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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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justa

Almost 3 Year Old Endo Today And I Have A Few Questions.

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My toddler since Thanksgiving has been consistently producing a white/cream or khaki color poop. He complains of tummy pain frequently and vomits. His stomach is not rigid. yes gross sorry. 

He will be 3 in August and is 27 pounds and average height. He has thrown up at least 10 separate occurrences and several times here and there one time. He drinks about 20 oz of milk a day or water. He has a pretty heavy wheat and cheese diet. He doesn't care for meats much but does eat lots of veggies and fruit. 

 

We had his liver tested and it was all fine

We had an ultrasound done and all was fine.

 

We were told if he throws up one more time we needed to do an endoscopy. He threw up last week 3 times in 2 hours after a nap at the sitters. He empties his tummy each time. So I scheduled the endo.

 

ENDO was this morning and I was hoping for obvious Celiac but I didn't get that. The images "look" clean as a whistle. I have to wait until Friday to get the biopsy results. They did not do bloodwork yet because they said the ENDO would either tell you or not over blood work.

 

Does anyone know anything about if the images looks clean and biopsy coming back positive? Does it happen often.

I would just make him Gluten free by myself but my husband won't follow through unless a doctor tells him he needs to do this. BTW this is my allergy child who has terrible eczema skin also. He goes for allergy testing in July.



 

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Have they looked at lactose intolerance?  You might want to look into that.

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Make sure you ask for written copies of both the pathology and procedure reports for the endo and if it were my child I would push for a complete celiac antibody panel before removing gluten -- once that is done remove all gluten to see if symptoms improve -- many children improve quickly once gluten is removed.

 

Here is the complete panel:

 

Total Serum IgA

tTG - both IgA and IgG

EMA - IgA

DGP - IgA and IgG

 

the AGA is an older "Gliadin" (gluten protein) test -- optional but if run should also be both IgA and IgG

 

Hang in there Mom :)

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We are looking at that as well. I talked to the GI today and he said that my child would be throwing up after every time he drank or ate dairy most likely if it was lactose. At this point I am just trying to rule out one thing at a time.

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Gottaski- I will most likely do that. He thinks the endoscopy will come back with results but it is 50/50. I am not sure if he saw something he isn't saying but that is what he told us. He said everything visually looked ok and if the tests were negative we would talk about other options. I don't know what that means :) (I mean I technically do... "other options" is what I am referring.)

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My four-year-old daughter had a clearly positive biopsy, but everything looked normal during the endoscopy itself. The pediatric GI said that he wouldn't expect the damage to be visible in most young children with celiac.

Like your son, she also had lots of vomiting, which started when she was just a few weeks old and exclusively breast feeding. At one point she was having projectile vomiting six or seven times each day and they did an ultrasound to check for pyloric stenosis, but it wasn't that. She also had significant neurological problems and extreme fussiness as an infant, but her GI symptoms didn't really start until she was a toddler. She did have clear problems with dairy too, but removing dairy did not help much overall (while she was still eating gluten).

It's good that the doctor will look into other options (whatever those may be) if the celiac tests are negative. I hope they figure it out soon!

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My toddler since Thanksgiving has been consistently producing a white/cream or khaki color poop. He complains of tummy pain frequently and vomits. His stomach is not rigid. yes gross sorry. 

He will be 3 in August and is 27 pounds and average height. He has thrown up at least 10 separate occurrences and several times here and there one time. He drinks about 20 oz of milk a day or water. He has a pretty heavy wheat and cheese diet. He doesn't care for meats much but does eat lots of veggies and fruit. 

 

We had his liver tested and it was all fine

We had an ultrasound done and all was fine.

 

We were told if he throws up one more time we needed to do an endoscopy. He threw up last week 3 times in 2 hours after a nap at the sitters. He empties his tummy each time. So I scheduled the endo.

 

ENDO was this morning and I was hoping for obvious Celiac but I didn't get that. The images "look" clean as a whistle. I have to wait until Friday to get the biopsy results. They did not do bloodwork yet because they said the ENDO would either tell you or not over blood work.

 

Does anyone know anything about if the images looks clean and biopsy coming back positive? Does it happen often.

I would just make him Gluten free by myself but my husband won't follow through unless a doctor tells him he needs to do this. BTW this is my allergy child who has terrible eczema skin also. He goes for allergy testing in July.

 

Hi Sorry sorry about your baby :( my one year old just had an endo Tuesday...her GI said on kids young you cant really see damage and that if their is damage its microscopic..so even before she went back he told us that and he said everything looked fine after just like he expected...she had a pos blood test so we did the endo to find out for sure...good luck!

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Mm- thank you. This gives me some relief. While I don't want this diagnosis I welcome it because we can treat it at home. I also think overall it will help our situation.

Thank you for all the replies. I am waiting results :)

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    • Yeah , i will look into getting tested - like you say there is no harm in it . What I found very interesting is the part where you say "Later I got pains in the stomach, usually a dull ache although I could get a fierce stabbing pain there too. When I went gluten free those pains stopped. as did my chronic sciatic backache which Ive subsequently realised was probably due to inflamed tissues pressing on nerves." - I also started to get chronic sciatic nerve pain on the right side over a similar time period and am wondering if its the same kind of thing. If I could solve both those things it would be life changing for me
    • Hi ,  i was thinking that an intolerance and allergy were about the same thing really but sorry if im wrong. I know celiac is an autoimmune disease but was thinking that is different again, more serious and was erring on the side of my possible issue not being that but more of the intolerance type. Clearly im just guessing though and dont know about this stuff , hence the posting for advice, The problem with trying to get tested is that in bolivia there are very limited tests and doctors are unreliable so you have to rely on yourself to certain degree. I have heard of a test here and was planning on looking into that but it made sense to try to get some opinions and advice online first so Im in a better position to understand if any tests here are actually reliable enough. I dont think there is an issue with travel parasites etc as I have already taken the medications thats would kill them like a course of albendazol and praziquantel and that was after a 2 week anti parasite cleanse. That did feel like it got rid of anything and the only issue I have been left with is this pain as described.
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    • You can supplement if you want to.  IF you are low on iron or vitamin D - then some vitamins might be helpful.   The treatment for Celiac disease is a strict gluten free diet.  Some people need to cut out lactose for a few months, too.  The villi that are damaged in Celiac are the part that helps you digest lactose.  So, until they are healed, it might help to skip milk , cream, etc.     http://www.cureceliacdisease.org/faq/are-there-vitamins-created-specifically-for-nutrient-deficiencies-in-celiac-patients-2/  
    • First - there is no such thing as a "gluten allergy".  Celiac is an autoimmune disease.  Just so you understand. It could be Celiac or a different gluten intolerance.  I am guessing you aren't going to get tested for Celiac disease.  IF it were me, I would be more concerned that maybe there is still some sort of infection or parasite from the places you have been.  I think I would try to get a good work-up for that first.
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