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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Elimination Diet
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So, I have been browsing around elimination diets and I really think I need structure. Such as: add ingredient 1 after so many days and document how you feel. 

 

But I have been browsing all these different elimination diets and they are vary. Does anyone have a good resource for celiac elimination diets? 

 

Thanks, as always, for your help.

 

Jesse

 

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IrishHeart    1,634

here is what I did for one month about 6 months after DX,,,,just to "clear the decks" so to speak.

It is called the Failsafe diet (google it but here is the explanation

 

"The FAILSAFE diet is a diet designed to be free of additives, low in salicylates, amines and flavour enhancers. It is Sue Dengate‘s term for the low-chemical exclusion diet formulated by allergists at the Royal Prince Alfred Hospital in Australia. It is designed to treat sensitivities to specific natural and man-made flavouring, colouring and preservative chemicals found in foods.

 

 

In a nutshell, it looks like this:

 

Failsafe Diet

NO tea, fruit or veg juices, wine, CORN, lunch meats, gum, mints, fruit-flavored candy or sorbets, sherbets, pickles, vinegar or fermented foods.

No chicken. NO dried fruits, berries, or citrus.

 

What is allowed:

 

White rice , brown rice

Peeled white potatoes

green beans

brussels sprouts

cabbage

celery

chives, coriander, garlic

leeks, green scallions

iceberg lettuce

peeled pears

bananas

lime

rutabaga

small individual canned pears in syrup

organic butter

goat milk/cheese

buffalo milk/ cheese

Dairy: mozzarella, sour cream, plain yogurt, farmer's cheese/cottage cheese, plain cream cheese

ricotta cheese, milk

eggs

fresh, unroasted cashews

pecans

hazelnuts

sunflower seeds

beef

veal

lamb

fish

white sugar

maple syrup

Lyle's golden syrup

carob, cocoa

homemade caramel

Oils: canola, safflower (but not olive)

decaf instant coffee

water

 

Then, I added ONE food protein each week. ONE gluten-free grain the following weeks....etc. and took notes.

 

I found I still had some problems, but it was BECAUSE I WAS STILL HEALING MY GUT!

 

The so-called 4 day rotation diet..is not long enough for any delayed reaction to occur or clear from the body

This Failsafe Diet is a proven medical allergen diet..

 

 

now that you have read the list.....still want to do it? :)

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I do elimination dieting to check items for cc.  My level of sensitivity is lower than the amount allowed in gluten-free food, so that label isn't necessarily safe for me.  I have noticed that it can take a week or so for a reaction to be noticeable.  I try to only add one thing per week. If something bothers me, sometimes I need to wait a couple of weeks to recover before i can try another item.  When I am having a reaction and don't know the cause, I may eliminate more quickly because I want to get better ASAP.

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ravenwoodglass    1,222

I was diagnosed in large part due to a elderly but very savvy allergist who first tested for true allergies. He then had me do an in depth review of what I usually ate and formulated a starting point with only 5 foods, no spices other than salt and only water and the one juice that was part of the five foods. For me he choose all foods I rarely ate and really didn't care for much as he said those would be likely to be least reactive for me. He formulated the starting point so that I would be sure to have enough calories, protein and vitamins. My five foods were turkey, sweet potatoes, peas, pineapple and cranberry juice. Once my symptoms resolved, which took a couple weeks, I was allowed to add in one food per week in a pure of a form as possible. Since intolerance reactions are often delayed he would only let me keep a food in after I had consumed it 3 times a day for a full week with no reaction. 3 days after I added cream of wheat back in the results were severe. He then referred me back to my GI for official confirmation of celiac.

It isn't always easy to find an allergist who will also deal with intolerances but for me the search was well worth it.

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Kate79    16

I did the Whole30 diet for a couple of months.  It eliminates all added sugars, all grain products, all processed oils, dairy, legumes and alcohol.  Basically, you just eat fruits, vegetables, meat, fish, eggs and nuts for a month.  They've got a stricter version that also eliminates nuts and eggs, and nightshades.  I just started the re-introduction phase by adding corn over the weekend - they have you add something back for 1-2 days, see how you feel, and then try the next thing for 1-2 days.  I felt pretty good on the diet - good sleep, fewer problems with seasonal allergies, etc.  I think a lot of it was lowering my sugar, yeast and alcohol intake, and eliminating cross contamination from 'gluten free' processed foods, as I'm pretty sensitive.

 

They've got a website and book - I didn't bother to read the book; the website has pretty much all the info you need, as well as a good forum.

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Might I ask what kind of reactions you were seeing? I'm in a difficult place when trying to consider what is expected with my healing process and what is a negative reaction. I don't quite know my body well enough yet and was not diagnosed for years... so I just kind of grew accustom to feeling lousy since the doctor's were not sure of my problem.

 

 

I was diagnosed in large part due to a elderly but very savvy allergist who first tested for true allergies. He then had me do an in depth review of what I usually ate and formulated a starting point with only 5 foods, no spices other than salt and only water and the one juice that was part of the five foods. For me he choose all foods I rarely ate and really didn't care for much as he said those would be likely to be least reactive for me. He formulated the starting point so that I would be sure to have enough calories, protein and vitamins. My five foods were turkey, sweet potatoes, peas, pineapple and cranberry juice. Once my symptoms resolved, which took a couple weeks, I was allowed to add in one food per week in a pure of a form as possible. Since intolerance reactions are often delayed he would only let me keep a food in after I had consumed it 3 times a day for a full week with no reaction. 3 days after I added cream of wheat back in the results were severe. He then referred me back to my GI for official confirmation of celiac.

It isn't always easy to find an allergist who will also deal with intolerances but for me the search was well worth it.

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ravenwoodglass    1,222

Might I ask what kind of reactions you were seeing? I'm in a difficult place when trying to consider what is expected with my healing process and what is a negative reaction. I don't quite know my body well enough yet and was not diagnosed for years... so I just kind of grew accustom to feeling lousy since the doctor's were not sure of my problem.

In the elimination diet phase of my diagnosis the largest reaction I recognized was a return of extremely painful D that happened both during the day and would wake me in the middle of the night. I also got a worsening of my ataxia problems and migraines reappeared. .

After I had healed for a couple months gluten free other symptoms like overwhelming short term depression and muscle and bone pain became more obvious when I was accidentally glutened.  I did have to heal a bit for those symptoms to resolve and didn't even realize they were celiac related until they disappeared gluten free.

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