• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
mmcc54

1 Year Old Had A Pos Blood Test Neg Biopsy?!

Rate this topic

Recommended Posts

My one year old had a pos blood test only IgG was positive..her IgA levels were normal. Her IgG was a 19 (anything over 9 pos) she also had a whole mess of thing in her blood work that were high/low...she had her biopsy and its pretty normal?! Dr said he saw some spots but it wasn't enough to diagnose celiacs, but that we should go gluten free!? Im confused! What could cause her IgG levels to be positive if its not celiacs?

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


In my opinion she should be diagnosed with Celiac Disease.  Symptoms plus positive antibody test in someone so young = Celiac Disease -- again, my opinion.  All this means is she is creating antibodies to gluten, but does not yet have damage severe enough on the Marsh Scale.

 

here is a link to an explanation of Celiac Typing:

 

http://www.celiac.com/gluten-free/topic/97163-typing-of-celiac/?p=827967

 

Now that testing is complete -- remove ALL gluten and monitor for symptom improvement -- keep a diary to bring to follow up appointments -- this would help if you should need an "official" celiac dx once your daughter enters school.

 

Hang in there Mom :)

Share this post


Link to post
Share on other sites

ps...make sure you have full celiac antibody panels run at 3mo, 6mo and then annually after that.

Share this post


Link to post
Share on other sites

These children are tiny and not all positive blood work means celiac however our kids may not have damage either since they are so little which is what they use to confirm in endo and genetic testing is an only could be test also so just all puzzle peices as I have been told.

Unfortunately only time will tell.

What confuses me most is going gluten free skews the results but you need to for their well being so they have you do that and diagnose a lot of times on results from that in conjunction with those findings.

Share this post


Link to post
Share on other sites
Ads by Google:


These children are tiny and not all positive blood work means celiac however our kids may not have damage either since they are so little which is what they use to confirm in endo and genetic testing is an only could be test also so just all puzzle peices as I have been told.

Unfortunately only time will tell.

What confuses me most is going gluten free skews the results but you need to for their well being so they have you do that and diagnose a lot of times on results from that in conjunction with those findings.

 

This is why it is important to remain on gluten until testing is complete.  Once the tests have been run, there is no reason not to remove all gluten and keep a symptom log/diary.

Share this post


Link to post
Share on other sites

This is why it is important to remain on gluten until testing is complete. Once the tests have been run, there is no reason not to remove all gluten and keep a symptom log/diary.

This is where I get confused.. They recommed to go gluten-free bc after the endo testing is basically done until they are older. So your saying keep giving them gluten until they retest?

Share this post


Link to post
Share on other sites

This is where I get confused.. They recommed to go gluten-free bc after the endo testing is basically done until they are older. So your saying keep giving them gluten until they retest?

No, it means that after that first batch of testing is done, both the blood and endo, you can try the diet as a final test. If you wish to have testing done when the child is older, then a gluten challenge would be required (eating gluten for a period of time). However, if the diet resolves all of the symptoms then, imo, you have your answer.

Share this post


Link to post
Share on other sites

This is where I get confused.. They recommed to go gluten-free bc after the endo testing is basically done until they are older. So your saying keep giving them gluten until they retest?

 

I am saying keep them gluten free and keep a symptom log.  If symptoms improve that is another part of diagnosis.  Continue to monitor FULL celiac panel (minimally annually), remain gluten-free and IF there is a question down the road -- THEN determine if a gluten challenge is necessary.  Current testing leaves a lot to be desired -- it is my hope this will change/improve with time.

 

Keep in mind that once gluten free for some time -- it may become impossible to ingest any -- thus another piece of the puzzle.  I know how tough this can be to understand -- in our family -- my own kids tested negative when I was diagnosed...yet removal of gluten improved or removed all their health issues.

Share this post


Link to post
Share on other sites


Ads by Google:


I am having this problem with my 9 year old son. I took him off of gluten after he saw the GI a month before his endo and it came back negative. Now that my husband was diagnosed with celiac the peds GI wants me to put my son back on gluten so she could do the endo again. I explained to them that he was losing too much weight and had chronic pain and diarrhea and I didn't want to put him through that again. My whole family is gluten free (my husband, me, son (9), and son (5) we have all noticed improvements in our health because of it I don't even care to get the confirmed diagnosis. 

 

My son's pediatrician said since he has made such an improvement in health that she will write a prescription to the school that he cannot have gluten so we shall see how it goes.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,930
    • Total Posts
      943,576
  • Member Statistics

    • Total Members
      67,219
    • Most Online
      3,093

    Newest Member
    Bentleyep
    Joined
  • Popular Now

  • Topics

  • Posts

    • I have read the newbie 101 and have been careful about reading labels. I'm the only one that's gluten free in my household, so they could be contaminating me. I was eating gluten for 6 weeks after my blood test because it took that long to get an official diagnosis and my GP told me to still be eating it for the tests to be accurate. It was probably too soon to retest, but the test was accidentally ordered by the lab. I have been having an increase in joint pain over the last couple months and my rheumatologist ordered lab work. The lab saw the celiac panel had been ordered, but didn't see results so they added it on because they thought it still needed done.  My gut issues are starting to get better, but I'm thinking the joint pain might have been from the celiacs because all of the rheumatoid tests came back normal for the first time in twenty years.
    • Hi and Welcome to the Forum.  I am glad that you are here! As with a lot of things in life, try not to compare yourself to other people. You are trying to be the best version of yourself - not Jill, Annie, or Maya.  People make a lot of foolish decisions in the world and it does not mean that you should do it too.  Also, many people are gluten free for a lot of reasons that aren't celiac. One of my best friends has gluten sensitivity but not celiac.  He eats a lot of food that I won't touch due to possible cross contamination which he doesn't worry about too much.  Be true to yourself and keep your self healthy.  It is so hard, but it's better than getting sick! I hate not being able to partake in yummy food at parties, but I have learned what junk food I can eat.  I will make sure to buy some tortilla chips or Fritos for picnics.  I freeze gluten-free cupcakes to eat when we celebrate birthday parties (I can just take one out of the freezer and go).  I make sure to take a dish to share to potlucks.  I ask permission at restaurants and parties to bring my own food - no one has ever said no, and when there is a time to celebrate, I splurge on something I really like.  Fortunately, there are a lot of gluten-free foods that I really like. Do i miss pizza and really good burger? YES! And sometimes, I still feel awkward, but life is so much more than food.
    • Holy cow! You people are all angels! I have been suffering unbearably with these hot, itchy, and painful bumps on my scalp for a year now. Two doctors had no idea what it was, so I was sent to see a "dermatologist." To my utter shock, he told me I WAS DIRTY! HE TOLD ME TO WASH MY HAIR EVERY DAY with a shampoo called Nizoral, that it would take the itch away. He also prescribed a Vaseline based salve with a steroid in it. Guess what? It did nothing nor did the shampoo, and the more I washed my hair, the worse it gets. It's like torture, and I just can't stop scratching holes into my scalp. Then they scab over, then itch again. I was almost ready to shave my head, until I found this forum. I knew nothing about celiac disease, sensitivity to gluten... I knew nothing. Just so happened that my daughter found a paper talking about celiac during her visit to her GI yesterday. She brought it home for me, and demanded that I read it!  WHAM- a light come on, and I said to her... That IS what I have. I am going to my GP tomorrow to demand that I be tested for ciliac. I am rather terrified, as I am already a type 1 diabetic and have been on insulin for 52 years! I was blaming my diabetes the whole time. I have had a lower left leg amputation, and the last thing I need is to start getting this ungodly rash on my stump!!! Thank you everyone for all of the useful information you have provided in this blog. Maybe I'm not going to die after all! 😉
    • The University of Chicago recommends re-testing 3 to six months after going gluten free and then annually.  Most GIs wisely wait because although you can theoretically heal that fast, it takes TIME to master the gluten free diet.  It can take up to a year or longer for antibodies to come down.  As someone who has more than one autoimmune issue like myself (and only a DGP IgA that has ever been elevated), I think that impacts healing  and how quickly antibodies come down.   My recent endoscopy (5 years post diagnosis) revealed a healed small intestine, yet my DGP IgA was still at 80 (which was over 200 last April when I was somehow exposed to gluten).   Hang in there!  Wait six more months to get retested.  Look for other signs of healing (like anemia resolving, improve gut issues).  
    • Sounds great, one of my dreams is to open a grain free/gluten free food truck.......stone and mortar places would not do well here, but a mobile one able to cater....LOL dream I know, fundraiser has flopped and been running for a year. Hell I had the quotes up, the whole sale contracts setup, the business model and plan. I even tried to get loans, and business partners.....all flopped.
  • Upcoming Events