• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Food Allergy Woes (Outside Of Gluten)
0

4 posts in this topic

Recommended Posts

CaliSparrow    21

It has been so long since I've been glutened that I hardly remember what it was like. Thank goodness for that! Unfortunately, I ate a handful of nuts (the first food I gave up back in the 90s). It has been a three-day drag so far. Many symptoms are similar to gluten but not as pronounced. Also, there is not much emotional disregulation as there typically is with a glutening. What IS there is the fatigue, heavy arms, muscle burning, numb knees and arthritis that typically accompanies the gluten reaction.

The nuts were made in a factory where flour is used which could be a consideration.

Does anyone else have 3+ day event after eating foods (other than gluten) to which they are allergic? Is there any proof that this reaction to other foods is due to leaky gut and, therefore, may disappear as the gut repairs over time?

So far, the best I've felt is on a Paleo diet (no grains or legumes). It's a restrictive diet but worth it to feel that good. However, I really am curious if any of you have experienced a reduction in food allergies after being gluten-free for some time.

Thanks,

Cali

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


burdee    80

It has been so long since I've been glutened that I hardly remember what it was like. Thank goodness for that! Unfortunately, I ate a handful of nuts (the first food I gave up back in the 90s). It has been a three-day drag so far. Many symptoms are similar to gluten but not as pronounced. Also, there is not much emotional disregulation as there typically is with a glutening. What IS there is the fatigue, heavy arms, muscle burning, numb knees and arthritis that typically accompanies the gluten reaction.

The nuts were made in a factory where flour is used which could be a consideration.

Does anyone else have 3+ day event after eating foods (other than gluten) to which they are allergic? Is there any proof that this reaction to other foods is due to leaky gut and, therefore, may disappear as the gut repairs over time?

So far, the best I've felt is on a Paleo diet (no grains or legumes). It's a restrictive diet but worth it to feel that good. However, I really am curious if any of you have experienced a reduction in food allergies after being gluten-free for some time.

Thanks,

Cali

Yes, I have 6 other diagnosed food allergies besides gluten.  I also have 3+ day (actually 1-2 week) reactions after consuming any of those foods.  I've been gluten free for 9 years, but i still react just as severely to my other diagnosed allergens. Actually, like gluten, the longer I abstain from those allergens, the more severely and longer I react. 

 

I suspect leaky gut, caused by gluten antibody damage, originally caused those other allergies. However, even after my gut heals (or healed?), the antibodies to those foods will still be in my blood. My body's immune system won't forget how to react to those foods. So the bad new is I will probably always react to my diagnosed allergens.

 

The good news is that I found tasty substitutes for all my allergens (which are usually ingredients in most processed foods and baked goods).  I don't miss any of my allergens, because I can make the foods which contained my allergens, without my allergens, but with safe substitutes. (That will make more sense if you look at my list of allergens.) Of course, I only eliminated my diagnosed allergens. So I can eat anything to which i don't react.  Getting an accurate allergy test was so much easier than trying to figure out my allergens with an elimination diet.

Share this post


Link to post
Share on other sites

My Functional Medicine Nurse told me that it takes about 4 days for antibody levels to go down.  I had mentioned that my reaction to eating mango peels (don't try it) peeked at about 4 days and took a week to go away.  Mango peels have the same substance as poison ivy, so this experience isn't recommended.  I went through a cycle just like I go through when I have some major food intolerance.

 

D

Share this post


Link to post
Share on other sites
CaliSparrow    21

If only positive thinking was the cure! I have an appointment with a Functional Medicine doctor in a few weeks (first visit). I can imagine she will want to test me for allergies. If you have any suggestions or questions I should ask during my appointment, I'd appreciate your input.

It would definitely be better to have a test and stop with the trial and error. Don't worry, no mango peels for me!

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,868
    • Total Posts
      938,406
  • Member Statistics

    • Total Members
      65,767
    • Most Online
      3,093

    Newest Member
    mishamouse
    Joined
  • Popular Now

  • Topics

  • Posts

    • Start taking to them now about the seriousness of him staying gluten free. You have to get them past that point of thinking you are being irrational. Send them articles talking about what it's like to be glutened. You've got to make this normal and you have the time now to do it. Be firm.  I've had too many dinners in the past with my husbands family that doesn't care or care to even understand about my issues where they actually told me things were made without flour, but I reacted. Badly. They still don't care but now I just don't believe them, lol. But with a child hopefully they do care and do want to understand. You have to make them realize he is going to SUFFER if he gets glutened. And you don't want your son to hear little snide comments either. You've done a good job normalizing it for him in your environment. Hopefully you will be able to prepare them now so you aren't walking into a war zone then.    
    • You can keep down the clutter by bringing a set of Nordicware microwave cook ware, r roll of butcher/freezer paper (makes gluten-free safe prep area on top of counters, tables, and a nice eating mat) spatula, plastic utensils, and perhaps a small griddle. I normally just do stuff that way and bring at home made muffins, cookies, etc to make myself feel good. I tend to stick to whole food omelettes and the premade stuff I bring to keep it simple and easy. PS the nordic ware has steamer dishes, rice cookers and microwave grill plates so you can cook salmon, rice, steamed veggies chicken all in a microwave.  I did a huge post a few years ago about me hosting my families thanksgiving. I even had instructions on how to make the turkey, and dressing.
    • Good to hear you tapered with your doctors assistance. Many drugs are very dangerous to stop suddenly and not just in terms of the withdrawl.  I tapered off all meds also at diagnosis and have only had to add back in my 'as needed' Alprazolam. I take that for something not celiac related though. Things can be up and down for a bit when we go gluten free. Hang in there.
    • My 13yo son was diagnosed by biopsy in August of this year.    We have not had to travel since he has been diagnosed.   I am concerned with holiday travel coming up.   My husband wants to visit his parents this year for our kids Christmas break but, I'm concerned about my son getting "glutened" while we stay at my in-laws.    I already know that they will think I'm being irrational if I insist on bringing a toaster and cookware for my son's meal prep.   They won't understand about him not being able to use the communal butter dish or serving utensils.   Fortunately, my sister-in-law says that there are gluten-free options at their small grocery store.   But, I'm worried about what to do, say and generally how to handle this.   I don't want to ruin my family's vacation.   I want to show my son that his life doesn't have to stop because he has Celiac.    I want him to still be able to travel and visit his friends and family! Any good advice out there as to how to handle this with my in-laws and how best to ensure my son doesn't get glutened without offending anyone?       
  • Upcoming Events