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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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yaelchai

Mouth Issues

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I was diagnosed with celiac (colonoscopy) 6 years ago (I am now 62) after months of chronic diarrhea. Two of my children also have celiac disease. I have been careful about the diet most of the time, but in the last year less so. Over two months ago I started having a very sore mouth. It feels like it is burning inside. I have been to a couple of doctors who say it is allergies. I suspect it might be exposure to gluten and I am trying to be super careful.

 

What I wonder is if anyone has this kind of generalized mouth soreness--there are no ulcers. My lips are swollen, gums are sensitive, and sides of tongue are sore. 

 

Yael

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I had mouth soreness, swollen gums, and terrible burning tongue and mouth for 3 years before my DX.

 

No doctor could explain it. Some said it was "hormonal", some said it was "idiopathic", blah blah blah

 

It gradually went away after going gluten-free.

 

If you are gluten-free, maybe it is something else causing it.. like a vitamin C or B-12 or other B vitamin deficiency? 

Have you seen a dentist? Could be a dental issue.

Just throwing ideas out there. 

 

I know how painful it is, so I hope you get relief soon.

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I have not been as careful as I should about gluten. I tend not to have many visible symptoms--sometimes some diarrhea, but that's about it. So, I suspect it is gluten exposure. Most of the descriptions of mouth problems related to gluten include blisters or ulcers in the mouth. Your message confirms that it might be this more generalized soreness. I must now adopt your "fire breathing dragon" approach. Thank you!

I had mouth soreness, swollen gums, and terrible burning tongue and mouth for 3 years before my DX.

 

No doctor could explain it. Some said it was "hormonal", some said it was "idiopathic", blah blah blah

 

It gradually went away after going gluten-free.

 

If you are gluten-free, maybe it is something else causing it.. like a vitamin C or B-12 or other B vitamin deficiency? 

Have you seen a dentist? Could be a dental issue.

Just throwing ideas out there. 

 

I know how painful it is, so I hope you get relief soon.

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I have not been as careful as I should about gluten. I tend not to have many visible symptoms--sometimes some diarrhea, but that's about it. So, I suspect it is gluten exposure. Most of the descriptions of mouth problems related to gluten include blisters or ulcers in the mouth. Your message confirms that it might be this more generalized soreness. I must now adopt your "fire breathing dragon" approach. Thank you!

 

I'm afraid so! :)

 

We just cannot have gluten sneaking in, hon. C'mon, now, you know this!  ;)

Even if you think you're not causing damage because you "only" get diarrhea, well, 

you must know this is not the case. Your mouth issues---speak volumes.

 

Get cracking on being more vigilant and I bet you see those resolve.

My brain would be fried if I were not as careful as I am.

 

Get better soon.

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Interesting! I am newly diagnosed but several times a month for the past few years I have woke up with a very a sore mouth ( I mean the roof of my mouth would feel extremely tender)  I never thought about it being related to celiac. hmmmmmm

 

Be careful about not bring strict on your diet! Eventhough you may not have a lot of symptoms, it is still damaging your body on the inside!

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Could it be something in your toothpaste? Perhaps try switching to homemade for a few weeks and see if that helps. You can google some simple recipes.

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