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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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wmramsel

After All That- Not Reacting.

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So if you don't remember- tried gluten challenge about a month ago and ended up in the ER the first day.  HUGE reaction.

 

Fast forward a pediatrician's visit, allergist visit (all negative), and a gastro visit, we are doing another gluten challenge with less gluten.  Endoscopy scheduled for June 27th with blood tests.

 

So we start out small with just a few whole grain goldfish...and her skin starts to react immediately.  Her skin reactions continue for 2 days along with pale/stinky poop and stomach aches......then it all stops.  There are a few spots of eczema that are worse than normal, but not extreme.  I'm noticing some mood swings, but again, nothing extreme and nothing compared to the week after the ER visit.  We have increased her gluten intake over the past few days to no dietary restrictions. 

 

What gives??!!  I mean, I'm grateful that the 2 weeks have yet to be miserable, and I would give anything for a miracle and her intolerance suddenly vanish.  Part of me is really scared there is internal damage going on we can't see :(  Anyone else with this experience?

 

 

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My DS had no gut issues when on gluten. It was a zero Vit. D level that put us on the path to Celiac.

 

Be grateful that you aren't in the ER and that you'll have a scope with (hopefully) answers.  Was there positive bloodwork?  

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My DS had no gut issues when on gluten. It was a zero Vit. D level that put us on the path to Celiac.

 

Be grateful that you aren't in the ER and that you'll have a scope with (hopefully) answers.  Was there positive bloodwork?  

 

I am!!  I actually had her sleep with us (she never does) the first night we added gluten back in (a whole 18 goldfish over the course of the day, lol!) because she threw up in her crib after the ER visit and we didn't know it until morning :(  I felt terrible!  

 

No, blood work will be drawn when they do the scope. The GI didn't want her on gluten very long since she had such a strong reaction before.  He said it sounds like Celiac to him- I had asked him what he felt the sx's were due to, Celiac or some other 'non celiac gluten intolerance.'  He gave us the option to do the genetics test, then only do the gluten challenge if the genetics test was positive, but her blood would have to be sent to CA (from SC), and my husband didn't want to delay the results that could actually diagnose her since the GI felt it was Celiac.  They are going to do 3 Celiac blood tests (I can't remember now which ones), a CBC panel, and an anemia test (she has a love of ice).  

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I spoke too soon....I came home from work to her eczema out of control and she was up half of last night with severe stomach cramps/ache :(

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