• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Doctor's Note For My Trip?
0

19 posts in this topic

Hi all,

 

I used to post here quite a bit but have been off the boards for a while.  I have a question.  I am leaving for Poland in about a month.  It will be the first time I've travelled overseas since my diagnosis.  I am flying Lufthansa and have ordered my gluten free meal.  I also plan on packing some snacks to carry on the plane.  Do you think I should get a note from my doctor in case airport security gives me a hard time about my snacks?  The rules about what they accept on board seem to change daily and I have seen some personnel be much stricter than others about carry on items.

 

I've heard good things about Lufthansa's gluten-free meals, but I am worried that there could be a mix up.  And I don't want to be stuck on a plane without food.  DH doesn't want me to be stuck without food either, as I become very, very grumpy :(    Do you think having a doctor's note would help me, or should I even bother?

 

I'm not worried about the food when I get over there, as we'll be staying with some friends who can give us the skinny on where to eat. Plus the Polish Celiac Society has a free restaurant card in Polish on the English version of their website for visitors and I've printed a bunch of copies to hand to waiters.  It's mostly the plane ride that worries me.

 

What do you guys think?  Do you get a note from your doctor before you travel?  Or am I just being paranoid? :P

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I have a note.  Its on the prescription pad.  I keep it in my wallet.  I have never had to use it.  I have offered it but never had to use it.  I say - get one.  It doesn't have to be fancy.  Mine is just a brief note that I have Celiac and must not eat wheat, rye and barley.  As those can be in many foods, I should bring my own food.  I just get the doc to make a new one every year, so the date isn't too old.  People may think that celiac disease gets healed.

0

Share this post


Link to post
Share on other sites

I have a note.  Its on the prescription pad.  I keep it in my wallet.  I have never had to use it.  I have offered it but never had to use it.  I say - get one.  It doesn't have to be fancy.  Mine is just a brief note that I have Celiac and must not eat wheat, rye and barley.  As those can be in many foods, I should bring my own food.  I just get the doc to make a new one every year, so the date isn't too old.  People may think that celiac disease gets healed.

 

 

Same here. Note from GI doc..in my wallet. Never had to produce it, but I like to have it JIK.

0

Share this post


Link to post
Share on other sites

Same here. Note from GI doc..in my wallet. Never had to produce it, but I like to have it JIK.

Mine is from my primary care doctor. I bet my OB/ gym would write one, too if that was the next doc to see.

0

Share this post


Link to post
Share on other sites

Mine is from my primary care doctor. I bet my OB/ gym would write one, too if that was the next doc to see.

 

yes, I would think any one of your regular docs would be willing to write one. 

0

Share this post


Link to post
Share on other sites
Ads by Google:


Wow!  How fun!  It's been a decade since I've been to Poland.  We have family and they live near Krakow (the village of Lisia Gora near Tarnow).  I'm hoping to take my daughter when she gets to High School.  Just received another email regarding the Wieliczka Salt Mines.  If you haven't  been there, you've got to go!  

 

 

 

Hummm.....I'm going to get a doctor's note to carry too.  

0

Share this post


Link to post
Share on other sites

I think you don't have to worry about your snacks, it's the liquids you should be worried of. Everytime I fly, I travel with my gluten free snacks, and I passed quite a lot of very secure airports. Enjoy your stay!

0

Share this post


Link to post
Share on other sites




Wow!  How fun!  It's been a decade since I've been to Poland.  We have family and they live near Krakow (the village of Lisia Gora near Tarnow).  I'm hoping to take my daughter when she gets to High School.  Just received another email regarding the Wieliczka Salt Mines.  If you haven't  been there, you've got to go!  

 

 

 

Hummm.....I'm going to get a doctor's note to carry too.  

We are going to stay in Krakow and have been planning on going to the salt mines.  My husband saw them last time he was there and said they were a must see.  My must see thing is Auschwitz.  Not a pleasant tour, but I feel compelled to see it, especially since we'll be so close.  And I want to see the Schindler Museum.  Other than that, I'm game for visiting anything or anywhere in Poland.

 

I hope you get to take your daughter when she gets older.  It's great to be able to see family and your heritage.  DH and I honeymooned in Ireland and it was very special to me when I got to see the town my great grandfather was born in, even though it was a tiny hole in the wall with only a pub and a post office :D

0

Share this post


Link to post
Share on other sites

Okay, now I don't feel so paranoid for wanting to get a doctor's note.  Thanks for your help everyone.  I'm going to call the doctor's office and get one just to have on-hand.  Better safe than sorry.

0

Share this post


Link to post
Share on other sites

.  DH and I honeymooned in Ireland and it was very special to me when I got to see the town my great grandfather was born in, even though it was a tiny hole in the wall with only a pub and a post office :D

 

Same here!! both my great grandmother and hub's grandparents --both sets--came from Ireland and we spent our honeymoon traipsing all over and seeing the counties they came from. We went back 3 more times, we loved Ireland so much..

 

BabsV--a member on here--lived in Poland for a while. 

She has not been very active lately, but she may see a PM if you send her one! She's a doll and may have some tips.

Just a thought!

 

Have a wonderful trip! :) 

0

Share this post


Link to post
Share on other sites




Thanks IrishHeart, I just sent her a PM.

0

Share this post


Link to post
Share on other sites

Thanks IrishHeart, I just sent her a PM.

 

you bet, hon!

0

Share this post


Link to post
Share on other sites

We are going to stay in Krakow and have been planning on going to the salt mines.  My husband saw them last time he was there and said they were a must see.  My must see thing is Auschwitz.  Not a pleasant tour, but I feel compelled to see it, especially since we'll be so close.  And I want to see the Schindler Museum.  Other than that, I'm game for visiting anything or anywhere in Poland.

 

I hope you get to take your daughter when she gets older.  It's great to be able to see family and your heritage.  DH and I honeymooned in Ireland and it was very special to me when I got to see the town my great grandfather was born in, even though it was a tiny hole in the wall with only a pub and a post office :D

Yes, you must visit  Oswiecimiu.  My husband's family is there.   They lived just outside the walls of the original camp.  If you tried to help you were killed.  To hear their account was horrifying! In Tarnow, my Great Aunt's husband was in the resistance and "disappeared" early on.  Her parents hid her in the cellar, along with her baby, since the Nazi's were rounding up young women to work as housekeepers in Germany (aka slaves).  

 

We plan on going to Great Britain in two years (daughter is a fan of Harry Potter).  We'll visit Ireland.  Both my hubby and I  have a little Irish in us, but I don't think there is any family that we can trace.  

 

It's been fun chatting about this!

0

Share this post


Link to post
Share on other sites

My doctor's note has never been used, either. I use restaurant cards in the language of the country as well as memorize words in that language for things such as wheat, barley, rye, oats, gluten, etc. This comes in handy with label reading in the shops. We travel internationally regularly and have never had problems with snacks.

Lufthansa does not have the greatest gluten free meals. They are sort of alright. My last one was in May. Let's just say I had to pull out my snacks. Just be prepared for that possibility as well as flight delays which always happen to us at Frankfurt. I have not been to Poland yet but have been to tons of other European countries and have always eaten safely. Don't worry about it much - go and ENJOY!!!

Contact Lufthansa again the day before you leave. A few trips ago they did not have my special meal on a very long flight. Thankfully I was prepared.

0

Share this post


Link to post
Share on other sites

I'd have some GoPicnics with me on the flight.

0

Share this post


Link to post
Share on other sites

Yeah, I was going to pack some GoPicnics and a bunch of Larabars and Kind Bars.  Plus I was going to lurk on the "Favorite Emergency Food" thread to get some ideas of a few other things.

0

Share this post


Link to post
Share on other sites

Jif to go cups and crackers are good too !!  yes, go check that thread!!  :) good stuff!!

0

Share this post


Link to post
Share on other sites

I have a dr note and had to use it once on a flight from Washington to idaho (can you believe that!!).  Handy to have.

0

Share this post


Link to post
Share on other sites

I just flew El Al to Israel and got stopped both ways due to the food in my carry on. they were going to take it away, I got out my note, and they let it go. I am so glad I had the note with me.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,313
    • Total Posts
      935,427
  • Member Statistics

    • Total Members
      64,971
    • Most Online
      3,093

    Newest Member
    johnojohno
    Joined
  • Popular Now

  • Topics

  • Posts

    • Thanks Ennis and cycling lady, Ennis thanks for letting me know I'm not alone on the goofy intolerance stuff. cycling lady I'd love an orange tree that must be great to just go pluck one to get your serving. We do fruits regularly here too.  I just test the lands of processed land occasionally and apparently the land mines are everywhere. I chose homemade almond milk today.  I am just perplexed my son reacted too which is the concerning thing to me. From the research I've done and your suggestions it's best we remove the product from our list of potential items for it clearly is not a match. have a good day
    • Drop the dairy and if your eating any drop oats. Enzymes to digest lactose are produced by the tips of the villi, so your going to have issues with til they heal. Remove for a few months at least change over to a nut based milk, some hard cheeses might still be fine but you might want to change over to vegan/dairy free versions of it for a while then try reintroducing them.  Fruits yeah large amounts of sugar are more of a issue then the fiber and bother are going to cause bloating, gas, etc. Try eating more dark green leafy veggies, smaller amounts of fruit and eating nuts, seeds, etc in there to up fiber without the sugar and get some fats in there that way, If you eat meats stews, soups in large pots are going to be your friend for awhile easy, simple, cheap, and can be done in batches, and portioned off for a week at a time. Check out the 101 thread for more info, I think some of our EU members can help you more with finding products that I can, same with supplements. Cross contamination and chances your still eating gluten unknowingly are highly possible there is a HUGE learning curve refer to hte 101 thread for more info. That covers the basics. welcome to the club? https://www.celiac.com/gluten-free/topic/91878-newbie-info-101/  
    • Think about this.  I have only had my daughter tested for celiac disease.  She tested negative.  She will need to be retested sometime in the future or when symptoms develop.  But genetic testing?  This might impact her insurability in terms of health and life.  I do not have the answers, but I would research this before having everyone tested.  Some 40% of the population carries the genes to develop celiac disease.  Only a very few actually develop it.  Insurance companies will deny you for all kinds of lame reasons.  Just be careful. 
    • I think for adults who are disabled or have really low incomes, they should be allowed to keep their Rx.  But anyone else who is an adult and has a job, they should pay their own way.  There are so many options available in the UK now and their gluten-free options are really good.  You have better bread than we do in the States and the cost in many instances is lower than it is here.
    • Ennis....pertaining to food deductions, you can deduct the price difference between those items that you would have to buy a gluten free version of because there are no other options......like all the mixes and things mentioned.  Chips, not so much, as many chips are already gluten free so it would not apply.  Those would be your safest bet as you probably will be audited for doing this.  That's how the IRS works. If there are big changes regarding deductions, that will raise a red flag and your chances of being audited go up.  You sound like you keep good records so don't sweat it if you will gain a benefit in income from doing so.  You do realize that you have to have a minimum of 10% of your adjusted gross income to even begin to deduct anything?
  • Upcoming Events