This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
Where can I buy gluten-free stuff?
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Having experienced autoimmune hives (not sure if celiac-related) daily for the last four months (now controlled by a cocktail of antihistamines, thankfully), I would be super diligent about my gluten-free diet if I had DH. What do I mean? Like Squirmingitch indicated -- no eating if you did not prepare it.. The itching can drive you crazy. In my case, I never knew that you can get hives on the soles of your feet.
I hope you feel better soon.
A celiac diagnosis is hard to absorb even for adults. She is old enough to understand and she now knows that she is different (that's so hard when you just want to be like everyone else). There is a grieving period that is normal. Be patient. If things do not improve, get her some help. It might be better to hear it from another trusted adult than from Mom.
You are doing everything right. I know you are loving her and being supportive. Stay strong and do take some time for yourself, even if it is heading to the bookstore for a hour or so or taking a walk.
Within a few months, there should be some improvement. Be sure she gets a follow-up test three months after her diagnosis and then another three months later. Learn more:
I had the skin biopsy to confirm DH but they still wanted to do a endoscopy to see what was going on inside...they found some cells called Eosinophils that may or may not be related to Celiac and are going to follow up with another scope in eight weeks. Here's what my elbow looked like about eight weeks ago but much improved now.