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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Left Side Limb Pain, Numbness
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5 posts in this topic

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pondy    16

Hi,

 

Does anyone know if there is a connection between Celiac and osteo/nerve issues?  Are Celiacs prone to osteopathic or nervous tissue degenerative diseases?

 

My history - diagnosed with Celiac about 3 yrs. ago - gluten free ever since.  Since then, internal carotid dissections and aneurysms thought to be caused by Fibromuscular Displaysia, Tension Migraines.

 

Recently - waking up from sound sleep with burning pain - left side only - from neck/chest/shoulder down to fingers.  Pain feels like it's deep in the bone.  Occurs a couple times per week with varying severity.  It does not seem to matter what I'm doing - sleeping, driving, just sitting there...  After the pain (and sometimes along with it) comes numbness, sometimes tingling.

 

I ask because I just came from the hospital for such pain.  I thought I had suffered a heart attack.  I didn't.  My doctors are bewildered and so am I.  I have a follow up with my primary next week and I'd like to offer some ideas as to what they might want to check for.

           

Thanks for your input!

 

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frieze    112

I would be thinking more along the line of a TIA, than a HA.    keep a detailed diary, see if you can correlate symptoms with some sort of activity.  ?cervical issues?  spine doc/chiro ?

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twe0708    7

About two years ago I started experiencing tingling on the tops of my feet when I applied lotion.  A year ago I had a bad kink in my neck and couldn't move for two days. It felt like a pinched nerve and it wasn't muscle related.  I had to be very careful not to turn my neck as well as the rest of my body the pain was so bad.  A year later I had the same problem in my lower back.  About 2 months ago I started experiencing a burning sensation on my outter left hip area.  I think this is all related to neuropathy problems but I haven't been tested because I told my doctor the hip pain isn't bad enough to justify taking medication that would probably only cause other problems.  If I had the neck and back problem more often then I would look at testing because that felt like I was being tortured.  Good luck!

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pondy    16

Thanks for your input!

 

I spoke with a family member who is a chiropractor & he said to ask my doctor to check me out for 'thorasic output syndrome', so that's on my to-do list. 

 

I worried about a TIA also, especially considering my history.  Obviously I need more testing - symptoms are still present. 

 

To twe0708 - 'neuropathy problems'?  Could you elaborate?  Do you know what the testing is for that?  Everything you mentioned, I have had also at different times recently.

 

Thanks & Take Care!

Pondy

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'lynrn    3

Hi,

 

Does anyone know if there is a connection between Celiac and osteo/nerve issues?  Are Celiacs prone to osteopathic or nervous tissue degenerative diseases?

 

My history - diagnosed with Celiac about 3 yrs. ago - gluten free ever since.  Since then, internal carotid dissections and aneurysms thought to be caused by Fibromuscular Displaysia, Tension Migraines.

Recently - waking up from sound sleep with burning pain - left side only - from neck/chest/shoulder down to fingers.  Pain feels like it's deep in the bone.  Occurs a couple times per week with varying severity.  It does not seem to matter what I'm doing - sleeping, driving, just sitting there...  After the pain (and sometimes along with it) comes numbness, sometimes tingling.

 

I ask because I just came from the hospital for such pain.  I thought I had suffered a heart attack.  I didn't.  My doctors are bewildered and so am I.  I have a follow up with my primary next week and I'd like to offer some ideas as to what they might want to check for.

           

Thanks for your input!

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