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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

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so I have been doing pretty well since being diagnosed with Celiac and following a gluten free lifestyle. It has been a relief since i was sick for years and could never figure out why. About a month ago i came across Gluten Cutter pills in my local pharmacy. I tried them out over my honey moon last month and they worked great. It was nice to be able to eat something i havne't been able to in months and thought maybe once in awhile when i wanted to cheat i could take a couple. i still got itchy after eating something i wasnt suppose to but never any stomach problems or any other issues. well here i am a month later and went camping with my children and husband last weekend and decided to take a couple pills and enjoy 1 s'more with my kids. The next day i woke up super itchy and covered in 30-40 bruises over both my legs, my joints are aching and i have been extremely tired for the last couple days. Could this be a reaction to the gluten or should i worry this is being cause by soemthing else?

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Oh Hon, I'm sorry but there is no pill available that will make it safe for a celiac to eat gluten. I guess you are finding that out now. The bruises are probably from scratching the DH. Unfortunately, that DH can flare for up to two years even if you don't eat gluten. You should stay STRICTLY gluten-free, go easy on the iodine (because it can make DH flare) and I hate to sound harsh, but you need to stop looking for ways to cheat. Even if you DON'T get digestive symptoms, you are still doing damage that can lead to all sorts or other autoimmune diseases including lupus, arthritis, and even cancer. Please, please, please, take care of your self. Don't take chances like that. No glutenous food is worth it, especially when there are gluten-free alternatives to just about anything you could want.

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Well thanks for the info....I didn't realize all of that. I have kind of just been learning about Celiac disease as I go all the do's and the don'ts and here i thought i was doing good lol. i'm sure this will sound completely stupid but what is DH?

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Obviously, your doctor didn't tell you anything.  A diagnosed Celiac cannot eat any gluten.  You will accidentally get some in your life but you should never try to eat any. 

 

 

 

http://www.cureceliacdisease.org/living-with-celiac/guide/treatment

 

 

 

A lifetime commitment

The gluten-free diet is a lifetime requirement. Eating any gluten, no matter how small an amount, can damage your intestine. This is true for anyone with the disease, including people who do not have noticeable symptoms.

 

 

 

 

 

Please read the newbie thread for some basic info.

 

 

 

 

http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/

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Dermatitis Herpetiformis. It is an extremely itchy rash that some celiacs get. It is horrible. They sometimes call it "the suicide rash". There is a whole section in this forum didicated to it. You need to go there and read up on it. And you should go to the "Newbie 101" thread too. It will help you learn how to cope with going truly gluten-free.

 

Then maybe you should check out the breakfast/lunch/dinner threads. There are recipes for anything you might want to cook. And there is also a thread for gluten-free products. Have you bee to a health food store yet? gluten-free products are expensive, but there are some EXTREMELY good ones out there. If you can find Udi's Double Chocolate Muffins I promise you will love them. They make some pretty good bread too. There are cookies and gluten-free cake mixes and all sorts of yummy things.

 

Read as much as you can here. There are so many great folks here who really know what they are talking about. Ask lots of questions and you will get good answers. And please realize that celiacs need to go gluten-free for life. No cheating. EVER. It sounds hard and scary and depressing, but you will feel so much better and I promise, after a while it will become so natural that until you go to a restaurant, you'll never even think about it.

:)

As a matter of fact, there are some restaurants that have gluten-free menus. You have to be careful because some of them don't take it seriously. For example, Applebee's has a gluten-free menu but they cook their fries in the same fryer they cook breaded chicken and fish in. That means the fries are cross contaminated and we can't eat them. We can't just take the croutons off a salad either. We have to be strict and vigilant.

 

But of you live near a PF Changs, you can usually trust them. And Outback is good too. There are some others the folks here say are safe. Read as much as you can. Fire away with your questions. And if you need to rant or cry, feel free to do that too. You won't find a more understanding bunch anywhere.

 

And remember, it really DOES get easier. I PROMISE.

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Obviously, your doctor didn't tell you anything.  A diagnosed Celiac cannot eat any gluten.  You will accidentally get some in your life but you should never try to eat any. 

 

 

 

http://www.cureceliacdisease.org/living-with-celiac/guide/treatment

 

 

 

A lifetime commitment

The gluten-free diet is a lifetime requirement. Eating any gluten, no matter how small an amount, can damage your intestine. This is true for anyone with the disease, including people who do not have noticeable symptoms.

 

 

 

 

 

Please read the newbie thread for some basic info.

 

 

 

 

http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/

 

 

thank you..no my doctor pretty much diagnosed and sent me on my way to figure the rest out on my own. thanks for the advice

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thank you..no my doctor pretty much diagnosed and sent me on my way to figure the rest out on my own. thanks for the advice

 

 

My OB/Gyn insisted I go to my primary care and get a Celiac blood test.  He didn't want to but since she insisted, he did.  They called me and said it was positive and have a nice weekend.

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Thanks for everyones help and support. I feel like I am annoying everyone in my life with my constant whining and not feeling well. I guess I am not doing as well as i thought. The more i read today the more i realize that i have other symptoms that i didn't even realize were related to celiac disease. I guess i just thought because i wasn't living with a constant stomach ache and my hair wasn't falling out anymore that i was doing better. To be honest all I ever think about is sleep. I am 27 years old and feel about 80. Not good a feeling when i have 3 young children and a brand new husband at home.

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Hi Jen

 

Welcome in

 

It seems like yiou found the right place to start your gluten-free journey properly

 

Hang out and ask lots of questions :)

 

I've got 2 little ones, and it s awhole lot esier noww I am gluten-free and have more energy. Hope it works like that for you too.

Mw

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    • All the above plus, "oh, so you can't eat bread".  And being oblivious to undiagnosed celiac disease causing myriad organ/nerve damage.  
    • Might help with ease of digestion, and there is studies that show it helps in the breaking down of carbohydrates so it helps reduce gas, bloating, and indigestion, But not really helping much your immune system attacking your intestines trying to kill the gluten, Still going to get damage and stuff in the background.  I use it in making dairy free cheese, and sauces to give it that "bite" I also use it in baking in combination with baking soda subs and baking powder for rising gluten free and yeast free baked goods.

       
    • If flying I do not know, I normally take a car or train. And I bring chef kit with a griddle, and nordicware cookware. My thoughts, bring meal replacement shakes, jars of nut butters, and protein/nut bars, Perhaps crackers? I know they make some gluten free ones (I can not consume most as I can not have carbs or grains). I honestly make Nut meal/butter porridge out of coconut and almond flour with almond butter. I add extracts and stevia for flavor and sweetener. Other thoughts for cooking in your hotel room. Noridicware makes microwave cookware, grill sheets, steamers, omelette makers (know you can not), rice cookers. etc. You can bring these in your luggage easier and just use the microwave or request one in your room. This way you can say have steamed fish and veggies, bacon, rice, porridge, etc. and fix it safely right in your room.
    • If you are celiac you HAVE to be gluten free no matter how inconvienent it may seem to you.  Your body is clearly telling you to stop cheating on the gluten free lifestyle. If you need help with identifying where you can improve we are here to help in any way we can. You need to go and read the Newbie 101 thread at the top of the Coping section. It has a lot of valuable info for you. I hope your pain resolves soon but be aware that for some repeat glutenings can lead to the development of other autoimmune problems and for some the pain of each repeat glutening can increase as well.
    • Unless you go 100% gluten free it will only get worse, lead to complications, and eventually kill you. I did not know about mine for years and ended up with other auto immune disease, multiple allergies, and  food intolerance issues. I thought I was dying when I figured it out and went gluten free. You can not cheat on this diet as the antibodies will spike for weeks to a month. Symptoms from a gluten exposure can take days, weeks, and months to go away. In the case of nerve damage (mine started effecting my brain and nervous system) years before you start seeing improvement.

      It is quite hard at first, but once you get it down it becomes second nature. there are many gluten free alternatives now days to make it easier. Now with your severe amount of issues and pain ignoring it. You probably already developed other food intolerance issues, and will probably have a very limited diet for awhile til you heal somewhat.

      https://www.celiac.com/gluten-free/topic/91878-newbie-info-101/ https://www.celiac.com/gluten-free/topic/119661-gluten-free-food-alternative-list-2017/
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