comment not there? hmmm.....maybe takes a while.  Or maybe it was too stupid?  ;)

Did you share this on FB? I thought I saw it earlier.

On the site you link to, there don't appear to be any comments in the last few days.

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DingoGirl    12

Karen, I see you found me on there....my rants  ;)  did you see the article that was posted today, on that same site?  OH MY LORD......my ranting goes on there as well.....   :ph34r:

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DingoGirl    12

Now I feel bad.....I am wondering if I should have this post removed?  Didn't know my rants could be traced on FB....and the dietitian's identity known !  What do you think, Kareighnne?

 

Could simply post the article the girl wrote.....

 

I dunno.  Where is Poeter?  Let him decide :)

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kareng    1,992

Now I feel bad.....I am wondering if I should have this post removed?  Didn't know my rants could be traced on FB....and the dietitian's identity known !  What do you think, Kareighnne?

 

Could simply post the article the girl wrote.....

 

I dunno.  Where is Poeter?  Let him decide :)

I can find them because we are FB friends. Edit/ Change the dietitians name to Beelezbub and it will be harder for people who don't know you to find.

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psawyer    687

Well, I didn't see anything on FB and I am also a friend. The item linked to is harmless, but does not tie in with this supposed dietitian.

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DingoGirl    12

HI Poeter ! I just re-wrote my whole introductory post. ;) 

 

And, my comment is awaiting moderation.....sadly, I don't think she'll allow it.  was hoping more Celiacs would join in and also comment.  I don't know why but this article,  in connection with the dietitian who posted it (this is most likely the reason - my intense concern about her methods/beliefs as a dietitian) has got me rather riled !   Must head out now.....gorgeous day here.

 

my comment:

 

I am sorry for the loss of your father, and his struggles, this is so terribly sad and this is how Celiacs often die. What SCREAMS OUT at me in your beautifully-written article is his untreated Celiac Disease (“scarred intestines” CAN improve!)….gluten kills Celiacs. Period. Had he followed a strict, gluten-free diet from the time of diagnosis (did he? I am presuming he did not – forgive me if I am in error), his life would have changed dramatically and he would have dropped weight very easily (assuming he didn’t load up on gluten-free snacks). You are Vikings….Celiac is hugely common in Scandinavia (you can get gluten-free Big Macs there!), and it is a *genetic* auto-immune disorder which kills slowly and is truly miserable. One may have it without displaying symptoms for a long, long while….but I would bet every possession and penny I own that you have it too, beautiful one. Please don’t suffer as your father did…it is entirely avoidable. If you are interested in learning more, go to a website such as Celiac.com (check out the topics in the forum) and read up because in this country, where medicine and doctors are controlled by Big Pharma and very income-driven, Celiac is grossly and sadly misdiagnosed…my own diagnosis took decades and I verged on the brink of malnourished death. God bless! x.

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elye    96

Way to go, Soooozle....  :)

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Lisa    457

YES!  Good Job Susan, or Suzzells.  You can put it out there and hope that it's accepeted. That's all you can do.  You did good. :)

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Loey    81

HI Poeter ! I just re-wrote my whole introductory post. ;)

 

And, my comment is awaiting moderation.....sadly, I don't think she'll allow it.  was hoping more Celiacs would join in and also comment.  I don't know why but this article,  in connection with the dietitian who posted it (this is most likely the reason - my intense concern about her methods/beliefs as a dietitian) has got me rather riled !   Must head out now.....gorgeous day here.

 

my comment:

 

I am sorry for the loss of your father, and his struggles, this is so terribly sad and this is how Celiacs often die. What SCREAMS OUT at me in your beautifully-written article is his untreated Celiac Disease (“scarred intestines” CAN improve!)….gluten kills Celiacs. Period. Had he followed a strict, gluten-free diet from the time of diagnosis (did he? I am presuming he did not – forgive me if I am in error), his life would have changed dramatically and he would have dropped weight very easily (assuming he didn’t load up on gluten-free snacks). You are Vikings….Celiac is hugely common in Scandinavia (you can get gluten-free Big Macs there!), and it is a *genetic* auto-immune disorder which kills slowly and is truly miserable. One may have it without displaying symptoms for a long, long while….but I would bet every possession and penny I own that you have it too, beautiful one. Please don’t suffer as your father did…it is entirely avoidable. If you are interested in learning more, go to a website such as Celiac.com (check out the topics in the forum) and read up because in this country, where medicine and doctors are controlled by Big Pharma and very income-driven, Celiac is grossly and sadly misdiagnosed…my own diagnosis took decades and I verged on the brink of malnourished death. God bless! x.

 

What an eloquent post. I'm very proud of you! If the moderator doesn't post your reply then it's a very sad commentary. There was not anything you wrote that was questionable. I agree that you should change the doc's name to Beelzebub - (quite fitting under the circumstances). You go girlfriend!!!

 

I was very close with my cousin who was "morbidly obese." She got lap band surgery and it turned out her stomach was riddled with cancer and due to the surgery it wasn't found in time. She passed on within 3 months. I wasn't diagnosed with Celiac at that time but I wonder if she suffered from it.

 

Love,

Loey

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kareng    1,992

I read that story, and I couldn't see where he had celiac disease.  Anyone want to help me with that?

 

 

"Eventually, doctors found he had celiac disease. A wasting disease. No one had bothered to look for such a condition in a fat man. Years of being in and out of the hospital, and no one asked why he was throwing up all his food. They joked it was probably for the best that his GI system wasn’t working well."

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"Eventually, doctors found he had celiac disease. A wasting disease. No one had bothered to look for such a condition in a fat man. Years of being in and out of the hospital, and no one asked why he was throwing up all his food. They joked it was probably for the best that his GI system wasn’t working well."

 

Thank you Kareng.  I must have a worse case of brain fog than I thought.  When I looked again I don't see how I could have missed it.

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psawyer    687

I read that story, and I couldn't see where he had celiac disease.  Anyone want to help me with that?

Thirteenth paragraph, first sentence: "Eventually, doctors found he had celiac disease."

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