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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

gluten-free Oats Have A 1 In 20 Chance Of Causing Celiac Attack
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15 posts in this topic

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Laban    0

In australia they sell these oats as " gloriously uncontaminated oats " their website states the oats are gluten free .I am a celiac,I tried these oats and got sick for 10 days losing 4.5 kilos,I contacted these guys and here is a copy of the letter they sent me..I personally don't think 1 in 20 is an exceptable risk!!!!also this should be on the packaging!!!

"We are aware from studies conducted in the US that 1 in 20 coeliacs had a reaction to the Oats, which is similar to what you experienced. As it was such a small number the States and other countries have chosen to legislate that they be labelled "Gluten Free", however we are unable to make any claims of this nature in Australia which is why we label the oats, Uncontaminated."Sadly I guess you fall into the 1 in 20."

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kareng    1,992

Your reaction isn't the company's fault. It is well known that a small percentage of Celiacs react to oats, even the gluten free ones.

Gluten free, or un contaminated as is required labelling in your country , means that there is no accidental wheat in the oats. Common, non- gluten-free or un contaminated oats might have wheat in them due to growing & harvesting practices.

Each person with Celiac must decide for themselves if they want to try oats. I think your assertion that it is 20% may be a bit high.

http://www.cureceliacdisease.org/archives/faq/do-oats-contain-gluten

"Do oats contain gluten?

A large body of scientific evidence accumulated over more than 15 years has proven that oats are completely safe for the vast majority of celiac patients. Oats are not related to gluten-containing grains such as wheat, barley and rye. They don’t contain gluten, but rather proteins called avenins that are non-toxic and tolerated by most celiacs (perhaps less than 1% of celiac patients show a reaction to a large amount of oats in their diets).

Oats can be in a celiac’s diet provided they are selected from sources that guarantee a lack of contamination by wheat, rye or barley.

Some who add oats to their diet may experience GI symptoms. This may actually be a result of the increased fiber that oats provide instead of a reaction to the oats themselves."

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kareng    1,992

http://www.csaceliacs.info/guide_to_oats.jsp

This one recommends limiting the amount of gluten-free oats eaten by a Celiac. Neither say 1 in 20 will react.

Please be careful making sweeping claims like this which are not backed up by facts.

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Laban    0

Your reaction isn't the company's fault. It is well known that a small percentage of Celiacs react to oats, even the gluten free ones.

Gluten free, or un contaminated as is required labelling in your country , means that there is no accidental wheat in the oats. Common, non- gluten-free or un contaminated oats might have wheat in them due to growing & harvesting practices.

Each person with Celiac must decide for themselves if they want to try oats. I think your assertion that it is 20% may be a bit high.

http://www.cureceliacdisease.org/archives/faq/do-oats-contain-gluten

"Do oats contain gluten?

A large body of scientific evidence accumulated over more than 15 years has proven that oats are completely safe for the vast majority of celiac patients. Oats are not related to gluten-containing grains such as wheat, barley and rye. They don’t contain gluten, but rather proteins called avenins that are non-toxic and tolerated by most celiacs (perhaps less than 1% of celiac patients show a reaction to a large amount of oats in their diets).

Oats can be in a celiac’s diet provided they are selected from sources that guarantee a lack of contamination by wheat, rye or barley.

Some who add oats to their diet may experience GI symptoms. This may actually be a result of the increased fiber that oats provide instead of a reaction to the oats themselves."

Sorry but I did not know of this "well known fact about oats" I have not long been diagnosed and trusted this company !

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psawyer    687

Some people with celiac disease react to oats, even if they are free of cross contamination. The protein in oats is somewhat similar to that in the other grains that trigger the celiac disease reaction. I tolerate pure oats, but would not consider a commercial product with oats as an ingredient.

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kareng    1,992

The oats are gluten free. Like I said before, its not the companies fault if you react to oats. It is common for people with Celiacs to have other food intolerances. Some even go away after you have healed.

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I can't find the study which gives the 5% figure, which I have heard before.  Here is discussion of one that showed villous atrophy, so I don't think that is considered a food intolerance, but a celiac disease complication.  http://www.celiac.com/articles/717/1/Oats-Induce-Villous-Atrophy-in-Some-Celiacs/Page1.html

 

Some of us shouldn't eat oats, myself included.  The company who made the oats I tried did include a warning and I tried them anyway and a whole half cup too.  I was also sick for a long time afterwards.  It was my fault.  This condition requires a lot of education and I had to learn a lot of it the hard way.

 

People who try gluten free oats for the first time, please learn from my mistake and only try a little at first.

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GottaSki    459

Two of us in my family can't eat gluten-free Oats right now -- hope to get them back one day soon.

 

Four of us can.

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Gemini    785

I have no issue with gluten-free oats at all and am glad of that as I love them. My gut was totally trashed at diagnosis and I wasn't absorbing anything but I can eat oats now

so there is hope for many others.

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GFinDC    609

Oats don't like me anymore.  I think it was the CSA that sponsored a research project on oat reactions in celiacs a few years back.  Pretty sure their result was something like 10% of celiacs that react to oats.  But the was just one study, so maybe things have changed.  We have gluten-free oats marketed in the USA also Laban.  Bob's Red Mill sells them.  They make me sick and some other celiacs too.  If you are not one of the people who react to them they are fine.  But it may be better to wait 6 months to a year (until you are healed up some) before trying them again.

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tarnalberry    314

It isn't super well known, unless you are on a forum like this, but yes - I've seen in the scientific literature numbers between 5% and 10% of celiacs will react to avenin (the oat protein) because it is structurally similiar to gliadin (the wheat protein in play for celiac).  Other celiacs can eat them just fine.  It has nothing to do with the company in particular.

 

OP, I'm sorry that you got bitten by this and didn't know about this fact.

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Brandiwine    16

I'm glad I read this thread, I've been wanting oats, I used to eat them a lot but haven't tried them since going gluten-free. I'm only two months in and have pretty much given up everything except fruits and veggies, seems like everything else makes me sick! I hate the blindsided feeling, thinking I've been so safe and careful then feel sick and spend days trying to pin point what it is. I was going to try oats, I bought Bobs Red Mill the first week but haven't tried them yet. I knew that serval ppl on here had oat issues, and I just don't want to get sick! To me it's worth only eating fruits veggies just to never feel like that again!!! Guess I need to get over it, maybe just try a couple bites. I don't like having such a limited diet :-/

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GottaSki    459

I'm glad I read this thread, I've been wanting oats, I used to eat them a lot but haven't tried them since going gluten-free. I'm only two months in and have pretty much given up everything except fruits and veggies, seems like everything else makes me sick! I hate the blindsided feeling, thinking I've been so safe and careful then feel sick and spend days trying to pin point what it is. I was going to try oats, I bought Bobs Red Mill the first week but haven't tried them yet. I knew that serval ppl on here had oat issues, and I just don't want to get sick! To me it's worth only eating fruits veggies just to never feel like that again!!! Guess I need to get over it, maybe just try a couple bites. I don't like having such a limited diet :-/

 

I would give the BRM gluten-free Oats a try -- perhaps late in the day the first time!

 

Fruits and vegies aren't enough to live off long term -- Are you getting enough protein and good fats -- meat, fish eggs, legumes or nuts?

 

I get the everything giving you a reaction deal...hang in there... you will find more foods you can eat.

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Brandiwine    16

I would give the BRM gluten-free Oats a try -- perhaps late in the day the first time!

Fruits and vegies aren't enough to live off long term -- Are you getting enough protein and good fats -- meat, fish eggs, legumes or nuts?

I get the everything giving you a reaction deal...hang in there... you will find more foods you can eat.

I don't eat meat or eggs. I do eat lots of beans, kale, avocados, nuts and seeds.

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