• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Feet Problems...
0

6 posts in this topic

I was diagnosed with Celiac's a year and two weeks ago. The diagnosis of this disease was linked with my severe lactose intolerance, as well. Since then, I've sworn off gluten and dairy. Now, one year and two weeks into this new life, some of my old symptoms are back, except their worse this time around. 

 

Before I was diagnosed, my feet would fall asleep. Eventually, it wasn't just my feet. My whole leg would fall asleep, even when I was driving! I would be sitting in class, taking notes and my hands and forearms would fall asleep and my pencil would drop out of my hand and roll off my desk. Now, I'm suffering from that same symptom. This time, it feels like someone is pushing hard on the insteps of my feet. It's not all that painful, but I just CANNOT walk. This has been going on for two weeks now. I've checked all the foods that I've been eating for the last month, because some gluten-free brands start changing their ingredients and I had to make sure that I wasn't being too trusting of these companies. All of my food is cleared of gluten and/or dairy. So why am I having such neuropathic issues with my body???

 

Also, my migraines have intensified. Tylenol with codeine just doesn't seem to cut it anymore. Any suggestions for these migraines?

 

In regards to my skin, I've got random rashes throughout my body. There's no rhyme or reason as to where they are placed. And, if I lightly scratch my skin, whether it be over the rash or not, my skin puckers and swells. That lasts for about a day.

 

What is going on? Why have some of my gluten-related symptoms gotten worse?

 

If this helps in anyway, I am 17 years old, I am 5'8" and weigh 140 lbs.

 

Thanks for taking time to read this!! Hope for some insight! 

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Have you seen a chiropractor?  What you describe seems like it could also be nerve related.

0

Share this post


Link to post
Share on other sites

That is nerve related.

 

Have you tried removing soy? Some celiacs find that it can cause the same type of issues with them as gluten does.

0

Share this post


Link to post
Share on other sites

First,   Find a Dermatologist that understands Dermatitis Herpetiformis and get that rash checked out while it's active.      Are you anemic?     Sounds like you'll need some blood labs too!!!

0

Share this post


Link to post
Share on other sites

Those could be symptoms of Lyme disease also.

 

http://www.cdc.gov/lyme/

 

Lyme Disease

Lyme disease is caused by the bacterium Borrelia burgdorferi and is transmitted to humans through the bite of infected blacklegged ticks. Typical symptoms include fever, headache, fatigue, and a characteristic skin rash called erythema migrans. If left untreated, infection can spread to joints, the heart, and the nervous system. Lyme disease is diagnosed based on symptoms, physical findings (e.g., rash), and the possibility of exposure to infected ticks; laboratory testing is helpful if used correctly and performed with validated methods. Most cases of Lyme disease can be treated successfully with a few weeks of antibiotics. Steps to prevent Lyme disease include using insect repellent, removing ticks promptly, applying pesticides, and reducing tick habitat. The ticks that transmit Lyme disease can occasionally transmit other tickborne diseases as well.

 

0

Share this post


Link to post
Share on other sites
Ads by Google:


Sounds like you were doing well for a while before the symptoms came back. Is there anything that has changed? A new restaurant you are going to? A new significant other who may wear lipstick or gloss or kissing after they have eaten or drank gluten items? Any new food items that may be produced in a shared facility? Any new medications or supplements you are taking?

It sounds to me like you may be getting cross contaminated somewhere.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,448
    • Total Posts
      930,613
  • Member Statistics

    • Total Members
      63,871
    • Most Online
      3,093

    Newest Member
    Pamela Richey
    Joined
  • Popular Now

  • Topics

  • Posts

    • Thank you so much. 8-12 weeks! Oh my goodness, I don't think I can do that. I think going gluten-free made my body's defenses go down or something. I felt bad before, but reintroducing it was completely awful! I still feel queezy a few days later. Let's pray it just comes back positive. lol
    • Thanks for the feedback!  Gemini you're very right - surgery was a totally weird recommendation.  My current doctor treated me without hormones because my TSH levels are normal. The doctor found that my Vitamin D levels were severely low and put me on a high dose. They climbed just out of the deficient range. I am very active and frequently outdoors,  and they still only climb out of deficient If i'm on intensive VIitamin D supplementation.  -  In addition, She also suggested I  a modified lower carb diet (I'm at a healthy weight, there was no reduction in calories, just an increase in protein and fat and a reduction in carbs,  a low reduction, slightly above the recommendations for a diabetic), which the doctor recommended for PCOS.  Both of these coincided correlated with a slight reduction in the anti-thyroid antibodies and a slight reduction in nodule size. My TSH levels have remained stable, so it was incorrect to say function, really just a reduction in the level of attack (but the thyroid levels are still high).  The doctor that recommended surgery did so because "you're about to start college and you won't have time for monitoring,  it will eventually fail. If we remove it now, you can just go on Synthroid and you'll never have to deal with the levels being out of whack."  Yeah.... I was 18 then.... I'm now 27, but my Mom just went "NOPE!" and got a second opinion.  This person was fine, but all he did was monitor to make sure the TSH levels stayed ok.  They did, I just have a goiter and several nodules.  The most recent endo. I've seen, who put me on intensive Vitamin D therapy and worked with me on the diet,  felt like she was thorough (again minus completely dismissing the first celiac results. I think the D supplementation and diet were associated with a decrease (but obviously didn't and really couldn't reverse the outcome of the disease) in antibodies and nodule size because my TSH levels have yet to get out of whack. I also wonder if with fewer carbs, I ate less (thought still too much If I'm celiac) gluten, and  that could have been more a factor in the correlation.  Gemini- I'm glad that you have found a good treatment that keeps your levels where they need to be!  I also really appreciate the welcome. Update:  I have a referral to a GI specialist! I don't want to have Celiac... I love to travel, and I'm very social. I live in the US but my family is from Uruguay, South America, so I carry this Latin Cultural thing about loving to share food and seeing it as such a huge part of hospitality and community.  I know that food in social settings gets hard to navigate...But I feel a sense of relief to think that I might have an answer to other health questions and that there is a way that I can stop or at least slow damage.   
    • These can be sourced from various ingredients one being wheat. Please check with the manufacture of your products to figure out if they contain gluten or how they are made....and yes gluten in your makeup, and especially lotion, shower gel, etc is a huge issues. Consider this, gluten contamination can happen from gluten protein residue. How often would you touch your arms, hair, etc or use your hands and touch your food, plate, fork, spoon before putting it in your mouth? Do you bite your nails, sometimes pick up a mint or gum? Hate to say it this way but if you use gluten containing stuff like that shit will happen with cross contamination. Consider changing over to a dedicated gluten-free version of hygiene products and save your self the drama. I use EO products, The Seaweed Co, Savvy Naturals, Hugo Naturals, and Vaseline products products without issues personally.       
    • I had an enlarged thyroid, but no nodules. Dr felt it and ultrasound confirmed. I had so many symptoms of hypothyroid- weight gain, fatigue, hoarse voice-couldn't yell or sing or swallow (still can't swallow, but mostly at the bottom end. Used to not be able to get it past my neck, either) brain fog so that I couldn't form a complete sentence or respond with any timeliness, cold all the time, etc. Dr was in his 70's and old school. He didn't do any further blood tests or anything. Just said to take iodine. So, I started taking iodine. By the next year, different dr, all my thyroid tests came back normal, it wasn't enlarged anymore and most of my symptoms were very much improved. Read "Iodine: Why you need it and can't live without it" Kinda boring and repetitive, but good info. Iodine Crisis by Lynne Farrow is also really good. (She talks more about breast cancer than thyroid. But, the iodine information & history is great.) 

      https://www.amazon.com/Iodine-Need-Cant-Live-Without/dp/0966088239/ref=sr_1_1?ie=UTF8&qid=1493386200&sr=8-1&keywords=dr+brownstein+iodine+book
    • Ok can anyone please shed light on this subject! I been reading conflicting information. Do I really need to be concerned about products that contain these two ingredients in them like my face products and my body lotions and shower gels?  If I'm not ingesting them can they really hurt me?  Only been diagnosed for three weeks with celiac and I'm trying so hard to follow the guidelines but this seems to be a gray area.  I also check on the list of unsafe ingredients and I don't see them listed there so whats the scoop?  Safe or unsafe please help!!!!
  • Upcoming Events