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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Confused About My Test Results

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I was tested for lactose intolerance when I was about 12 and it came back overwhelmingly positive. Since then my gastric symptoms have continued but I had just decided that was how I was and to deal with it. I suffer from constant diarrhea and constipation as well as severe bloating. I experienced highly irregular periods so I went on birth control to help regulate them. It wasn't until I suffered from post-reactive arthritis from a strep infection that I went to a rheumatologist who suggested I might have Celiacs. I have experienced nearly all the symptoms of celiac except I do not have the DH rash. However when I got the blood tests these were my results:

Total iga: 134 (within range)

Endomysial ab IgA: <1:10

Ttg IgA: 6 with <20 being negative

Gliadin IgA: 5 with <20 being negative

According to this, all of my tests are negative for celiac but I am convinced I have the disease. Though I have not been on a gluten free diet, I have pretty much stopped eating all bread products since October (7 months ago) could this have effected my test results? Or do I likely not have celiac?

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Yes being off most wheat could affect your results. it's also possible that you are 1) one of the rare celiacs who test negative or 2) you're non-celiac gluten intolerant, or 3) you have something else going on.


I'd suggest either upping your gluten intake and push for more tests, or if an official diagnosis doesn't matter to you, try going gluten-free for six months or so and see how you feel.

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