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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Food Allergy Woes (Outside Of Gluten)
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It has been so long since I've been glutened that I hardly remember what it was like. Thank goodness for that! Unfortunately, I ate a handful of nuts (the first food I gave up back in the 90s). It has been a three-day drag so far. Many symptoms are similar to gluten but not as pronounced. Also, there is not much emotional disregulation as there typically is with a glutening. What IS there is the fatigue, heavy arms, muscle burning, numb knees and arthritis that typically accompanies the gluten reaction.

The nuts were made in a factory where flour is used which could be a consideration.

Does anyone else have 3+ day event after eating foods (other than gluten) to which they are allergic? Is there any proof that this reaction to other foods is due to leaky gut and, therefore, may disappear as the gut repairs over time?

So far, the best I've felt is on a Paleo diet (no grains or legumes). It's a restrictive diet but worth it to feel that good. However, I really am curious if any of you have experienced a reduction in food allergies after being gluten-free for some time.

Thanks,

Cali

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It has been so long since I've been glutened that I hardly remember what it was like. Thank goodness for that! Unfortunately, I ate a handful of nuts (the first food I gave up back in the 90s). It has been a three-day drag so far. Many symptoms are similar to gluten but not as pronounced. Also, there is not much emotional disregulation as there typically is with a glutening. What IS there is the fatigue, heavy arms, muscle burning, numb knees and arthritis that typically accompanies the gluten reaction.

The nuts were made in a factory where flour is used which could be a consideration.

Does anyone else have 3+ day event after eating foods (other than gluten) to which they are allergic? Is there any proof that this reaction to other foods is due to leaky gut and, therefore, may disappear as the gut repairs over time?

So far, the best I've felt is on a Paleo diet (no grains or legumes). It's a restrictive diet but worth it to feel that good. However, I really am curious if any of you have experienced a reduction in food allergies after being gluten-free for some time.

Thanks,

Cali

Yes, I have 6 other diagnosed food allergies besides gluten.  I also have 3+ day (actually 1-2 week) reactions after consuming any of those foods.  I've been gluten free for 9 years, but i still react just as severely to my other diagnosed allergens. Actually, like gluten, the longer I abstain from those allergens, the more severely and longer I react. 

 

I suspect leaky gut, caused by gluten antibody damage, originally caused those other allergies. However, even after my gut heals (or healed?), the antibodies to those foods will still be in my blood. My body's immune system won't forget how to react to those foods. So the bad new is I will probably always react to my diagnosed allergens.

 

The good news is that I found tasty substitutes for all my allergens (which are usually ingredients in most processed foods and baked goods).  I don't miss any of my allergens, because I can make the foods which contained my allergens, without my allergens, but with safe substitutes. (That will make more sense if you look at my list of allergens.) Of course, I only eliminated my diagnosed allergens. So I can eat anything to which i don't react.  Getting an accurate allergy test was so much easier than trying to figure out my allergens with an elimination diet.

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My Functional Medicine Nurse told me that it takes about 4 days for antibody levels to go down.  I had mentioned that my reaction to eating mango peels (don't try it) peeked at about 4 days and took a week to go away.  Mango peels have the same substance as poison ivy, so this experience isn't recommended.  I went through a cycle just like I go through when I have some major food intolerance.

 

D

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If only positive thinking was the cure! I have an appointment with a Functional Medicine doctor in a few weeks (first visit). I can imagine she will want to test me for allergies. If you have any suggestions or questions I should ask during my appointment, I'd appreciate your input.

It would definitely be better to have a test and stop with the trial and error. Don't worry, no mango peels for me!

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