• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Mouth Issues
0

6 posts in this topic

I was diagnosed with celiac (colonoscopy) 6 years ago (I am now 62) after months of chronic diarrhea. Two of my children also have celiac disease. I have been careful about the diet most of the time, but in the last year less so. Over two months ago I started having a very sore mouth. It feels like it is burning inside. I have been to a couple of doctors who say it is allergies. I suspect it might be exposure to gluten and I am trying to be super careful.

 

What I wonder is if anyone has this kind of generalized mouth soreness--there are no ulcers. My lips are swollen, gums are sensitive, and sides of tongue are sore. 

 

Yael

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I had mouth soreness, swollen gums, and terrible burning tongue and mouth for 3 years before my DX.

 

No doctor could explain it. Some said it was "hormonal", some said it was "idiopathic", blah blah blah

 

It gradually went away after going gluten-free.

 

If you are gluten-free, maybe it is something else causing it.. like a vitamin C or B-12 or other B vitamin deficiency? 

Have you seen a dentist? Could be a dental issue.

Just throwing ideas out there. 

 

I know how painful it is, so I hope you get relief soon.

0

Share this post


Link to post
Share on other sites

I have not been as careful as I should about gluten. I tend not to have many visible symptoms--sometimes some diarrhea, but that's about it. So, I suspect it is gluten exposure. Most of the descriptions of mouth problems related to gluten include blisters or ulcers in the mouth. Your message confirms that it might be this more generalized soreness. I must now adopt your "fire breathing dragon" approach. Thank you!

I had mouth soreness, swollen gums, and terrible burning tongue and mouth for 3 years before my DX.

 

No doctor could explain it. Some said it was "hormonal", some said it was "idiopathic", blah blah blah

 

It gradually went away after going gluten-free.

 

If you are gluten-free, maybe it is something else causing it.. like a vitamin C or B-12 or other B vitamin deficiency? 

Have you seen a dentist? Could be a dental issue.

Just throwing ideas out there. 

 

I know how painful it is, so I hope you get relief soon.

0

Share this post


Link to post
Share on other sites

I have not been as careful as I should about gluten. I tend not to have many visible symptoms--sometimes some diarrhea, but that's about it. So, I suspect it is gluten exposure. Most of the descriptions of mouth problems related to gluten include blisters or ulcers in the mouth. Your message confirms that it might be this more generalized soreness. I must now adopt your "fire breathing dragon" approach. Thank you!

 

I'm afraid so! :)

 

We just cannot have gluten sneaking in, hon. C'mon, now, you know this!  ;)

Even if you think you're not causing damage because you "only" get diarrhea, well, 

you must know this is not the case. Your mouth issues---speak volumes.

 

Get cracking on being more vigilant and I bet you see those resolve.

My brain would be fried if I were not as careful as I am.

 

Get better soon.

0

Share this post


Link to post
Share on other sites

Interesting! I am newly diagnosed but several times a month for the past few years I have woke up with a very a sore mouth ( I mean the roof of my mouth would feel extremely tender)  I never thought about it being related to celiac. hmmmmmm

 

Be careful about not bring strict on your diet! Eventhough you may not have a lot of symptoms, it is still damaging your body on the inside!

0

Share this post


Link to post
Share on other sites
Ads by Google:


Could it be something in your toothpaste? Perhaps try switching to homemade for a few weeks and see if that helps. You can google some simple recipes.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,437
    • Total Posts
      930,573
  • Member Statistics

    • Total Members
      63,865
    • Most Online
      3,093

    Newest Member
    vprovenzatn
    Joined
  • Popular Now

  • Topics

  • Posts

    • Well I took test for deficiencies today won't get the results till Tuesday then I can go from there.. road to recovery 
    • Ask them for a copy of your results and find a good gastroenterologist in your area. Go there and give them the results. That's what I did. I didn't even bother with my GP. I got the results from the health fair and called a GI in Denver. My insurance didn't require a referral. My GI was the one who put me on the track to being accurately diagnosed. And regardless, you need to be hooked up with a good GI if you've got Celiac so that they can follow you. 
    • Also, I had my bones checked a few months back (In January), and they were awesome. I'm still shocked at how well my body did with Celiac. I hear about all of my friends on here who had crazy horrible symptoms and I never did. I'm grateful. Because those ugly things would come eventually.
    • I work out regularly and I would say NO to working out if you have been glutened or are really tired.  You know what happens to people who work out when they are really fatigued?  They suffer injuries.  I was not well enough to work out until I had been gluten free for 4 years but I am much older than you so I doubt it will take 4 years for you.  Drop the work-outs for now and just go for walks outside when you feel better. The fatigue has to be better before you try to do gym work.  I know you didn't want to hear that but I don't want you to end up injured, on top of everything else. Take care of yourself for now and let yourself heal! 
    • They say you should not work out if your sick or dealing with such issues. I on the other hand do the opposite I will work out even if running a fever, I feel lost if I do not, and the endorphins help me feel fullfilled and relaxed......I have a few other issues as well >.> sitting still causes me to have mini panic attacks. I actually have to be on a stationary bike while on the computer lol. I swear it originates from being stuck in bed for days in the past unable to move, I fear being stuck unable to move my body like it used to sometimes. Got to admit the scariest thing in life is when your own body does not do what you want it to and it turns on you. As for steps, etc....I personally do about 24-30k steps a day or 11-14miles, Most of it pacing lol, anyway everyone is different so I can not tell you what to do just my own exp. Make sure you eat plenty, drink plenty of water and tea, and supplement anything your body might need. I eat constantly throughout the day to keep me going and enough protein and fats that it seems like a body building diet. Be careful and do not push yourself too hard, if you start feeling dizzy, tired or odd lay down for 15-20mins for a power nap. I do this twice a day at least just out of habit.
  • Upcoming Events