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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Tests Say Celiac, But No Symptoms
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9 posts in this topic

My daughter was diagnosed with Celiac roughly 1 month ago.  She was super sick from January until recently. She worked in a bakery and we think she probably has always had celiac -- looking back. As soon as she began working around bakers flinging flour around and her making sandwiches, all heck broke loss and threw her into full blown illness. I am glad I had the presence of mind to take her in for testing. We are adjusting to this new way of life in our house and in her life as she prepares to leave home for college. The GI doctor suggested that my husband and I get tested as a follow up, since it is most commonly passed down. In my annual visit to my gynecologist a few days ago, I asked her to run the panel. I just did it because the GI doctor suggested that I should. I was fully confident that I was fine.  To my complete and utter shock, it came back positive! My Ttg was 63, which according to our lab range is definitely high. 

 

The thing is, physically I FEEL fine! I don't have many of the symptoms that I read about so many Celiac's having.  I have regular BM's like clock work. I eat healthy already. I naturally avoid cakes, cookies and bread anyway. I just don't care for those things. So I am wondering, here I am at 46, and thinking do I really need to do anything about it now? In all truthfulness though, with my daughter having just recently been diagnosed, I feel it would be hypocritical to not adhere, and preach to her that she must adhere. She is feeling 90% better after one month.

 

This past year (since August 2012) has been horrible, I had many life changes, which caused me great anxiety. Husband's job loss, one daughter moving back in after 2 years at college, mid-life emotions, another daughter preparing to leave for college, other responsibilities --yada yada... I figured these changes were what made me FEEL awful -- depressed, anxious, confused and unable to really think clearly. Now I am wondering how does all of this fit together. I am super confused.  Is it life changes and extenuating circumstances, or Celiac, and if Celiac, why now after all these years???

 

I used to weigh 115 and now I weigh 108, since March. I feel like the weight loss is d/t the stress of job loss, I looked at food and just could not eat because my tummy was tied in knots. So physically I feel ok, emotionally a little less than fine, but on the up swing since all of the above mentioned things are leveling out, so any ideas on how to approach this?

 

Thanks -- this is my first post  :D

 

 

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Yep.  I went in for a routine colonoscopy and the GI doc told me he suspected Celiac.  He ordered blood tests and six weeks later I was scoped.  No tummy issues.  Just some anemia that I've dealt with all my life.  I do have Hashimoto's Thyroiditis, but I've had that over 15 years.  

 

Needless to say I was shocked!  My husband's been gluten-free for 12 years.  Wheat didn't bother me (or so I thought)!  

 

So, it's been an easy transition to the diet because I've been living it (preparing meals for my hubby).

 

Not adhering to the diet will cause future problems.    

 

 

Get your husband to covert too (at least in the house). My daughter's doing well on the gluten-free diet.  She's gets gluten treats in her lunch, but otherwise, she's gluten free.  

 

Good Luck!

 

 

 

 

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welcome aehills01  :)

 

I'm so glad you were able to figure out what was going on with your daughter!  ok don't take this the wrong way because I am far from perfect and don't want to sound self-righteous, but as a parent you have the chance to influence your children's lives every day.  that is an awesome opportunity, and I'm guessing your daughter wouldn't mind having a partner in crime ;)  I recently heard this great story that made me think of your statement above of not wanting to seem like a hypocrite to your daughter.  I'm pasting the story from this link http://interviewangel.com/gandhis-lesson-in-creative-cooperation/

 

There was a six-year old boy living in the same Indian community as Mahatma Gandhi.

This boy had a very strong sweet tooth.  He couldn’t resist sugar.

Because he was diabetic, the sugar created painful boils all over his body.

His parents took him to the doctor, who said the boy must avoid all sweets; otherwise, the ailment would not go away.

The parents nagged the boy every day to stop eating sugar, but this was a challenge the boy wasn’t willing to overcome.

In desperation, the boy’s mother came to Gandhi and asked if he could please convince her boy not to eat sweets.

Gandhi said, “Come back in 15 days and I’ll speak to him then.”

So the mother came back after 15 days.

Gandhi took her son aside and spoke to him for a few minutes.

The boy went home and immediately gave up sweets.

The mother was puzzled.

She asked Gandhi later, “Why did you ask us to come back after 15 days? And what miracle did you perform to get my son to quit eating sweets?”

Gandhi replied that it wasn’t a miracle.

Said Gandhi, “When your boy first came to me, I too had been eating sugar.”

He had told the boy that he couldn’t ask him to do something he, Gandhi, wasn’t willing to do himself.

 

 

 

you don't have symptoms, but you have silent celiac, which means even though you don't have symptoms, gluten is damaging your body.  travel this journey together with your daughter :) Have you gotten your nutrient levels tested?  Since those with celiac are often deficient in nutrients, I would suggest the following tests:

 

Vitamin/Minerals:

Complete Blood Count (CBC)

Complete Metabolic Profile (CMP)

Vitamin B-12

Folic Acid

Vitamin A, D, E, K

Ferritin

Iron

Magnesium

Zinc

Copper

Niacin

Riboflavin

C-Reactive Protein

Good info from University of Chicago Celiac Center:

http://www.cureceliacdisease.org/archives/faq/what-common-nutrient-deficiencies-might-an-adult-experience-prior-to-diagnosis

 

let us know if you have any other questions!

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Welcome to the boards.

 

It sounds like you do have some symptoms like cognitive problems and anxiety - both really common symptoms. Fatigue and weight loss are more common symptoms. I bet you are also low in some vitamins,which P of P listed above, and that can affect your quality of life.  I wouldn't be surprised if you have some other symptoms like headaches or achy joints? What about hair thinning out slowly over the years or even premature grey hairs?

 

If you look up a comprehensive list of symptoms of celiac disease, you might be surprised to find you have a few of the non-classic symptoms...

 

I hope you will go gluten-free. Eating gluten will keep your body in a constant state of inflammation which is a bad thing if you want to avoid heart disease, cancer or triggering other autoimmune problems like thyroiditis. You will be hurting yourself, and setting a bad example for your daughter if you continue to eat gluten.  You really should stop. :( It will be hard the first few weeks, but after a few months, it really does get very easy. Honest!

 

And if you have any other children, you should have them tested too,

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My daughter was diagnosed with Celiac roughly 1 month ago.  She was super sick from January until recently. She worked in a bakery and we think she probably has always had celiac -- looking back. As soon as she began working around bakers flinging flour around and her making sandwiches, all heck broke loss and threw her into full blown illness. I am glad I had the presence of mind to take her in for testing. We are adjusting to this new way of life in our house and in her life as she prepares to leave home for college. The GI doctor suggested that my husband and I get tested as a follow up, since it is most commonly passed down. In my annual visit to my gynecologist a few days ago, I asked her to run the panel. I just did it because the GI doctor suggested that I should. I was fully confident that I was fine.  To my complete and utter shock, it came back positive! My Ttg was 63, which according to our lab range is definitely high. 

 

The thing is, physically I FEEL fine! I don't have many of the symptoms that I read about so many Celiac's having.  I have regular BM's like clock work. I eat healthy already. I naturally avoid cakes, cookies and bread anyway. I just don't care for those things. So I am wondering, here I am at 46, and thinking do I really need to do anything about it now? In all truthfulness though, with my daughter having just recently been diagnosed, I feel it would be hypocritical to not adhere, and preach to her that she must adhere. She is feeling 90% better after one month.

 

This past year (since August 2012) has been horrible, I had many life changes, which caused me great anxiety. Husband's job loss, one daughter moving back in after 2 years at college, mid-life emotions, another daughter preparing to leave for college, other responsibilities --yada yada... I figured these changes were what made me FEEL awful -- depressed, anxious, confused and unable to really think clearly. Now I am wondering how does all of this fit together. I am super confused.  Is it life changes and extenuating circumstances, or Celiac, and if Celiac, why now after all these years???

 

I used to weigh 115 and now I weigh 108, since March. I feel like the weight loss is d/t the stress of job loss, I looked at food and just could not eat because my tummy was tied in knots. So physically I feel ok, emotionally a little less than fine, but on the up swing since all of the above mentioned things are leveling out, so any ideas on how to approach this?

 

Thanks -- this is my first post  :D

 

 

welcome aehills01  :)

 

I'm so glad you were able to figure out what was going on with your daughter!  ok don't take this the wrong way because I am far from perfect and don't want to sound self-righteous, but as a parent you have the chance to influence your children's lives every day.  that is an awesome opportunity, and I'm guessing your daughter wouldn't mind having a partner in crime ;)  I recently heard this great story that made me think of your statement above of not wanting to seem like a hypocrite to your daughter.  I'm pasting the story from this link http://interviewangel.com/gandhis-lesson-in-creative-cooperation/

 

There was a six-year old boy living in the same Indian community as Mahatma Gandhi.

This boy had a very strong sweet tooth.  He couldn’t resist sugar.

Because he was diabetic, the sugar created painful boils all over his body.

His parents took him to the doctor, who said the boy must avoid all sweets; otherwise, the ailment would not go away.

The parents nagged the boy every day to stop eating sugar, but this was a challenge the boy wasn’t willing to overcome.

In desperation, the boy’s mother came to Gandhi and asked if he could please convince her boy not to eat sweets.

Gandhi said, “Come back in 15 days and I’ll speak to him then.”

So the mother came back after 15 days.

Gandhi took her son aside and spoke to him for a few minutes.

The boy went home and immediately gave up sweets.

The mother was puzzled.

She asked Gandhi later, “Why did you ask us to come back after 15 days? And what miracle did you perform to get my son to quit eating sweets?”

Gandhi replied that it wasn’t a miracle.

Said Gandhi, “When your boy first came to me, I too had been eating sugar.”

He had told the boy that he couldn’t ask him to do something he, Gandhi, wasn’t willing to do himself.

 

 

 

you don't have symptoms, but you have silent celiac, which means even though you don't have symptoms, gluten is damaging your body.  travel this journey together with your daughter :) Have you gotten your nutrient levels tested?  Since those with celiac are often deficient in nutrients, I would suggest the following tests:

 

Vitamin/Minerals:

Complete Blood Count (CBC)

Complete Metabolic Profile (CMP)

Vitamin B-12

Folic Acid

Vitamin A, D, E, K

Ferritin

Iron

Magnesium

Zinc

Copper

Niacin

Riboflavin

C-Reactive Protein

Good info from University of Chicago Celiac Center:

http://www.cureceliacdisease.org/archives/faq/what-common-nutrient-deficiencies-might-an-adult-experience-prior-to-diagnosis

 

let us know if you have any other questions!

The story was very poignant, and I don't take your comments as offensive at all, so don't worry about that.

 

I appreciate your input SO much. I do have a follow up appointment with the GI doctor for my daughter and plan to further investigate whether I should get an endoscopy. I cook gluten free at home, just to keep things more simple for all of us, so that part won't be hard. I just need to get used to the idea, that I am now included in the condition. It's funny because I did a lot of research on foods, restaurants, recipes and stores to help HER, now I need to implement it myself.

 

 I have been super thin my whole life. People always ask me "what do you do to stay so thin?" My response has always been "that's just the way I am."  Hmmmm, now there may be more to the story. It will be interesting to see how this unfolds. Thanks for your time in answering/addressing my comments.

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Welcome to the boards.

 

It sounds like you do have some symptoms like cognitive problems and anxiety - both really common symptoms. Fatigue and weight loss are more common symptoms. I bet you are also low in some vitamins,which P of P listed above, and that can affect your quality of life.  I wouldn't be surprised if you have some other symptoms like headaches or achy joints? What about hair thinning out slowly over the years or even premature grey hairs?

 

If you look up a comprehensive list of symptoms of celiac disease, you might be surprised to find you have a few of the non-classic symptoms...

 

I hope you will go gluten-free. Eating gluten will keep your body in a constant state of inflammation which is a bad thing if you want to avoid heart disease, cancer or triggering other autoimmune problems like thyroiditis. You will be hurting yourself, and setting a bad example for your daughter if you continue to eat gluten.  You really should stop. :( It will be hard the first few weeks, but after a few months, it really does get very easy. Honest!

 

And if you have any other children, you should have them tested too,

Thank you so much for your thoughts. Like I mentioned in the other response, I plan to further investigate, and for sure I will go gluten free. I have to. I want to be a good example to my daughter -- of course. But also for my own health and future. You are so kind to respond to my questions, thank you.  Do you know of a place to look for a comprehensive list of symptoms? I found one person post that she had a runny nose for 20+ years, just plain old post nasal drip, and once she stopped gluten that ended also. That is ME. I have a kleenex tucked in ever pocket of pants, jacket, bag, purse etc. because my nose ALWAYS drips. That is just how my kids know me is carrying a kleenex, so that will be interesting to see if that ends.

 

I started going grey at 29, my hair has not thinned, however. I don't have aches or joint pain, or headaches. But it will be interesting to see if the fatigue, anxiety and brain fog go away. 

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hello & welcome :)  hey,, check my s/n - is it me who has celiac??  NOPE lolz - i was in denial for probably 5 months.  indeed, i have celiac.  like you, i was wasting away!  it came to the point that i was so sick, my doc threatened hospitalization.  ain't nobody got time for that - i dragged my feet, trying to blame everything else for my ill health.  i do not know why, i guess i hate change (who doesn't), but in retrospect, i could have been feeling better for those 5 months.  you would not *believe* how many symptoms i 'didn't' have (that i didn't notice i was suffering from) until they went away!  i had a CONSTANT headache <just thought it was a part of being 40+) i just woke up one day and noticed it didn't feel like i had been crossing my eyes all day lolz.  i am not fatigued anymore (still lazy, tho, haha) my hair came 'back' etc etc etc 

 

read the newbie 101 thread, it will give you some insight and handy info.  good luck!  :)

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That is a good list, but I laughed because my only symptoms were stomach pain and bloat, C, and fatigue... No wonder I had to diagnose myself before the doctor agreed. Lol ;)

The link for 300 symptoms was on the page that P of PT gave you. http://www.cureceliacdisease.org/wp-content/uploads/2011/09/CDCFactSheets10_SymptomList.pdf

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    • Feeneyja and Captain NCGS, and Ironictruth It could be SIBO or it could be NCGS as Captain NCGS pointed out. see this research that matches your 84% of SIBO patients. https://www.celiac.com/articles/24058/1/Large-Number-of-Irritable-Bowel-Syndrome-Patients-Sensitive-to-Gluten/Page1.html Below I summarize their findings I quote “nearly 84% of the gluten- free placebo group showed a significant improvement in symptoms compared to just under 26% for the gluten consuming group.  This study confirms that a large number of patients diagnosed with irritable bowel syndrome are sensitive to gluten.  The team (of doctors) suggest that the term of IBS might be misleading (you think) and may change or delay an “effective and well-targeted treatment strategy in gluten sensitive patients”. “ This is in IBS patients already who fulfilled Rome III (lesion) criteria.  They should at least be considered Non-Celiac Gluten Sensitivity (NCGS) but that would be to admit NCGS is a real condition. If you are having NCGS symptom’s (Marsh Lesion) aka Rome III lesions then why is the diagnosis not NCGS instead of IBS?  The problem is most NCGS (apparently 84%) is misdiagnosed as IBS in a large number of cases or possibly SIBO in your case Feeneyja. Even when 84 % of those with IBS show sensitivity to gluten the diagnosis of Non-Celiac Gluten Sensitivity is not confirmed by a simple gluten antibody test and people  consider Non-Celiac Gluten Sensitive (NCGS at least in the medical community apparently) a myth rather they diagnosis someone’s digestive problems with IBS of an unknown cause instead of admitting gluten is the trigger thus allowing them to avoid what is considered a mythical diagnosis to some in the medical community. By all means if  you have been given an IBS or SIBO diagnosis insist at the least on a gluten antibody test and you may save yourself many years’ of suffering before the doctor’s figure out that Gluten is the trigger then you have hope for recovery if you get the right disease. And I don't mean NCGS. Because even this too is confusing low stomach acid I believe with IBS, NCGS and even SIBO. See my posterboy blog post about why  I think this is. JMG aka Captain NCGS I referenced the Columbia University Medical Center (CUMC)  research on NCGS that I think proves your point and mine. here is the care2 article that I think summarizes it well. http://www.care2.com/causes/new-study-confirms-existence-of-non-celiac-gluten-sensitivity.html NCGS is on the "Celiac Spectrum". quoting dr. hyman from the huffpost 5+ years ago and still people seem them as different diseases (or at least deny the existence of the one over the other) http://www.huffingtonpost.com/dr-mark-hyman/gluten-what-you-dont-know_b_379089.html "When you get these tests, there are a few things to keep in mind. In light of the new research on the dangers of gluten sensitivity without full blown celiac disease, I consider any elevation of antibodies significant and worthy of a trial of gluten elimination. Many doctors consider elevated anti-gliadin antibodies in the absence of a positive intestinal biopsy showing damage to be “false positives.” That means the test looks positive but really isn’t significant. We can no longer say that. Positive is positive and, as with all illness, there is a continuum of disease, from mild gluten sensitivity to full-blown celiac disease. If your antibodies are elevated, you should go off gluten and test to see if it is leading to your health problems." and the columbia research bears this out. ironictruth you want to catch it at the NCGS stage before it becomes full blown (villi burned to the ground) Celiac disease. You are right to run from the burning house (antibodies) causing you a weak but "positive" diagnosis. This concept of the biopsy "proven" diagnosis is archaic at best and barbaric at worse in this age of serology proven diagnosis of NCGS before the villi burns to the ground so to speak. see this online article by dr. rodney ford that discusses why this is today. http://drrodneyford.com/extra/documents/236-no-gold-standard.html and he too (though in minority) is forward enough thinking to diagnose his patients with serology alone. Why would we use a standard 60+ years old when modern medicine can diagnose the disease much better and much, much sooner than what till there is stage 3 marsh lesions. The dgp test you had can diagnose it the intraepithelial lymphocytes (IEL)  stage. That is good news.  The villi are already smoking (using my analogy) of a burning house from antibodies attacking the body. Problem is and I mean this as a complement to SIBO girl and Captain NCGS (I was this in an article about the ZIKA outbreak patients talking how much more they (those affected by the disease) knew than their doctor's who where treating them at the time) we (us) have become doctor's without diplomas'. One of us each has become an expert at recognizing SIBO, NCGS and Pellagra. The question is which one is right??? Maybe we are all right by degrees. I believe NCGS can be confused for SIBO. But I also believe and the research confirms it in my mind that low stomach acid mimics many of the symptom's of both SIBO and NCGS. So that tells me there is still a disease not yet correctly identified. To me the disease that answer's the most questions in my mind is Pellagra. Ironictruth, Freneyja, JMG taking a b-complex can disprove or prove this theory. here is the full paper by Prousky. http://orthomolecular.org/library/jom/2001/articles/2001-v16n04-p225.shtml decide for yourself but people routinely get better in 3 months time of taking  niacinamide 2 to 3 times daily or a b-complex and niacinamide 3/day for 3 months. The dosage does not matter.  It is the frequency. And a month will be enough to see improvement (100 count bottle).  I used to recommend to my friends a 100 count bottle because it was the most common way to find either Niacin/Niacinamide or a b-complex but when I found out your body could store 3 months worth in the liver and my experience with b-2 (riboflavin) and angular cheilitis (look it up on google images if you don't know what it is) for years probably 5+ I could not get rid of it for nothing. And I took b-2 (for a 100 count round) once before but learned b-vitamins needed to be taken frequently for best effect. So I bought a 300 count bottle (3 months worth) and took them (b-2/riboflavin) 2 to 3 day and the angular cheiliitis (leaking lips, cracked fissures at the side of the mouth) and it was nice and crusty went away and they have never come back since. but this was after I took the B-3 Niacinamide for a couple months firsts then I was able to absorb the b-2 (riboflavin) now and I put this condition in remission (i did not say cure) because if I get low again it might come back but remission. The same thing happened to my GI problems associated with NCGS (serology positive celiac diagnosis) without a biopsy proven (thank God) diagnosis. And that is my story. I would suggest jmg, feeneyja and you too too ironictruth buy a b-complex and see if a couple three months regimen might help put your GI symptom's in remission. we already know from research 5+ years ago that b-vitamins help celiac's with their well being. https://www.celiac.com/articles/21783/1/B-Vitamins-Beneficial-for-Celiacs-on-Gluten-Free-Diet/Page1.html quoting "For 6 months, patients received daily doses of either a placebo, or of B vitamins in the amount of 0.8 mg folic acid, 0.5 mg cyanocobalamin and 3 mg pyridoxine." They summarize quoting "These improvements, the normalization of tHcy levels, together with the substantial increase in well-being, led the research team to conclude that people living gluten-free with long-term celiac disease do indeed benefit from daily supplemental doses of vitamin B, and that doctors should consider advising the use of B vitamins supplements for these patients." So I am just saying what the doctor's recommend when recommending Niacinamide for your GI problems that Pellagra could be mimicking (masking the true cause) hence the 58% of celiac also have pellagra (that a majority) of Celiac's also are known to have. I am not a doctor.  But You can be a professor though with a masters so while I do preach Pellagra as a co-morbid condition of NCGS/Celiac disease it is only because the doctor's with diploma's research bears this out. So I try and make more people aware of this fact. (no I do not have  a master's either though a friend once said who has a masters said my research would qualify me if I had taken the courses) (And yes I know B-3 was not studied in this paper) but maybe now is the time to point out it should bee! Or SIBO girl, and Captain NCGS you can try it (B-3) for yourselves and see if it helps you the way it did the Pellagra kid/posterboy. If you want to study this topic more I summarized many of thoughts in this posterboy post https://www.celiac.com/gluten-free/blogs/entry/2103-why-and-how-pellagra-is-often-confused-with-celiac-disease-andor-other-gidigestive-problems-the-science-of-pellagra-a-hidden-epidemic-in-the-21st-century-presentingrevealing-as-ncgs-andor-possbily-celiac-disease/ I wrote a blog post that also said "I had Celiac disease but developed Pellagra" but I really think it is the other way around. (it is linked in the above post) if you want to read it there so I won't post it again. I was a pellagrain who was diagnosed first as a celiac.  The same way a SIBO might first be diagnoses as a IBS or NCGS patient.  Or the way a NCGS is first diagnosed as a IBS patient 84% of the time. Remission is possible I believe if and when you find the right/correct disease. And any of these GI conditions can be confused for the other and SIBO girl and Captain NCGS makes good points. But it seems to me Pellagra can be confused for not only the SIBO, NCGS, but if the research is right 58% (the majority) of Celiac's and it is easily reversible in 3 months time. You will not know if you are not willing to try it. **** this is not medical advice just deep research and my own experience with taking Niacinamide. But I will say  I am not the only one who has been helped on this board taking Vitamin B-3. I want you Iroinctruth, Feeneyja, Jmg to be the next ones. I know this post is way too long as usual but I had a lot of ground to cover. quoting a friend 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included. posterboy by the grace of God,
    • After my crash and burn gluten challenge of 2016, I wander off yet again Into the land of eastern and alternative medicine to heal. While I am grateful to many (not all) western medicine  Dr s of the past , for the past 2 decades the ones who give me relief for my lifetime ails are the alternative/eastern practitioners. I'm not starting a debate as both branches have their strengths, often the shame is they are seperated in healthcare, for likely humanity and public health imo would be best served by their encouraged collaboration/mutual recognition,but alas not my problem to solve. Much bigger then me and quite frankly, I'm too busy healing to tackle that mountain. Regardless, I now have "shoes that fit my carpet bag " of decades of multiple misdiagnosis /undiagnosis collection. They can be combined and labeled celiac and fibromyalgia. I was shocked at first at the news, I consider those really serious. Is AWOL really that ill? I've read up more  on both disciplines descriptons etc for these conditions, I'm in shock for the "shoes" fit perfectly . I know based on western test results I'm far from textbook/ gold standard celiac (but I failed to get past day 6 of my gluten challenge -likely speaks for itself) and fibromyalgia is quite demeaned/dismissed from my past knowledge amongst the western medicine world and greater society. (Friends /family in western medical fields) Is this still the case? My lifetime gi issues, the 30 plus years multiple chemical sensitivities ( go back to childhood-I keep very close to the vest), 20 plus years symptoms of muscle issues / myalgia, now have the names of celiac & fibromyalgia. Mixture of feelings of relief to be recognized, but also knowing my named illnesses are likely not recognized or are minimised by my western medicine trained family and friends and greater society. Can anyone offer some encouragement to help me cope at this time of healing? My accupuncture visits have been truly helpful, but my last visit is giving me a lot to process chemically, biologically, and spiritually. It's like someone unleashed the flood gates of all the symptoms of both illnesses at once in a combined package for me to experience in a one transparent package.  Very enlightening and to be blunt I feel like crap. So it's time to accept the package names and all, the curtain was lifted and the waxing and waning symptoms of fibromyalgia we're released. Please share any positive support or stories you have on coping with celiac recovery, celiac/fibromyalgia, and  healing by accupuncture. It will be much appreciated. As it is abundantly clear AWOL is here to stay on the celiac.com forums. Thanks  
    • https://www.celiac.com/gluten-free/topic/116482-supplement-and-foods-you-take/ ^ I did this a while back where some of us have posted what we take and eat to get our nutrients. Mines changed a bit since then since I can not eat any grains, sugars or fruits.
    • I take 2 Slice of Life gummy multivitamins and drink 2 Ensure high protein per day. Both are gluten free.
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