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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Recommendation For Severe Cases?
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11 posts in this topic

I have known for two years or so that wheat is messing me up, but I would start eating it again after I started feeling better and kind of forgot about it. Plus I like to believe that the body can somehow heal itself of anything. Or that maybe God is looking out for me. Three weeks ago my appendix ruptured, but I was so used to having pain in my abdomen, that I waited 3 days before letting someone drag me to the hospital.

iv antibiotics/opiates for a week/ antibiotic pills and vicodens for another

so here I am kind of feeling like I am about to die, and not to sure that I don't want to.

similar to many here, my life has been a study in pain

I know the appendix is attached to the small intestines, which are where the celiac gnomes hang out and trash stuff. Any thoughts on a relationship there?

The lady at the healthy store recommended l glutamine to help restore the lining

 

i take some probiotics that I know help, and

pancreatin

 

any other suggestions other than the obvious strategy of avoiding the glutoids

 

I have not been clinically diagnosed, there seems to be little point in that

I have researched all this celiac business, so I know the basics of it pretty well. 

 

I do not want to die from eating toast< that would be so lame

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I do not want to die from eating toast< that would be so lame

 

 

OMG!  We have a new Celiac Motto!  I love it!

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In all seriousness. I'm not sure what you have a severe case of? Seems like if it was related to gluten, you would stop eating gluten. Since you have been eating gluten, why not just get tested? Maybe if you had a diagnosis you would take eating gluten-free seriously?

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I'll second this...I didn't know the ins and outs of celiac when I went gluten free and I wish I did know because though I have some signs of possible celiac..i really don't have an official diagnosis other than gluten intolerant. Looking back I wish I had because I certainly don't have the guts to gluten myself for an endoscopy now. I felt too horrible. And it SUCKS to wonder. Even though the protocol is the same I still wonder especially with the other issues that creeped up for me after that made me wonder if I had intestinal damage. I think it sounds like you should just go gluten free if it spares you pain anyhow? I had pains since I was about 8 or 9. I'm now 30. I went gluten free at 29. 20 years of pain..not knowing ANYTHING about wheat issues....it just wasn't worth it. Too many nights on the toilet. Doctor only ever suggested lactose intolerance. It just sounds to me it's worth figuring out. I say request a test for sure!

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Yes I feel you should get tested, so you don't think in your head " Well I have never been diagnosed so I will eat it!" so if you get tested and diagnosed then you know you will be better at sticking with it!! Just get it done!! And listen to your Drs. SO you don't die eating toast!! 

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I have known for two years or so that wheat is messing me up, but I would start eating it again after I started feeling better and kind of forgot about it. Plus I like to believe that the body can somehow heal itself of anything. Or that maybe God is looking out for me. Three weeks ago my appendix ruptured, but I was so used to having pain in my abdomen, that I waited 3 days before letting someone drag me to the hospital.

iv antibiotics/opiates for a week/ antibiotic pills and vicodens for another

so here I am kind of feeling like I am about to die, and not to sure that I don't want to.

similar to many here, my life has been a study in pain

I know the appendix is attached to the small intestines, which are where the celiac gnomes hang out and trash stuff. Any thoughts on a relationship there?

The lady at the healthy store recommended l glutamine to help restore the lining

 

i take some probiotics that I know help, and

pancreatin

 

any other suggestions other than the obvious strategy of avoiding the glutoids

 

I have not been clinically diagnosed, there seems to be little point in that

I have researched all this celiac business, so I know the basics of it pretty well. 

 

I do not want to die from eating toast< that would be so lame

I have been taking l-glutamine for about 2 months now (1000 mg/2xday).  A few days in, my appetite improved and I have gained some weight back.  I've heard that colostrum is helpful as well so that may be something to look into.  

 

On the appendix, my sister had hers rupture coupled with extreme endometriosis about 7 years ago.  She was 19 at the time.  She has not been diagnosed with Celiac disease; however, it seems likely.  I have been diagnosed.  I would definitely say the appendix issues could be related to Celiac disease.  

 

I am sorry you are in so much pain and hope you find some relief.  I agree with your toast sentiment :)  Reminds me of the ad the Australian Metro system put out about railway safety:  

 
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lolz - that is hilarious - it even has 'toast' in it :D

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.  

 

I am sorry you are in so much pain and hope you find some relief.  I agree with your toast sentiment :)  Reminds me of the ad the Australian Metro system put out about railway safety:  

 

 

That is toooo funny!   And that little song is stuck in my head now!

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My two questions are:

 

Could untreated celiacs lead to a ruptured appendix?    

 

and: 

 

Are there any other measures (in addition to abstaining from wheat) I can take to speed my recovery?

 

I am currently five days off gluten, though I did have some corn products that seem to have fouled things up a little.

 

I am taking:

 

L-glutamine.....seems to be helping

probiotics......definately helps

pancreatin...... seems to help

 

I will look into colostrum!   thank you all for the response!

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And thanks for the video
:)

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i don't know if your appendix was caused by gluten eating, but sooooo many things that were wrong with me cleared up when i was diagnosed and went gluten-free (kicking and screaming, i might add!!  i was in denial til it almost killed me)  

 

have you read the newbie 101 thread on here?  it's got alot of info you might find helpful.  most of us quit dairy in the beginning, if there's damage to your intestines you won't be able to digest it and it will slow healing.  keep a food journal if something is making you react and you can't figure out what.  good luck and watch out for deadly toast  ^_^

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